{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,16]],"date-time":"2026-03-16T07:08:49Z","timestamp":1773644929409,"version":"3.50.1"},"reference-count":32,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2024,1,10]],"date-time":"2024-01-10T00:00:00Z","timestamp":1704844800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2024,1,10]],"date-time":"2024-01-10T00:00:00Z","timestamp":1704844800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Blood &amp;amp; Cancer"],"published-print":{"date-parts":[[2024,4]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background\/purpose<\/jats:title>\n                    <jats:p>Pediatric Hodgkin lymphoma (HL) survivors have an increased risk of late effects following treatment. Barriers at the patient, provider, and payor level adversely affect adherence to long\u2010term follow\u2010up.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted a retrospective chart review of HL survivors diagnosed from 1999 to 2014 at Texas Children's Hospital. HL survivors were considered lost to follow\u2010up if there were no documented visits to Texas Children's Cancer Center Long\u2010Term Survivor (LTS) clinic for 2 or more years after their last LTS clinic visit. Univariate and multivariable logistic regression analyses were conducted to explore factors contributing to loss to follow\u2010up. Reasons for not attending subsequent LTS visits were assessed by phone interviews in a subset of lost to follow\u2010up patients.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      There were 120 HL survivors who had at least one LTS clinic visit in this timeframe; 64 (53%) were classified as lost to follow\u2010up, and of these, 23 (36%) were interviewed. Eleven (47%) indicated that the reason for failure to follow\u2010up was lack of or inadequate insurance, and seven (30%) stated they were unaware of the importance of continued follow\u2010up. Loss to follow\u2010up was associated with lack of insurance, earlier diagnosis, and lack of comorbidities in univariate analyses. Only earlier year of diagnosis (odds ratio [OR] 0.84, 95% confidence interval [CI]: 0.7\u20130.9,\n                      <jats:italic>p<\/jats:italic>\n                      \u00a0=\u00a0.01) and lack of insurance (OR 22.2, 95% CI: 4\u2013123,\n                      <jats:italic>p<\/jats:italic>\n                      \u00a0&lt;\u00a0.001) were associated with loss to follow\u2010up in multivariable analyses.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Insurance status and awareness of the need for long\u2010term follow\u2010up care are key factors associated with loss to follow\u2010up in survivors of HL. Targeted education and low\u2010cost options for survivorship care are potential strategies for improving adherence to long\u2010term follow\u2010up care in HL survivors.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/pbc.30855","type":"journal-article","created":{"date-parts":[[2024,1,10]],"date-time":"2024-01-10T23:39:48Z","timestamp":1704929988000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["Barriers to long\u2010term follow\u2010up in pediatric Hodgkin lymphoma survivors"],"prefix":"10.1002","volume":"71","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8308-1234","authenticated-orcid":false,"given":"Hailey","family":"Tinsley","sequence":"first","affiliation":[{"name":"Baylor College of Medicine  Houston Texas USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0947-104X","authenticated-orcid":false,"given":"Maria","family":"Gramatges","sequence":"additional","affiliation":[{"name":"Department of Pediatrics Baylor College of Medicine  Houston Texas USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"ZoAnn","family":"Dreyer","sequence":"additional","affiliation":[{"name":"Department of Pediatrics Baylor College of Medicine  Houston Texas USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M. Fatih","family":"Okcu","sequence":"additional","affiliation":[{"name":"Department of Pediatrics Baylor College of Medicine  Houston Texas USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6583-5012","authenticated-orcid":false,"given":"Omar","family":"Shakeel","sequence":"additional","affiliation":[{"name":"Department of Pediatrics Baylor College of Medicine  Houston Texas USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2024,1,10]]},"reference":[{"key":"e_1_2_9_2_1","unstructured":"HowladerN NooneA KrapchoM et\u00a0al.SEER Cancer Statistics Review (CSR) 1975\u20132017.National Cancer Institute USA;2020."},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pcl.2014.09.010"},{"key":"e_1_2_9_4_1","unstructured":"NCCR*Explorer: An interactive website for NCCR cancer statistics [Internet].National Cancer Institute; 2023 Sep 7. 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