{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,22]],"date-time":"2025-10-22T02:55:42Z","timestamp":1761101742753},"reference-count":22,"publisher":"Wiley","issue":"10","license":[{"start":{"date-parts":[[2005,8,25]],"date-time":"2005-08-25T00:00:00Z","timestamp":1124928000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Prenatal Diagnosis"],"published-print":{"date-parts":[[2005,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objectives<\/jats:title><jats:p>We conducted population specific confidential enquiries among immigrants who had never experienced hemoglobinopathies, to study the reliability of this approach in estimating the wish for primary prevention by prenatal diagnosis and selective abortion.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>We collected data from Surinamese Hindustanis (<jats:italic>n<\/jats:italic> = 119), Surinamese and Antillean Afro\u2010Americans (<jats:italic>n<\/jats:italic> = 105) and North Africans (mainly Moroccans) (<jats:italic>n<\/jats:italic> = 102), living in Holland. We also interviewed 105 informed individuals of different ethnicities, all members of the multi\u2010ethnic patients and carriers' organization \u2018OSCAR Nederland\u2019.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>On average, 68% of the Surinamese Hindustanis and 42% of the Surinamese Afro\u2010Americans were in favor of selective abortion in case of affected pregnancy. Remarkably, 77% of the last group wanted to be tested for carrier diagnostics and 67% declared to have knowledge of the disease before they were informed. Only 16% of the Moroccans were in favor of selective abortion in case of an affected fetus, while 79% wanted to have blood analysis to establish their carrier status.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The apparently limited wish for selective abortion expressed by Moroccans is in contrast with the high number of illegal abortions reported among married women in Morocco (39%). The wish for selective abortion among informed members of the patients' organization was more than 80%. Copyright \u00a9 2005 John Wiley &amp; Sons, Ltd.<\/jats:p><\/jats:sec>","DOI":"10.1002\/pd.1206","type":"journal-article","created":{"date-parts":[[2005,8,25]],"date-time":"2005-08-25T17:46:56Z","timestamp":1124992016000},"page":"885-893","source":"Crossref","is-referenced-by-count":17,"title":["Estimating the attitude of immigrants toward primary prevention of the hemoglobinopathies"],"prefix":"10.1002","volume":"25","author":[{"given":"Piero C.","family":"Giordano","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ashwin A.","family":"Dihal","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cornelis L.","family":"Harteveld","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2005,8,25]]},"reference":[{"key":"e_1_2_1_2_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMsa013234"},{"issue":"3","key":"e_1_2_1_3_1","first-page":"225","article-title":"Therapeutic abortion. Critical study of 22 cases","volume":"26","author":"Alami MH","year":"1998","journal-title":"Contracept Fertil Sex"},{"key":"e_1_2_1_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(97)00189-5"},{"key":"e_1_2_1_5_1","volume-title":"Berbers","author":"Brett M","year":"1997"},{"key":"e_1_2_1_6_1","unstructured":"CBS.2003.Centraal Bureau voor de Statistiek. (http:\/\/www.cbs.nl\/)."},{"issue":"13","key":"e_1_2_1_7_1","first-page":"611","article-title":"Screening for carriers of the fragile X syndrome; ethical exploration","volume":"146","author":"De Jong A","year":"2002","journal-title":"Ned Tijdschr Geneeskd"},{"key":"e_1_2_1_8_1","first-page":"457","article-title":"De standaard \u2018Anemie in de eerstelijns verloskundige praktijk\u2019 van de Koninklijke Nederlandse Organisatie van Verloskundigen (KNOV): risico voor het niet onderkennen van ijzergebrek en hemoglobinopathie","volume":"146","author":"Elion\u2010Gerritsen WE","year":"2002","journal-title":"Ned Tijdschr Geneeskd"},{"key":"e_1_2_1_9_1","first-page":"290","article-title":"Hemoglobinopathie\u00ebn in Nederland: de rol van de huisarts in dragerschapsdiagnostiek en preventie","volume":"6","author":"Giordano PC","year":"1998","journal-title":"Huisarts Wet"},{"issue":"40","key":"e_1_2_1_10_1","first-page":"1910","article-title":"Van gen naar ziekte; van hemoglobinegenen naar thalassemie en sikkelcelanemie","volume":"144","author":"Giordano PC","year":"2000","journal-title":"Ned Tijdschr Geneeskd"},{"key":"e_1_2_1_11_1","doi-asserted-by":"publisher","DOI":"10.1081\/HEM-200037735"},{"key":"e_1_2_1_12_1","doi-asserted-by":"publisher","DOI":"10.3109\/08880019609030807"},{"key":"e_1_2_1_13_1","doi-asserted-by":"crossref","DOI":"10.1007\/978-1-137-03982-8","volume-title":"History of the Arabs","author":"Hitti PK","year":"2002"},{"key":"e_1_2_1_14_1","doi-asserted-by":"publisher","DOI":"10.1159\/000041066"},{"key":"e_1_2_1_15_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.320.7231.337"},{"key":"e_1_2_1_16_1","first-page":"14","article-title":"Traditional methods still widely used","volume":"1","author":"Naamane\u2010Guessous S","year":"1993","journal-title":"Plan Parent Chall"},{"issue":"7301","key":"e_1_2_1_17_1","first-page":"1507","article-title":"Dutch ship fails to offer Irish women abortions","author":"Payne D","year":"2001","journal-title":"BMJ"},{"issue":"18","key":"e_1_2_1_18_1","first-page":"1019","article-title":"Genetic carrier screening for hemoglobinopathies in the Netherlands is not opportune","volume":"142","author":"Schulpen TW","year":"1998","journal-title":"Ned Tijdschr Geneeskd"},{"issue":"6","key":"e_1_2_1_19_1","first-page":"263","article-title":"Abortions among Amsterdam teenagers according to ethnicity, 1996\u20131998","volume":"146","author":"Stuart MA","year":"2002","journal-title":"Ned Tijdschr Geneeskd"},{"key":"e_1_2_1_20_1","volume-title":"Genetic Disorders Among Arab Populations","author":"Teebi AS","year":"1997"},{"key":"e_1_2_1_21_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1097-0223(199603)16:3<252::AID-PD839>3.0.CO;2-W"},{"key":"e_1_2_1_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/9780470696705"},{"key":"e_1_2_1_23_1","first-page":"3","article-title":"NHG Standaard Anemie","volume":"46","author":"Van Wijk MAM","year":"2003","journal-title":"Huisarts Wet"}],"container-title":["Prenatal Diagnosis"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fpd.1206","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/obgyn.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/pd.1206","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,11,17]],"date-time":"2023-11-17T02:54:17Z","timestamp":1700189657000},"score":1,"resource":{"primary":{"URL":"https:\/\/obgyn.onlinelibrary.wiley.com\/doi\/10.1002\/pd.1206"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2005,8,25]]},"references-count":22,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2005,10]]}},"alternative-id":["10.1002\/pd.1206"],"URL":"https:\/\/doi.org\/10.1002\/pd.1206","archive":["Portico"],"relation":{},"ISSN":["0197-3851","1097-0223"],"issn-type":[{"value":"0197-3851","type":"print"},{"value":"1097-0223","type":"electronic"}],"subject":[],"published":{"date-parts":[[2005,8,25]]}}}