{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,20]],"date-time":"2026-08-20T14:48:36Z","timestamp":1787237316857,"version":"build-2736575974"},"reference-count":38,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2016,8,30]],"date-time":"2016-08-30T00:00:00Z","timestamp":1472515200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000050","name":"National Heart, Lung, and Blood Institute","doi-asserted-by":"publisher","award":["K07HL108720"],"award-info":[{"award-number":["K07HL108720"]}],"id":[{"id":"10.13039\/100000050","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Pediatric Blood &amp; Cancer"],"published-print":{"date-parts":[[2017,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Adolescents and young adults (AYAs) with sickle cell disease (SCD) are a vulnerable population with high risk of morbidity that could be decreased with effective self\u2010management. Previous research suggests that mobile applications (apps) may facilitate AYA engagement in health\u2010promoting behaviors. The objectives of this study were: (i) describe Internet access and use in AYA with SCD; (ii) identify barriers for self\u2010management in this population; (iii) collaborate with AYA to co\u2010design a mobile app that would minimize barriers; and (iv) evaluate the feasibility and acceptability of the app.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Procedure<\/jats:title>\n                    <jats:p>In phase 1, 46 AYAs with SCD 16\u201324 years of age completed a survey of Internet access and use. During phase 2, 19 AYAs with SCD (average age 20 \u00b1 2.5 years) and eight healthcare providers participated in interviews to identify barriers and co\u2010design sessions to develop the app. In phase 3, five AYAs with SCD completed app feasibility and usability testing.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>AYAs with SCD had daily Internet access (69%) using their computers (84%) or mobile phones (70%). Participants went online for health information (71%) and preferred Web sites with interactive\/social features (83%). Barriers to self\u2010management included failing to believe that their health would suffer, lack of tailored self\u2010management support, lack of a mechanism to visualize self\u2010management progress, and limited opportunities for peer interaction around self\u2010management. The prototype app (iManage) was rated as highly feasible and beneficial.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>A mobile app prototype co\u2010designed by AYAs with SCD may be a useful tool for engaging them in self\u2010management strategies designed to improve health.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/pbc.26177","type":"journal-article","created":{"date-parts":[[2016,8,30]],"date-time":"2016-08-30T04:26:41Z","timestamp":1472531201000},"page":"139-145","source":"Crossref","is-referenced-by-count":109,"title":["Development and evaluation of iManage: A self\u2010management app co\u2010designed by adolescents with sickle cell disease"],"prefix":"10.1002","volume":"64","author":[{"given":"Lori E.","family":"Crosby","sequence":"first","affiliation":[{"name":"Division of Behavioral Medicine Cincinnati Children's Hospital Medical Center  Cincinnati Ohio"},{"name":"Department of Pediatrics University of Cincinnati College of Medicine  Cincinnati Ohio"},{"name":"James M. Anderson Center for Health Systems Excellence Cincinnati Children's Hospital Medical Center  Cincinnati Ohio"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Russell E.","family":"Ware","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Cincinnati College of Medicine  Cincinnati Ohio"},{"name":"Division of Hematology Cincinnati Children's Hospital Medical Center  Cincinnati Ohio"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alana","family":"Goldstein","sequence":"additional","affiliation":[{"name":"Department of Psychology Xavier University  Cincinnati Ohio"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ashley","family":"Walton","sequence":"additional","affiliation":[{"name":"Division of Behavioral Medicine Cincinnati Children's Hospital Medical Center  Cincinnati Ohio"},{"name":"Department of Psychology University of Cincinnati  Cincinnati Ohio"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Naomi E.","family":"Joffe","sequence":"additional","affiliation":[{"name":"Division of Behavioral Medicine Cincinnati Children's Hospital Medical Center  Cincinnati Ohio"},{"name":"Department of Pediatrics University of Cincinnati College of Medicine  Cincinnati Ohio"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Craig","family":"Vogel","sequence":"additional","affiliation":[{"name":"College of Design, Architecture, Art, and Planning University of Cincinnati  Cincinnati Ohio"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria T.","family":"Britto","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Cincinnati College of Medicine  Cincinnati Ohio"},{"name":"Division of Adolescent Medicine Cincinnati Children's Hospital Medical Center  Cincinnati Ohio"},{"name":"James M. Anderson Center for Health Systems Excellence Cincinnati Children's Hospital Medical Center  Cincinnati Ohio"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2016,8,30]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.amepre.2009.12.022"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12325-015-0197-1"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1182\/blood-2009-07-233700"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1100\/2012\/949535"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajh.21550"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1097\/MOH.0b013e3280ec5243"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2010.378"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.21781"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1097\/MPH.0b013e3181acd889"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-1-4419-0570-3_1"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1525\/9780520945043"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2011-1635"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jadohealth.2014.06.011"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/27.8.739"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pmn.2014.06.001"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2012.02.005"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-011-1931-2"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1745-7599.2008.00360.x"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.26019"},{"key":"e_1_2_8_21_1","unstructured":"LenhartA MaddennM HitlinP.Teens and technology: Youth are leading the transition to a fully wired and mobile nation. 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