{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,25]],"date-time":"2026-02-25T16:51:07Z","timestamp":1772038267961,"version":"3.50.1"},"reference-count":43,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2024,1,2]],"date-time":"2024-01-02T00:00:00Z","timestamp":1704153600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100019032","name":"Regionala Forskningsr\u00e5det Uppsala\/\u00d6rebro","doi-asserted-by":"publisher","award":["RFR\u2010844621"],"award-info":[{"award-number":["RFR\u2010844621"]}],"id":[{"id":"10.13039\/100019032","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["obgyn.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Prenatal Diagnosis"],"published-print":{"date-parts":[[2024,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>To study pregnant women's subjective viewpoints on what is important when receiving information prior to decision\u2010making regarding prenatal testing for chromosomal anomalies.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>Data were collected using Q methodology. During January 2020\u2014October 2021, 45 pregnant women in Sweden completed a 50\u2010item Q sort. Statements regarding what is important when receiving information about prenatal screening and diagnosis were prioritized through ranking in a fixed sorting grid on an 11\u2010point scale, from \u201cmost important\u201d to \u201cleast important.\u201d Socio\u2010demographics and coping styles were surveyed through questionnaires.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Three groups represented different viewpoints on what pregnant women consider important when receiving information about prenatal screening and diagnosis. Factor 1: <jats:italic>Stepwise information and decision\u2010making<\/jats:italic>: viewing information and decision\u2010making as a step\u2010by\u2010step process. Factor 2: <jats:italic>Decision\u2010making as a continuous process based on couple autonomy<\/jats:italic>: Striving for an informed decision as a couple about tests, test results and conditions screened. Factor 3: <jats:italic>As much information as early as possible\u2014the importance of personal autonomy in decision\u2010making:<\/jats:italic> Prioritizing autonomous decision\u2010making based on non\u2010directive information early in the pregnancy.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>This study highlights the complexities involved when providing information. As shown by the differing viewpoints in this study, pregnant women's informational needs differ, making individual and personalized information preferable.<\/jats:p><\/jats:sec>","DOI":"10.1002\/pd.6514","type":"journal-article","created":{"date-parts":[[2024,1,3]],"date-time":"2024-01-03T06:23:26Z","timestamp":1704263006000},"page":"480-491","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Pregnant women's informational needs prior to decisions about prenatal diagnosis for chromosomal anomalies\u2014A Q\u00a0methodological study"],"prefix":"10.1002","volume":"44","author":[{"ORCID":"https:\/\/orcid.org\/0009-0003-3702-8533","authenticated-orcid":false,"given":"Ellen","family":"Ternby","sequence":"first","affiliation":[{"name":"Department of Women's and Children's Health Uppsala University  Uppsala Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ove","family":"Axelsson","sequence":"additional","affiliation":[{"name":"Department of Women's and Children's Health Uppsala University  Uppsala Sweden"},{"name":"Centre for Clinical Research S\u00f6rmland Uppsala University  Eskilstuna Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Susanne","family":"Georgsson","sequence":"additional","affiliation":[{"name":"The Swedish Red Cross University  Stockholm Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Charlotta Ingvoldstad","family":"Malmgren","sequence":"additional","affiliation":[{"name":"Department of Clinical Genetics Karolinska University Hospital  Stockholm Sweden"},{"name":"Centre for Fetal Medicine Karolinska University Hospital  Stockholm Sweden"},{"name":"Centre for Research and Bioethics Uppsala University  Uppsala Sweden"},{"name":"Department of Molecular Medicine and Surgery Karolinska Institutet  Stockholm Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2024,1,2]]},"reference":[{"key":"e_1_2_11_2_1","unstructured":"SkogsdalY ConnerP PeterssonK et\u00a0al.Yearly Report of the Swedish Pregnancy Register 2021 (Graviditetsregistrets \u00c5rsrapport 2021);2022.graviditetsregistret.se"},{"key":"e_1_2_11_3_1","unstructured":"Ministry of Health and Social Affairs.The genetic integrity act (2006:351) Vol2006:351.2006. 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