{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,20]],"date-time":"2026-01-20T01:51:26Z","timestamp":1768873886280,"version":"3.49.0"},"reference-count":18,"publisher":"Wiley","issue":"11","license":[{"start":{"date-parts":[[2013,8,29]],"date-time":"2013-08-29T00:00:00Z","timestamp":1377734400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Prenatal Diagnosis"],"published-print":{"date-parts":[[2013,11]]},"abstract":"<jats:title>ABSTRACT<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>We aimed to measure whether website\u2010provided information about congenital diaphragmatic hernia (CDH) and fetal therapy for severe cases provides added value compared with clinical counseling of parents.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>This is a single center study in 102 couples who earlier opted for fetoscopic endoluminal tracheal occlusion (FETO) because of isolated severe CDH. They were asked to fill out an anonymized web\u2010based survey of 12 questions. Then, they were offered access to information on the web pages of the randomized Tracheal Occlusion to Accelerate Lung Growth (TOTAL) trial. One week later, their appreciation was measured again by a second questionnaire.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Eighty\u2010two (80%) parents completed the first questionnaire, and 48 (47%) completed the entire survey. Several items became more clear to the parents after reading the website, such as the length of hospital stay (23.2% prior to web information, 60.4% after; <jats:italic>P<\/jats:italic>\u2009=\u20090.004), maternal risk, or the requirement of fetal anesthesia for FETO (43.9% resp. 79.2%; <jats:italic>P<\/jats:italic>\u2009=\u2009&lt;0.001).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Complementing prenatal counseling on CDH and FETO by standardized information via website is perceived by parents as of added value. Maternal risks and the need for fetal medication need more clarification during the verbal counseling prior to prenatal interventions. \u00a9 2013 John Wiley &amp; Sons, Ltd.<\/jats:p><\/jats:sec>","DOI":"10.1002\/pd.4190","type":"journal-article","created":{"date-parts":[[2013,6,27]],"date-time":"2013-06-27T23:18:41Z","timestamp":1372375121000},"page":"1027-1032","source":"Crossref","is-referenced-by-count":13,"title":["Does website\u2010based information add any value in counseling mothers expecting a baby with severe congenital diaphragmatic hernia?"],"prefix":"10.1002","volume":"33","author":[{"given":"Alexander C.","family":"Engels","sequence":"first","affiliation":[{"name":"Centre for Surgical Technologies, Faculty of Medicine Katholieke Universiteit Leuven  B\u20103000 Leuven Belgium"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Philip","family":"DeKoninck","sequence":"additional","affiliation":[{"name":"Centre for Surgical Technologies, Faculty of Medicine Katholieke Universiteit Leuven  B\u20103000 Leuven Belgium"},{"name":"Department of Obstetrics and Gynaecology, Division Woman and Child, Fetal Medicine Unit University Hospitals  B\u20103000 Leuven Belgium"},{"name":"Department of Development and Regeneration, Research Unit Fetus Placenta and Neonate, Faculty of Medicine Katholieke Universiteit Leuven  B\u20103000 Leuven Belgium"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Johannes L.","family":"van der Merwe","sequence":"additional","affiliation":[{"name":"Department of Obstetrics and Gynaecology Stellenbosch University and Tygerberg Hospital  Cape Town South Africa"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tim","family":"Van Mieghem","sequence":"additional","affiliation":[{"name":"Centre for Surgical Technologies, Faculty of Medicine Katholieke Universiteit Leuven  B\u20103000 Leuven Belgium"},{"name":"Department of Obstetrics and Gynaecology, Division Woman and Child, Fetal Medicine Unit University Hospitals  B\u20103000 Leuven Belgium"},{"name":"Department of Development and Regeneration, Research Unit Fetus Placenta and Neonate, Faculty of Medicine Katholieke Universiteit Leuven  B\u20103000 Leuven Belgium"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Petra","family":"Stevens","sequence":"additional","affiliation":[{"name":"Department of Development and Regeneration, Research Unit Fetus Placenta and Neonate, Faculty of Medicine Katholieke Universiteit Leuven  B\u20103000 Leuven Belgium"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Beverley","family":"Power","sequence":"additional","affiliation":[{"name":"CDH\u2010UK  The Denes Norfolk UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kypros H.","family":"Nicolaides","sequence":"additional","affiliation":[{"name":"Harris Birthright Research Center King's College Hospital  London UK"},{"name":"Department of Fetal Medicine University College Hospital London  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Eduard","family":"Gratacos","sequence":"additional","affiliation":[{"name":"Department of Maternal\u2013Fetal Medicine, ICGON, Hospital Clinic\u2010IDIBAPS University of Barcelona  Barcelona Spain"},{"name":"Centre for Biomedical Research on Rare Diseases (CIBER\u2010ER)  Barcelona Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jan A.","family":"Deprest","sequence":"additional","affiliation":[{"name":"Centre for Surgical Technologies, Faculty of Medicine Katholieke Universiteit Leuven  B\u20103000 Leuven Belgium"},{"name":"Department of Obstetrics and Gynaecology, Division Woman and Child, Fetal Medicine Unit University Hospitals  B\u20103000 Leuven Belgium"},{"name":"Department of Development and Regeneration, Research Unit Fetus Placenta and Neonate, Faculty of Medicine Katholieke Universiteit Leuven  B\u20103000 Leuven 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