{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,16]],"date-time":"2026-06-16T08:29:02Z","timestamp":1781598542774,"version":"3.54.5"},"reference-count":41,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2021,12,28]],"date-time":"2021-12-28T00:00:00Z","timestamp":1640649600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100012041","name":"Versus Arthritis","doi-asserted-by":"publisher","award":["20380"],"award-info":[{"award-number":["20380"]}],"id":[{"id":"10.13039\/501100012041","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Paediatric and Neonatal Pain"],"published-print":{"date-parts":[[2022,9]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>The aim of the current study was to examine adolescents' goals when coping with pain and map these goals to the cognitive and emotional profiles of both adolescent and their parent. 17 adolescents (11\u201016\u00a0years) and their parents participated in a cohort study of Juvenile Idiopathic Arthritis (JIA); the adolescents, took part in a two\u2010part interview (about their pain perceptions and about a recent pain experience) and the parents completed an open\u2010ended qualitative survey. The three datasets were analysed following a qualitative framework approach. A coping framework was developed and cognitive and emotional profiles for both adolescent and parent were mapped back to the framework. The overall goal of adolescents was to preserve social identity, by either focusing on <jats:italic>maintaining<\/jats:italic> a \u201cnormal\u201d lifestyle (sub\u2010coping goal one) or <jats:italic>managing<\/jats:italic> the pain (sub\u2010coping goal two). Across these two sub\u2010coping goals, the adolescents held similar cognitive profiles (beliefs about timeline, consequences, control) but different emotional profiles such as feeling fine\/happy compared with feeling angry and frustrated. Conversely, the parents' cognitive and emotional profiles were mapped back to the two groups and found that their beliefs were different across the two sub\u2010coping goals but had similar emotional profiles across the two groups such as worry. Both the adolescents' emotional representations and parental cognitive profiles seem to be related to how the adolescent perceives a pain event, deals with the pain, and the overall coping goal of the adolescent. Findings are suggestive that parental pain beliefs influence the adolescents' pain representations and their coping goals but are also driven by adolescents' emotions. Further work on these potential pathways is needed. Family interventions should be designed, targeting coping goals taking into consideration the importance of emotions for adolescents and parental pain beliefs.<\/jats:p>","DOI":"10.1002\/pne2.12069","type":"journal-article","created":{"date-parts":[[2021,12,28]],"date-time":"2021-12-28T15:50:07Z","timestamp":1640706607000},"page":"96-109","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["<i>\u201cI just want to be normal\u201d<\/i>: A qualitative investigation of adolescents' coping goals when dealing with pain related to arthritis and the underlying parent\u2010adolescent personal models"],"prefix":"10.1002","volume":"4","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0580-0205","authenticated-orcid":false,"given":"Daniela","family":"Ghio","sequence":"first","affiliation":[{"name":"Division of Psychology &amp; Mental Health School of Health Sciences Faculty of Biology, Medicine and Health Manchester Academic Health Science Centre University of Manchester  Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4385-1687","authenticated-orcid":false,"given":"Rachel","family":"Calam","sequence":"additional","affiliation":[{"name":"Division of Psychology &amp; Mental Health School of Health Sciences Faculty of Biology, Medicine and Health Manchester Academic Health Science Centre University of Manchester  Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4559-1647","authenticated-orcid":false,"given":"Rebecca Rachael","family":"Lee","sequence":"additional","affiliation":[{"name":"NIHR Manchester Biomedical Research Centre Manchester Academic Health Science Centre Manchester University NHS Foundation Trust  Manchester UK"},{"name":"Versus Arthritis Centre for Musculoskeletal Research University of Manchester University  Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7675-240X","authenticated-orcid":false,"given":"Lis","family":"Cordingley","sequence":"additional","affiliation":[{"name":"NIHR Manchester Biomedical Research Centre Manchester Academic Health Science Centre Manchester University NHS Foundation Trust  Manchester UK"},{"name":"Versus Arthritis Centre for Musculoskeletal Research University of Manchester University  Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3590-6542","authenticated-orcid":false,"given":"Fiona","family":"Ulph","sequence":"additional","affiliation":[{"name":"Division of Psychology &amp; Mental Health School of Health Sciences Faculty of Biology, Medicine and Health Manchester Academic Health Science Centre University of Manchester  Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"Childhood Arthritis Prospective Study (CAPS)","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,12,28]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.20952"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11926-006-0045-z"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.21695"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pain.2008.07.022"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1037\/a0035216"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pain.2011.09.001"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1097\/00004703-200002000-00011"},{"key":"e_1_2_6_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2011.05.009"},{"key":"e_1_2_6_10_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsp103"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pain.2009.05.009"},{"key":"e_1_2_6_12_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsr043"},{"key":"e_1_2_6_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2009.07.013"},{"key":"e_1_2_6_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pain.2012.04.028"},{"key":"e_1_2_6_15_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870449808407425"},{"key":"e_1_2_6_16_1","volume-title":"Illness representations and coping with health threats","author":"Leventhal H","year":"2020"},{"key":"e_1_2_6_17_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF00992217"},{"key":"e_1_2_6_18_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870440290001494"},{"key":"e_1_2_6_19_1","doi-asserted-by":"publisher","DOI":"10.1017\/9781107295094.003"},{"key":"e_1_2_6_20_1","first-page":"187","volume-title":"Qualitative data analysis for applied policy research. 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