{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,7]],"date-time":"2025-11-07T08:46:48Z","timestamp":1762505208239},"reference-count":37,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2007,1,17]],"date-time":"2007-01-17T00:00:00Z","timestamp":1168992000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Psycho-Oncology"],"published-print":{"date-parts":[[2007,8]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>The Facing Our Risk of Cancer Empowered (FORCE) website is devoted to women at risk for hereditary breast and ovarian cancers (HBOC). To understand the unique health concerns and emotional support needs of these women, we examined threads on the FORCE archived message boards with relevance to the broader HBOC community. We report on a thread discussing the controversial decision to use hormone replacement therapy (HRT) following prophylactic oophorectomy (PO). We used a qualitative research inductive process involving close reading, coding and identification of recurrent patterns, relationships and processes in the data. Twenty\u2010nine women posted 177 messages over 7 months. Two main groups of women posted: (1) Women who were BRCA+, had completed PO, and were debating or adjusting their HRT options in terms of optimizing both quality and quantity of life. (2) Women who were BRCA+, were contemplating PO, but wanted to better understand the potential physical and psychological consequences of surgical menopause before deciding. Frustrated by physicians' lack of knowledge and contradictory media articles about the long\u2010term consequences of HRT in BRCA+ women, they sought resources, emotional support and specific experiential knowledge from each other and generated a unique sense of community and a high level of trust. Copyright \u00a9 2007 John Wiley &amp; Sons, Ltd.<\/jats:p>","DOI":"10.1002\/pon.1152","type":"journal-article","created":{"date-parts":[[2007,1,17]],"date-time":"2007-01-17T13:47:34Z","timestamp":1169041654000},"page":"763-771","source":"Crossref","is-referenced-by-count":37,"title":["Peer\u2010support in coping with medical uncertainty: discussion of oophorectomy and hormone replacement therapy on a web\u2010based message board"],"prefix":"10.1002","volume":"16","author":[{"given":"Regina H.","family":"Kenen","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pamela J.","family":"Shapiro","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Susan","family":"Friedman","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"James C.","family":"Coyne","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2007,1,17]]},"reference":[{"key":"e_1_2_1_2_2","volume-title":"Cancer Facts and Figures 2006","author":"American Cancer Society","year":"2006"},{"key":"e_1_2_1_3_2","doi-asserted-by":"publisher","DOI":"10.1093\/jnci\/94.18.1365"},{"key":"e_1_2_1_4_2","doi-asserted-by":"publisher","DOI":"10.1086\/301749"},{"key":"e_1_2_1_5_2","volume-title":"Clinical Practice Guidelines in Oncology: Guidelines for Detection, Prevention, and Risk Reduction of Cancer","author":"National Comprehensive Cancer Network","year":"2004"},{"issue":"5","key":"e_1_2_1_6_2","doi-asserted-by":"crossref","first-page":"1164","DOI":"10.1200\/JCO.2002.20.5.1164","article-title":"Risk management in BRCA1 and BRCA2 mutation carriers: lessons learned, challenges posed","volume":"20","author":"DeMichele A","year":"2002","journal-title":"J Clin Oncol"},{"key":"e_1_2_1_7_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2002.10.101"},{"key":"e_1_2_1_8_2","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMoa012158"},{"key":"e_1_2_1_9_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2002.08.035"},{"key":"e_1_2_1_10_2","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMoa020119"},{"key":"e_1_2_1_11_2","first-page":"116","article-title":"Website of the week: facing mastectomy","volume":"322","author":"Richards T","year":"2001","journal-title":"Br Med J"},{"key":"e_1_2_1_12_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ajog.2004.04.028"},{"key":"e_1_2_1_13_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ygyno.2005.01.024"},{"key":"e_1_2_1_14_2","doi-asserted-by":"publisher","DOI":"10.1089\/gte.2004.8.148"},{"key":"e_1_2_1_15_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0378-5122(97)00089-3"},{"key":"e_1_2_1_16_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2000.18.9.1980"},{"key":"e_1_2_1_17_2","volume-title":"Handbook of Qualitative Research Methods","author":"Pidgeon N","year":"1996"},{"key":"e_1_2_1_18_2","volume-title":"Handbook of Qualitative Research","author":"Strauss AL","year":"1994"},{"key":"e_1_2_1_19_2","volume-title":"The Discovery of Grounded Theory; Strategies for Qualitative Research","author":"Glaser B","year":"1967"},{"key":"e_1_2_1_20_2","doi-asserted-by":"publisher","DOI":"10.1023\/A:1025659701805"},{"key":"e_1_2_1_21_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2005.06.022"},{"key":"e_1_2_1_22_2","doi-asserted-by":"publisher","DOI":"10.1093\/jnci\/93.3.173"},{"key":"e_1_2_1_23_2","doi-asserted-by":"publisher","DOI":"10.1097\/00002820-200312000-00001"},{"key":"e_1_2_1_24_2","doi-asserted-by":"publisher","DOI":"10.1046\/j.1467-9566.2003.00372.x"},{"key":"e_1_2_1_25_2","unstructured":"FreundP McGuireM.Health illness and the social body: a critical sociology. Prentice Hall: Englewood Cliffs NJ 1995."},{"key":"e_1_2_1_26_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2004.06.090"},{"key":"e_1_2_1_27_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(04)15493-7"},{"key":"e_1_2_1_28_2","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.00240"},{"key":"e_1_2_1_29_2","doi-asserted-by":"publisher","DOI":"10.1207\/s15324796abm3103_9"},{"key":"e_1_2_1_30_2","doi-asserted-by":"publisher","DOI":"10.1097\/00012272-200310000-00007"},{"key":"e_1_2_1_31_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.328.7442.723"},{"key":"e_1_2_1_32_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(02)00019-9"},{"key":"e_1_2_1_33_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2004.07.005"},{"key":"e_1_2_1_34_2","doi-asserted-by":"publisher","DOI":"10.1111\/1468-2397.00196"},{"key":"e_1_2_1_35_2","unstructured":"RainieL HorriganJ. The Internet: the mainstreaming of online life. The Pew Internet and American Life Project. Washington DC 2005. Retrieved March 5 2005 fromhttp:\/\/www.pewinternet.org\/pdfs\/ Internet_Status_2005"},{"key":"e_1_2_1_36_2","doi-asserted-by":"publisher","DOI":"10.1177\/1525822X9901100204"},{"key":"e_1_2_1_37_2","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1097-0142(19970601)79:11<2219::AID-CNCR21>3.0.CO;2-Y"},{"key":"e_1_2_1_38_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(01)00133-2"}],"container-title":["Psycho-Oncology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fpon.1152","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/pon.1152","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,11,14]],"date-time":"2023-11-14T11:59:23Z","timestamp":1699963163000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/pon.1152"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2007,1,17]]},"references-count":37,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2007,8]]}},"alternative-id":["10.1002\/pon.1152"],"URL":"https:\/\/doi.org\/10.1002\/pon.1152","archive":["Portico"],"relation":{},"ISSN":["1057-9249","1099-1611"],"issn-type":[{"value":"1057-9249","type":"print"},{"value":"1099-1611","type":"electronic"}],"subject":[],"published":{"date-parts":[[2007,1,17]]}}}