{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,19]],"date-time":"2026-07-19T03:11:19Z","timestamp":1784430679224,"version":"3.55.0"},"reference-count":29,"publisher":"Wiley","issue":"13","license":[{"start":{"date-parts":[[2019,11,4]],"date-time":"2019-11-04T00:00:00Z","timestamp":1572825600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000664","name":"Health Technology Assessment Programme","doi-asserted-by":"publisher","award":["14\/168\/02"],"award-info":[{"award-number":["14\/168\/02"]}],"id":[{"id":"10.13039\/501100000664","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["obgyn.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Prenatal Diagnosis"],"published-print":{"date-parts":[[2019,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Consent rates for postmortem (PM) examination in the perinatal and paediatric setting have dropped significantly in the United Kingdom, the United States, and the Western Europe. We explored the factors that act as facilitators or barriers to consent and identified processes and practices that support parental decision\u2010making.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A qualitative study conducted with bereaved parents, parent advocates, and health care professionals in the United Kingdom.  Analysis was conducted on 439 free\u2010tect comments within a cross\u2010sectional survey, interviews with a subset of 20 survey respondents and 25 health professionals, and a focus group with five parent advocates.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Three broad parental decision\u2010making groups were identified: 1, \u201cNot open to postmortem examination\u201d; 2, \u201cConsent regardless of concerns\u201d; and 3, \u201cInitially undecided.\u201d Decisional drivers that were particularly important for this \u201cundecided\u201d group were \u201cthe initial approach,\u201d \u201cadjustment and deliberation,\u201d \u201cdetailed discussion about the procedure,\u201d and \u201cformal consent.\u201d The way in which these were managed by health care staff significantly impacted whether those parents' consented to PM, particularly for those who are ambivalent about the procedure.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>We propose a set of recommendations to improve the way PM counselling and consent is managed. Adopting such measures is likely to lead to improved family experience and more consistent and high\u2010quality discussion regarding PM.<\/jats:p><\/jats:sec>","DOI":"10.1002\/pd.5575","type":"journal-article","created":{"date-parts":[[2019,11,4]],"date-time":"2019-11-04T10:40:12Z","timestamp":1572864012000},"page":"1242-1253","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":11,"title":["\u201cThe communication and support from the health professional is incredibly important\u201d: A qualitative study exploring the processes and practices that support parental decision\u2010making about postmortem examination"],"prefix":"10.1002","volume":"39","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7169-1521","authenticated-orcid":false,"given":"Celine","family":"Lewis","sequence":"first","affiliation":[{"name":"North East Thames Regional Genetics Service Great Ormond Street Hospital for Children NHS Foundation Trust  London UK"},{"name":"Genetics and Genomic Medicine The UCL Great Ormond Street Institute of Child Health  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Megan","family":"Riddington","sequence":"additional","affiliation":[{"name":"Department of Psychological Services Great Ormond Street Hospital for Children NHS Foundation Trust  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3900-1425","authenticated-orcid":false,"given":"Melissa","family":"Hill","sequence":"additional","affiliation":[{"name":"North East Thames Regional Genetics Service Great Ormond Street Hospital for Children NHS Foundation Trust  London UK"},{"name":"Genetics and Genomic Medicine The UCL Great Ormond Street Institute of Child Health  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Charlotte","family":"Bevan","sequence":"additional","affiliation":[{"name":"Stillbirth and neonatal death charity (Sands)  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jane","family":"Fisher","sequence":"additional","affiliation":[{"name":"Antenatal Results and Choices (ARC)  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lucy","family":"Lyas","sequence":"additional","affiliation":[{"name":"The Lullaby Trust  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ann","family":"Chalmers","sequence":"additional","affiliation":[{"name":"Child Bereavement UK  Cheshire UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Owen J.","family":"Arthurs","sequence":"additional","affiliation":[{"name":"Department of Radiology Great Ormond Street Hospital for Children NHS Foundation Trust  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John C.","family":"Hutchinson","sequence":"additional","affiliation":[{"name":"Department of Histopathology Great Ormond Street Hospital for Children NHS Foundation Trust  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4857-7138","authenticated-orcid":false,"given":"Lyn S.","family":"Chitty","sequence":"additional","affiliation":[{"name":"North East Thames Regional Genetics Service Great Ormond Street Hospital for Children NHS Foundation Trust  London UK"},{"name":"Genetics and Genomic Medicine The UCL Great Ormond Street Institute of Child Health  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Neil","family":"Sebire","sequence":"additional","affiliation":[{"name":"Department of Histopathology Great Ormond Street Hospital for Children NHS Foundation Trust  London UK"},{"name":"Development Biology and Cancer Programme The UCL Great Ormond Street Institute of Child Health  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2019,11,4]]},"reference":[{"key":"e_1_2_15_2_1","unstructured":"Office for National Statistics.Childhood Infant and Perinatal Mortality in England and Wales 2012. Office for National Statistics;2015."},{"key":"e_1_2_15_3_1","volume-title":"Unexplained Deaths in Infancy, England and Wales: 2013","author":"Office for National Statistics","year":"2015"},{"key":"e_1_2_15_4_1","volume-title":"Termination of Pregnancy for Fetal Abnormality in England, Scotland and Wales: Report of a Working Party","author":"Royal College of Obstetricians and Gynaecologists","year":"2010"},{"key":"e_1_2_15_5_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10024-002-0008-y"},{"key":"e_1_2_15_6_1","volume-title":"MBRRACE\u2010UK Perinatal Mortality Surveillance Report: UK Perinatal Deaths for Births from January to December 2014","author":"Manktelow BN","year":"2016"},{"key":"e_1_2_15_7_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMp0707996"},{"issue":"6","key":"e_1_2_15_8_1","first-page":"403","article-title":"Declining autopsy rates in stillbirths and infant deaths: results from Funen County, Denmark, 1986\u201096","volume":"13","author":"Kock 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