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After diagnosis <jats:italic>access to care<\/jats:italic> should occur by swift referral to a specialised centre to prevent parents receiving contradictory information. <jats:italic>Information and education<\/jats:italic> help parents to gain some sense of control and cope with the many uncertainties. A multidisciplinary team with a coordinating professional is perceived supportive (<jats:italic>coordination and integration<\/jats:italic>), and seamless referral between local and treatment centres reduces parental distress <jats:italic>(continuity and transition)<\/jats:italic>. <jats:italic>Family\u2010centred emotional support<\/jats:italic> helps parents to cope with emotions and distress. Informal support by <jats:italic>involvement of family and friends<\/jats:italic> and trusted peer\u2010support is of added value.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The impact of the uncertainty of outcome in this condition is tremendous and needs to be considered when providing prenatal care. After initial diagnosis, one should avoid speculation about the severity of the condition and outcome, and provide swift referral to a specialist centre expert in managing CDH. Provision of realistic and comprehensive information helps parents cope. Multidisciplinary and continuous support throughout the full trajectory, but also integrated psychosocial support should become standard\u2010of\u2010care.<\/jats:p><\/jats:sec>","DOI":"10.1002\/pd.6118","type":"journal-article","created":{"date-parts":[[2022,2,20]],"date-time":"2022-02-20T17:00:55Z","timestamp":1645376455000},"page":"387-397","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":22,"title":["Prenatal diagnosis of congenital diaphragmatic hernia: Parental counselling and support needs"],"prefix":"10.1002","volume":"42","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6808-0874","authenticated-orcid":false,"given":"Neeltje","family":"Crombag","sequence":"first","affiliation":[{"name":"Department of Development and Regeneration Cluster Woman and Child Biomedical Sciences KU Leuven  Leuven Belgium"},{"name":"Elizabeth Garrett Anderson Institute of Women's Health University College London  London 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