{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,6]],"date-time":"2026-10-06T23:52:09Z","timestamp":1791330729576,"version":"4.3.1"},"reference-count":55,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2009,2,16]],"date-time":"2009-02-16T00:00:00Z","timestamp":1234742400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Psycho-Oncology"],"published-print":{"date-parts":[[2009,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p><jats:italic>Objective<\/jats:italic>: To assess coping strategies of long\u2010term retinoblastoma (RB) survivors and explore determinants of behavioural functioning, including medical, socio\u2010demographic and coping variables.<\/jats:p><jats:p><jats:italic>Methods<\/jats:italic>: This population\u2010based cross\u2010sectional study included 117 RB survivors (12\u201335 years), registered in the Dutch national RB register. Survivors were asked to fill in coping, social support and behavioural questionnaires, and situational characteristics were obtained from medical archives and from an interview. Prevalence rates of coping strategies were computed based on self\u2010reports. One\u2010sample <jats:italic>t<\/jats:italic>\u2010tests were applied to analyse differences in the use of coping strategies compared with healthy reference samples. Multiple regression analyses were performed to identify various determinants for behavioural problems within the RB sample.<\/jats:p><jats:p><jats:italic>Results<\/jats:italic>: RB survivors differed from their healthy reference group in one coping style, i.e. they showed significantly less emotion\u2010oriented coping behaviour. Adolescents who came from a single\u2010parent family and\/or experienced lower social support and used more emotion\u2010oriented coping reported more total problem behaviour. More internalizing problems were reported for adolescents who experienced less social support and less acceptance of the disease. For adults, more life events, emotion\u2010oriented coping and lower social support explained more total problem behaviour, especially internalizing problems.<\/jats:p><jats:p><jats:italic>Conclusion<\/jats:italic>: RB survivors showed less emotion\u2010oriented coping behaviour compared with the reference group. Behavioural problems are best determined by emotion\u2010oriented coping, social support, life events other than RB and acceptance of the disease, and not by medical variables. Therefore, these variables should be taken into consideration during interventions for this group. 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