{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,12]],"date-time":"2026-10-12T17:59:32Z","timestamp":1791827972522,"version":"4.3.4"},"reference-count":18,"publisher":"Wiley","issue":"11","license":[{"start":{"date-parts":[[2007,8,30]],"date-time":"2007-08-30T00:00:00Z","timestamp":1188432000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Prenatal Diagnosis"],"published-print":{"date-parts":[[2007,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>To determine the attitudes of pediatric residents and nurses towards fetal\/neonatal management of hypoplastic left heart syndrome (HLHS), and their basis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Pediatric residents and nurses from three cardiac centers completed a survey with hypothetical scenarios in which their own fetuses or newborns had HLHS. While Institution A performs many HLHS surgeries, Institution C performs very few.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A total of 43% of residents and 50% of nurses would terminate an affected pregnancy. More experience (4 to 7 years, <jats:italic>p<\/jats:italic> = 0.04; &gt;7 years, <jats:italic>p<\/jats:italic> = 0.05) and employment at institution C (<jats:italic>p<\/jats:italic> = 0.04) predicted termination. Expected better quality of life (QOL) (<jats:italic>p<\/jats:italic> = 0.02) and five\u2010year survival &gt;50% (<jats:italic>p<\/jats:italic> = 0.06) predicted not terminating. Postnatally, 48% of residents and 68% of nurses would choose, or seriously consider, comfort care. Marriage (<jats:italic>p<\/jats:italic> = 0.04) and more experience (4 to 7 years, <jats:italic>p<\/jats:italic> = 0.04; &gt;7 years, <jats:italic>p<\/jats:italic> = 0.02) predicted choosing comfort care. Asian\/Pacific Islander descent (<jats:italic>p<\/jats:italic> = 0.01) and expected 5\u2010year survival &gt;50% (<jats:italic>p<\/jats:italic> = 0.02) predicted choosing surgery.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Approximately one\u2010half of the pediatric residents and nurses surveyed would choose termination of pregnancy or seriously consider declining neonatal surgery, if their own fetus or infant had HLHS. These attitudes reflect perceptions of long\u2010term QOL and survival. These attitudes may be of interest to caregivers who care for HLHS patients. Copyright \u00a9 2007 John Wiley &amp; Sons, Ltd.<\/jats:p><\/jats:sec>","DOI":"10.1002\/pd.1835","type":"journal-article","created":{"date-parts":[[2007,8,30]],"date-time":"2007-08-30T09:46:48Z","timestamp":1188467208000},"page":"1045-1055","source":"Crossref","is-referenced-by-count":15,"title":["Hypoplastic left heart syndrome: attitudes among pediatric residents and nurses towards fetal and neonatal management"],"prefix":"10.1002","volume":"27","author":[{"given":"P.","family":"Renella","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"R.\u2010K. R.","family":"Chang","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"D. A.","family":"Ferry","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"R. D.","family":"Bart","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M. S.","family":"Sklansky","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2007,8,30]]},"reference":[{"key":"e_1_2_1_2_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951104006353"},{"key":"e_1_2_1_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1651-2227.2005.tb02069.x"},{"key":"e_1_2_1_4_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.110.2.292"},{"key":"e_1_2_1_5_1","first-page":"195","article-title":"Hypoplastic left heart syndrome: Factors influencing therapeutic choice","volume":"65","author":"Corrow C","year":"2001","journal-title":"Conn Med"},{"key":"e_1_2_1_6_1","first-page":"1015","volume-title":"Moss and Adams: Heart Disease in Infants, Children, and Adolescents","author":"Freedom RM","year":"2001"},{"key":"e_1_2_1_7_1","doi-asserted-by":"publisher","DOI":"10.1067\/mtc.2002.119337"},{"key":"e_1_2_1_8_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951104006407"},{"key":"e_1_2_1_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0002-9149(03)00412-0"},{"key":"e_1_2_1_10_1","doi-asserted-by":"publisher","DOI":"10.1001\/archpedi.158.5.436"},{"key":"e_1_2_1_11_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-005-0908-5"},{"key":"e_1_2_1_12_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.pcsu.2004.02.019"},{"key":"e_1_2_1_13_1","doi-asserted-by":"publisher","DOI":"10.1161\/01.CIR.102.suppl_3.III-136"},{"key":"e_1_2_1_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jtcvs.2005.08.047"},{"key":"e_1_2_1_15_1","doi-asserted-by":"crossref","first-page":"189","DOI":"10.1016\/S0022-5223(19)34852-4","article-title":"Current approach to hypoplastic left heart syndrome. Palliation, transplantation, or both?","volume":"104","author":"Starnes VA","year":"1992","journal-title":"J Thorac Cardiovasc Surg"},{"key":"e_1_2_1_16_1","doi-asserted-by":"crossref","first-page":"509","DOI":"10.1017\/S1047951103001094","article-title":"Results of staged reconstruction for hypoplasia of the left heart: an experience of 12 years from one institution","volume":"13","author":"Theis WR","year":"2003","journal-title":"Cardiol Young"},{"key":"e_1_2_1_17_1","volume-title":"The Registered Nurse Population: National Sample Survey of Registered Nurses","author":"U.S. Department of Health and Human Services","year":"2004"},{"key":"e_1_2_1_18_1","doi-asserted-by":"publisher","DOI":"10.1080\/713794571"},{"key":"e_1_2_1_19_1","doi-asserted-by":"crossref","first-page":"127","DOI":"10.1017\/S1047951104006444","article-title":"Long\u2010term follow\u2010up after staged reconstruction or transplantation for patients with functionally univentricular heart","volume":"14","author":"Wernovsky G","year":"2004","journal-title":"Cardiol Young"}],"container-title":["Prenatal Diagnosis"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fpd.1835","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/obgyn.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/pd.1835","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,11,15]],"date-time":"2023-11-15T00:35:48Z","timestamp":1700008548000},"score":1,"resource":{"primary":{"URL":"https:\/\/obgyn.onlinelibrary.wiley.com\/doi\/10.1002\/pd.1835"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2007,8,30]]},"references-count":18,"journal-issue":{"issue":"11","published-print":{"date-parts":[[2007,11]]}},"alternative-id":["10.1002\/pd.1835"],"URL":"https:\/\/doi.org\/10.1002\/pd.1835","archive":["Portico"],"relation":{},"ISSN":["0197-3851","1097-0223"],"issn-type":[{"value":"0197-3851","type":"print"},{"value":"1097-0223","type":"electronic"}],"subject":[],"published":{"date-parts":[[2007,8,30]]}}}