{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,11]],"date-time":"2026-04-11T00:48:58Z","timestamp":1775868538220,"version":"3.50.1"},"reference-count":24,"publisher":"Wiley","issue":"7","license":[{"start":{"date-parts":[[2025,5,5]],"date-time":"2025-05-05T00:00:00Z","timestamp":1746403200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2025,5,5]],"date-time":"2025-05-05T00:00:00Z","timestamp":1746403200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Blood &amp;amp; Cancer"],"published-print":{"date-parts":[[2025,7]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Literacy promotion is central to child development, particularly for children with sickle cell disease (SCD) given patterns of neurocognitive involvement. Book ownership programs offer a unique strategy within pediatric healthcare. This study aimed to evaluate the implementation of a literacy promotion program within an outpatient pediatric subspecialty clinic.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Procedure<\/jats:title>\n                    <jats:p>The Sickle Cell Story Club (SCSC) distributed books from March 2021 to December 2023 in an outpatient comprehensive SCD clinic. Families completed home literacy and feedback surveys when receiving a book. Books were provided regardless of data completion and could be refused at any time.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>A total of 1711 books were distributed to 386 patients (0\u201322 years), with an average of four books per patient (range\u00a0=\u00a01\u201312 books). Most books were given by psychosocial team members (94.87%). Caregivers of young children (0\u20135 years) read more (68.8%) as a result of the SCSC, and all found the program to be useful for reading development. Caregivers of school\u2010aged children (6\u201312 years) observed a positive impact of the SCSC on their child's reading confidence (86.8%). Caregivers of school children and adolescents (13+ years) agreed that the SCSC increased the frequency of reading behaviors as well as enjoyment toward reading. Nearly all families were likely to recommend the SCSC (90.1%).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Given the neurocognitive impact and known disparities in educational resources, patients with SCD are at a unique risk for differences in learning. Literacy promotion is imperative to child development and a chronic disease subspecialty clinic offers a unique opportunity to address this domain.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/pbc.31755","type":"journal-article","created":{"date-parts":[[2025,5,6]],"date-time":"2025-05-06T00:30:21Z","timestamp":1746491421000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Sickle Cell Story Club: Implementation of a Clinic\u2010Based Literacy Promotion Program"],"prefix":"10.1002","volume":"72","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7739-7278","authenticated-orcid":false,"given":"Julia E.","family":"LaMotte","sequence":"first","affiliation":[{"name":"Indiana University School of Medicine  Indianapolis Indiana USA"},{"name":"Division of Pediatric Hematology Oncology and Stem Cell Transplant Riley Hospital for Children  Indianapolis Indiana USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jillian R.","family":"Bouck","sequence":"additional","affiliation":[{"name":"Indiana University School of Medicine  Indianapolis Indiana USA"},{"name":"Division of Children's Health Services Research  Indianapolis Indiana USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kristen","family":"Pogue","sequence":"additional","affiliation":[{"name":"Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lauren","family":"Fancher","sequence":"additional","affiliation":[{"name":"Indiana University \u2010 Indianapolis  Indianapolis Indiana USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Olivia","family":"Coughlin","sequence":"additional","affiliation":[{"name":"Indiana University School of Medicine  Indianapolis Indiana USA"},{"name":"Division of Children's Health Services Research  Indianapolis Indiana USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2906-6102","authenticated-orcid":false,"given":"Seethal A.","family":"Jacob","sequence":"additional","affiliation":[{"name":"Indiana University School of Medicine  Indianapolis Indiana USA"},{"name":"Division of Pediatric Hematology Oncology and Stem Cell Transplant Riley Hospital for Children  Indianapolis Indiana USA"},{"name":"Division of Children's Health Services Research  Indianapolis Indiana USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,5,5]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.3949\/ccjm.87a.18051"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.29531"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1097\/MPH.0000000000002091"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1067\/mpd.2001.116935"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsae029"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/088307380201700204"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.25838"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.3389\/fped.2024.1401739"},{"key":"e_1_2_8_10_1","volume-title":"Topic Paper","author":"Shulman K.","year":"2023"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1525\u20101497.2004.40153.x"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2017.08.037"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2019\u20101958"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1097\/MOP.0b013e32833a4673"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2020\u2010027581"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1177\/0009922818822975"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.31422"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1001\/archpedi.153.1.27"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1001\/archpedi.152.5.459"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.1097\/mph.0000000000001067"},{"key":"e_1_2_8_21_1","doi-asserted-by":"publisher","DOI":"10.3109\/03630269.2014.919941"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2024\u2010069090"},{"key":"e_1_2_8_23_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2020\u2010034876"},{"issue":"3","key":"e_1_2_8_24_1","first-page":"113","article-title":"Depression, Anxiety, and Quality of Life in Children and Adolescents With Sickle Cell Disease","volume":"42","author":"Graves J. 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