{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,22]],"date-time":"2026-09-22T16:50:19Z","timestamp":1790095819248,"version":"4.0.1"},"reference-count":31,"publisher":"Wiley","issue":"13","license":[{"start":{"date-parts":[[2025,11,5]],"date-time":"2025-11-05T00:00:00Z","timestamp":1762300800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["obgyn.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Prenatal Diagnosis"],"published-print":{"date-parts":[[2025,12]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To describe experiences of expectant mothers in gaining information and knowledge about diagnoses and surgical management, following prenatal diagnosis of a surgically correctable congenital anomaly (SCCA).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>Using semi\u2010structured interviews, we studied women with pregnancies associated with SCCA, including congenital diaphragmatic hernia (CDH), congenital pulmonary airway malformation (CPAM), gastroschisis (GS), omphalocele (OM), and myelomeningocele (MMC), from 2018\u20132023 that resulted in infant live birth and survival until discharge at a tertiary care center. Interviews were coded and analyzed using thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Interviews with 22 participants were included. Diagnoses included CDH (\n                      <jats:italic>n<\/jats:italic>\n                      \u00a0=\u00a08), CPAM (\n                      <jats:italic>n<\/jats:italic>\n                      \u00a0=\u00a04), GS (\n                      <jats:italic>n<\/jats:italic>\n                      \u00a0=\u00a04), OM (\n                      <jats:italic>n<\/jats:italic>\n                      \u00a0=\u00a01), and MMC (\n                      <jats:italic>n<\/jats:italic>\n                      \u00a0=\u00a05). Four thematic categories emerged: (i) prenatal care prior to fetal care center evaluation, (ii) maternal knowledge, (iii) information\u2010gathering, and (iv) social networks. Prenatally, most participants had limited knowledge about SCCA and comfort with completing healthcare\u2010related tasks. Multi\u2010disciplinary fetal care was vital to their understanding of SCCA diagnosis and surgical management plan.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Following prenatal diagnosis of SCCA, expectant mothers struggle with obtaining information that is at their literacy level and specific to their informational needs. Studies are needed to develop literacy\u2010informed approaches to counseling after prenatal diagnosis of SCCA to meet parents' unique informational needs and prepare them for their infants' postnatal care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/pd.70011","type":"journal-article","created":{"date-parts":[[2025,11,6]],"date-time":"2025-11-06T02:01:28Z","timestamp":1762394488000},"page":"1767-1776","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Maternal Health Literacy and Prenatal Learning Experiences Related to Diagnosis and Surgical Management: A Qualitative Study of Women With Pregnancies Associated With Surgically Correctable Congenital Anomalies"],"prefix":"10.1002","volume":"45","author":[{"given":"Adesola C.","family":"Akinkuotu","sequence":"first","affiliation":[{"name":"Department of Surgery University of North Carolina School of Medicine  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1990-2392","authenticated-orcid":false,"given":"Joy E.","family":"Obayemi","sequence":"additional","affiliation":[{"name":"Department of Surgery University of Michigan  Ann Arbor Michigan USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Madelyn","family":"Johnson","sequence":"additional","affiliation":[{"name":"Department of Surgery University of North Carolina School of Medicine  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jordan","family":"Sharpe","sequence":"additional","affiliation":[{"name":"Department of Surgery University of North Carolina School of Medicine  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patricia","family":"Knoepp","sequence":"additional","affiliation":[{"name":"Cecil G. Sheps Center for Health Services Research University of North Carolina School of Medicine  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael R.","family":"Phillips","sequence":"additional","affiliation":[{"name":"Department of Surgery University of North Carolina School of Medicine  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Scott","family":"Elton","sequence":"additional","affiliation":[{"name":"Department of Neurosurgery University of North Carolina School of Medicine  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"William","family":"Goodnight","sequence":"additional","affiliation":[{"name":"Department of Obstetrics and Gynecology University of North Carolina School of Medicine  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sean E.","family":"McLean","sequence":"additional","affiliation":[{"name":"Department of Surgery University of North Carolina School of Medicine  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Darren A.","family":"DeWalt","sequence":"additional","affiliation":[{"name":"Department of Medicine University of North Carolina School of Medicine  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,11,5]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/bdr2.1589"},{"key":"e_1_2_12_3_1","volume-title":"Congenital Birth Defects \u2010 Level 3 Cause"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.sempedsurg.2021.151102"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/bju.13668"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/ijgo.16068"},{"key":"e_1_2_12_7_1","unstructured":"Health Literacy in Healthy People 2030 \u2010 Healthy People 2030 | Odphp.Health.Gov. 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