{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,7]],"date-time":"2026-07-07T13:22:36Z","timestamp":1783430556120,"version":"3.54.6"},"reference-count":27,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2022,9,24]],"date-time":"2022-09-24T00:00:00Z","timestamp":1663977600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Blood &amp; Cancer"],"published-print":{"date-parts":[[2022,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Individuals with sickle cell disease (SCD) experience systemic barriers in accessing high\u2010quality care. Research suggests that patient\/family\u2013provider relationships are an important indicator of healthcare quality and can influence disease self\u2010management and outcomes. The Patient Centered Communication (PCC) framework holds that patient\/family\u2010centered communication (e.g., eliciting, understanding, and validating patients\u2019 perspectives within their unique psychosocial contexts) contributes to improved family\u2013provider relationships, as well as self\u2010efficacy for disease management, adherence, and health outcomes. While the PCC framework has been useful in guiding the evaluation of patient\/family\u2013provider communication in other pediatric populations, it has not yet been applied in the context of pediatric SCD. This study aimed to use this framework to examine patient and family perceptions of communication with pediatric SCD healthcare providers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Procedure<\/jats:title><jats:p>Total 17 caregivers (82% mothers, 94% Black\/African American) and eight patients (62% female, aged 13\u201319\u00a0years, <jats:italic>M<\/jats:italic>\u00a0=\u00a016.50) completed semi\u2010structured interviews. The PCC framework informed the development of a preliminary codebook. Thematic content analysis summarized family perspectives regarding communication with providers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>For youth with SCD and their caregivers, specific themes related to family\u2010centered communication included: reducing patient\/family distress, supporting disease self\u2010management efforts, facilitating information exchange and decision\u2010making, and fostering positive and trusting relationships with providers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>This study helps to address gaps in the literature related to patient\/family\u2013provider communication within pediatric SCD. Results underscore the importance of patient\u2010 and family\u2010centered communication across pediatric SCD care. These findings can inform future research and clinical care initiatives to improve patient\/family\u2013provider interactions and health outcomes for this underserved population.<\/jats:p><\/jats:sec>","DOI":"10.1002\/pbc.30016","type":"journal-article","created":{"date-parts":[[2022,9,24]],"date-time":"2022-09-24T14:00:00Z","timestamp":1664028000000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["Family\u2010centered communication in pediatric sickle cell disease"],"prefix":"10.1002","volume":"69","author":[{"given":"Megan M.","family":"Carlson","sequence":"first","affiliation":[{"name":"Division of Developmental and Behavioral Sciences Children's Mercy Kansas City  Kansas City Missouri USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Benjamin","family":"Bear","sequence":"additional","affiliation":[{"name":"Center for Healthcare Delivery Science Nemours Children's Health  Wilmington Delaware 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