{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T23:58:53Z","timestamp":1787875133856,"version":"build-2784847793"},"reference-count":22,"publisher":"Wiley","issue":"11","license":[{"start":{"date-parts":[[2017,5,13]],"date-time":"2017-05-13T00:00:00Z","timestamp":1494633600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100002322","name":"Coordena\u00e7\u00e3o de Aperfei\u00e7oamento de Pessoal de N\u00edvel Superior","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100002322","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Pediatric Blood &amp; Cancer"],"published-print":{"date-parts":[[2017,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Fanconi anemia (FA) is a rare genetic syndrome characterized by increased risk of developing malignant neoplasms, particularly oral squamous cell carcinoma. This study aims to ascertain the extent to which adolescents and guardians\/parents of children with FA are aware of their oral cancer risks and assess their ability to perform mouth examination (ME).<\/jats:p><\/jats:sec><jats:sec><jats:title>Procedure<\/jats:title><jats:p>A cross\u2010sectional study was conducted among patients with FA (between 6 and 16 years) and their parents. A total of 45 patients, 19 children and 26 adolescents, participated in the study. Among children less than 12 years of age, caregivers performed ME and adolescents between 12 and 16 years of age performed mouth self\u2010examination (MSE). All parents were given a self\u2010reporting questionnaire to collect sociodemographic data, information about health\u2010related behaviors, and oral cancer awareness. Performance was evaluated using criteria for mucosal visualization and retracting ability. Subsequently, a dentist clinically examined all patient participants.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Performance evaluation indicated that the examination quality was unsatisfactory in both groups. Statistical significance was found between ability to perform ME by marital status (<jats:italic>P<\/jats:italic> &lt; 0.036), where divorced parents had more difficulty performing ME than nondivorced parents.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Oral mucosa surveillance performed by parents and adolescents seems to be inaccurate. However, as an oral examination is a relatively inexpensive form of secondary prevention, it merits attention to teaching the technique to patients with FA and their caregivers.<\/jats:p><\/jats:sec>","DOI":"10.1002\/pbc.26622","type":"journal-article","created":{"date-parts":[[2017,5,13]],"date-time":"2017-05-13T11:58:43Z","timestamp":1494676723000},"source":"Crossref","is-referenced-by-count":9,"title":["Mouth examination performance by children's parents and by adolescents in Fanconi anemia"],"prefix":"10.1002","volume":"64","author":[{"given":"Allana","family":"Pivovar","sequence":"first","affiliation":[{"name":"Department of Stomatology Post Graduate Program in Dentistry, Federal University of Paran\u00e1 School of Dentistry  Curitiba Paran\u00e1 Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9370-3156","authenticated-orcid":false,"given":"Camila Pinheiro","family":"Furquim","sequence":"additional","affiliation":[{"name":"Department of Stomatology Post Graduate Program in Dentistry, Federal University of Paran\u00e1 School of Dentistry  Curitiba Paran\u00e1 Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carmem","family":"Bonfim","sequence":"additional","affiliation":[{"name":"Bone Marrow Transplantation Unit Hospital de Cl\u00ednicas Federal University of Paran\u00e1.  Curitiba Paran\u00e1 Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cassius Carvalho","family":"Torres\u2010Pereira","sequence":"additional","affiliation":[{"name":"Department of Stomatology Post Graduate Program in Dentistry, Federal University of Paran\u00e1 School of Dentistry  Curitiba Paran\u00e1 Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2017,5,13]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.11046"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1182\/blood-2002-07-2170"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1182\/blood-2004-04-1652"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0167-8140(01)00474-1"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1399-3046.2005.00440.x"},{"key":"e_1_2_8_7_1","first-page":"73","article-title":"Reliability of oral precancer screening by primary health care workers in Sri Lanka","volume":"7","author":"Warnakulasuriya S","year":"1990","journal-title":"Community Dent Health"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.oooo.2014.06.012"},{"key":"e_1_2_8_9_1","first-page":"419","volume-title":"Fanconi Anemia: Guidelines for Diagnosis and Management","author":"Fanconi Anemia Research Fund (FARF)","year":"2014"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.25417"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.5144\/1658-3876.2012.1"},{"key":"e_1_2_8_12_1","first-page":"249","article-title":"Factors associated with parent capability on child's oral health care","volume":"43","author":"Mitrakul K","year":"2012","journal-title":"Southeast Asian J Trop Med Public Health"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2014.06.031"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/jphd.12101"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/idh.12097"},{"key":"e_1_2_8_16_1","first-page":"2001","article-title":"Family structure and children's health in the United States: findings from the National Health Interview Survey, 2001\u20132007","volume":"10","author":"Blackwell DL","year":"2010","journal-title":"Vital Heal Stat"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.14219\/jada.archive.2012.0071"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph10083483"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/0197-0070(89)90097-1"},{"key":"e_1_2_8_20_1","volume-title":"The Child's Conception of the World","author":"Piaget J.","year":"2002"},{"key":"e_1_2_8_21_1","doi-asserted-by":"publisher","DOI":"10.1002\/hed.21341"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.7314\/APJCP.2012.13.10.5011"},{"key":"e_1_2_8_23_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2012.03.015"}],"container-title":["Pediatric Blood &amp; Cancer"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fpbc.26622","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/pbc.26622","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,5]],"date-time":"2023-10-05T03:34:11Z","timestamp":1696476851000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/pbc.26622"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,5,13]]},"references-count":22,"journal-issue":{"issue":"11","published-print":{"date-parts":[[2017,11]]}},"alternative-id":["10.1002\/pbc.26622"],"URL":"https:\/\/doi.org\/10.1002\/pbc.26622","archive":["Portico"],"relation":{},"ISSN":["1545-5009","1545-5017"],"issn-type":[{"value":"1545-5009","type":"print"},{"value":"1545-5017","type":"electronic"}],"subject":[],"published":{"date-parts":[[2017,5,13]]},"article-number":"e26622"}}