{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,7]],"date-time":"2026-10-07T14:35:06Z","timestamp":1791383706051,"version":"4.3.3"},"reference-count":46,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2024,11,6]],"date-time":"2024-11-06T00:00:00Z","timestamp":1730851200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100013362","name":"Swiss Cancer Research Foundation","doi-asserted-by":"publisher","award":["KFS\u20104995\u201002\u20102020"],"award-info":[{"award-number":["KFS\u20104995\u201002\u20102020"]}],"id":[{"id":"10.13039\/501100013362","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Blood &amp; Cancer"],"published-print":{"date-parts":[[2025,1]]},"abstract":"<jats:title>ABSTRACT<\/jats:title><jats:sec><jats:title>Introduction<\/jats:title><jats:p>The death of a child has a tremendous impact on parents\u2019 lives. The experience of parents who have lost a child to cancer may differ from other bereavement experiences, including other childhood and adulthood causes of death, because of the uncertainty of the prognosis, the aggressive treatment, and the potential for regret about treatment decisions. Bereavement care remains scarce, and effective interventions to meet the diverse needs of parents have not been defined.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>To provide insights on bereaved parents\u2019 experiences, their needs, and wishes of support following the loss of their child to cancer.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>We conducted 18 qualitative, in\u2010depth, semi\u2010structured interviews with 23 bereaved parents (seven fathers, 16 mothers), and used reflexive thematic analysis to analyze the data.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Parents received both informal and professional support. Regarding informal support, parents expressed a high level of ambivalence rooted in grief illiteracy. Parents also recognized their own struggles to express what forms of informal support they would have liked to receive. Support provided by healthcare professionals, institutions, and organizations involved in the children's care or in bereavement was inconsistent due to personnel time constraints, interpersonal relationships, or disruptions due to the COVID\u201019 pandemic. These factors could result in parents not having access to certain forms of support or not receiving long\u2010term support.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Improving grief literacy may strengthen informal support and make discussions of grief and death less taboo. Institutional policies, training, and networking may help to ensure that support provided by healthcare professionals, institutions, and organizations is less vulnerable to inconsistencies.<\/jats:p><\/jats:sec>","DOI":"10.1002\/pbc.31426","type":"journal-article","created":{"date-parts":[[2024,11,6]],"date-time":"2024-11-06T10:29:36Z","timestamp":1730888976000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["Support Experiences and Wishes of Bereaved Parents After the Loss of Their Child to Cancer"],"prefix":"10.1002","volume":"72","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7307-2502","authenticated-orcid":false,"given":"Anna Katharina","family":"Vokinger","sequence":"first","affiliation":[{"name":"Faculty of Health Sciences and Medicine University of Lucerne  Lucerne Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eddy Carolina","family":"Pedraza","sequence":"additional","affiliation":[{"name":"Faculty of Health Sciences and Medicine University of Lucerne  Lucerne Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eva Maria","family":"Tinner","sequence":"additional","affiliation":[{"name":"Inselspital University Children's Hospital Bern  Bern Switzerland"},{"name":"Paediatric Palliative Care University Children's Hospital Zurich  Zurich Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4197-6264","authenticated-orcid":false,"given":"Andr\u00e9 Oscar","family":"von Bueren","sequence":"additional","affiliation":[{"name":"Division of Pediatric Hematology and Oncology, Department of Pediatrics, Obstetrics and Gynecology University Hospital of Geneva  Geneva Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katrin","family":"Scheinemann","sequence":"additional","affiliation":[{"name":"Faculty of Health Sciences and Medicine University of Lucerne  Lucerne Switzerland"},{"name":"Division of Hematology\u2010Oncology Children's Hospital of Eastern Switzerland  St Gallen Switzerland"},{"name":"Department of Pediatrics McMaster Children's Hospital and McMaster University  Hamilton Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eva","family":"Bergstraesser","sequence":"additional","affiliation":[{"name":"Paediatric Palliative Care University Children's Hospital Zurich  Zurich Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9589-0928","authenticated-orcid":false,"given":"Gisela","family":"Michel","sequence":"additional","affiliation":[{"name":"Faculty of Health Sciences and Medicine University of Lucerne  Lucerne Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eva","family":"De Clercq","sequence":"additional","affiliation":[{"name":"Faculty of Health Sciences and Medicine University of Lucerne  Lucerne Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,11,6]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.2190\/x565\u2010hw49\u2010chr0\u2010fyb4"},{"key":"e_1_2_13_3_1","doi-asserted-by":"publisher","DOI":"10.3109\/00048679809062734"},{"key":"e_1_2_13_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.23386"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2013\u20101194"},{"key":"e_1_2_13_6_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2007.14.6738"},{"key":"e_1_2_13_7_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMoa033160"},{"key":"e_1_2_13_8_1","doi-asserted-by":"publisher","DOI":"10.1017\/s0033291704002740"},{"key":"e_1_2_13_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2011.10.017"},{"key":"e_1_2_13_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/082585979401000106"},{"key":"e_1_2_13_11_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10826\u2010015\u20100219\u20102"},{"key":"e_1_2_13_12_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.30561"},{"key":"e_1_2_13_13_1","doi-asserted-by":"publisher","DOI":"10.3390\/cancers14081972"},{"key":"e_1_2_13_14_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.25675"},{"key":"e_1_2_13_15_1","doi-asserted-by":"publisher","DOI":"10.1080\/0284186X.2019.1686535"},{"key":"e_1_2_13_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2005.03.005"},{"key":"e_1_2_13_17_1","doi-asserted-by":"publisher","DOI":"10.1002\/cam4.4696"},{"key":"e_1_2_13_18_1","doi-asserted-by":"publisher","DOI":"10.1080\/07481187.2022.2142325"},{"key":"e_1_2_13_19_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2021.750838"},{"key":"e_1_2_13_20_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951517000451"},{"key":"e_1_2_13_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejcped.2023.100125"},{"key":"e_1_2_13_22_1","unstructured":"A. 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