{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,25]],"date-time":"2026-03-25T07:06:41Z","timestamp":1774422401395,"version":"3.50.1"},"reference-count":37,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2012,2,7]],"date-time":"2012-02-07T00:00:00Z","timestamp":1328572800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Psycho-Oncology"],"published-print":{"date-parts":[[2013,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Some women at risk for hereditary breast cancer are at increased risk of psychological distress. In order to tailor support for individual women, the availability of a tool enabling the identification of psychologically vulnerable women at an early stage is warranted. The objectives of this study were (1) to explore long\u2010term psychological distress in women at risk for hereditary breast cancer adhering to regular surveillance, and (2) to identify women being vulnerable for long\u2010term psychological distress, defined in terms of a multifactorial risk profile.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>General distress and cancer\u2010related distress were assessed at baseline (T0) and after 5\u20138\u2009years (T1) in 197 high\u2010risk women adhering to breast cancer surveillance. Coping styles, occurrence of breast cancer in the family of origin, breast cancer risk perception, and frequency of breast self\u2010examination, as assessed at T0, were examined as predictor variables for long\u2010term distress (T1).<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Across time, women reported a significant reduction in intrusion and avoidance. Intrusion levels were increased among women who had lost a first\u2010degree relative to breast cancer. Predictors of increased long\u2010term distress were passive and palliative coping styles, excessive breast self\u2010examination, and overestimation of breast cancer risk. On the other hand, coping through fostering reassuring thoughts was predictive for decreased long\u2010term distress.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>On the basis of the identified risk profile, it is possible to identify vulnerable women at an early stage, who then may be offered additional and individually tailored support. Copyright \u00a9 2012 John Wiley &amp; Sons, Ltd.<\/jats:p><\/jats:sec>","DOI":"10.1002\/pon.3039","type":"journal-article","created":{"date-parts":[[2012,2,8]],"date-time":"2012-02-08T02:48:30Z","timestamp":1328669310000},"page":"598-604","source":"Crossref","is-referenced-by-count":30,"title":["Long\u2010term psychological distress in women at risk for hereditary breast cancer adhering to regular surveillance: a risk profile"],"prefix":"10.1002","volume":"22","author":[{"given":"Mariska","family":"den Heijer","sequence":"first","affiliation":[{"name":"Department of Medical Psychology and Psychotherapy Erasmus Medical Center  Rotterdam The Netherlands"},{"name":"Department of Clinical Genetics Erasmus Medical Center  Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Caroline","family":"Seynaeve","sequence":"additional","affiliation":[{"name":"Family Cancer Clinic, Department of Medical Oncology Erasmus MC\u2010Daniel den Hoed Cancer Center  Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kathleen","family":"Vanheusden","sequence":"additional","affiliation":[{"name":"Department of Medical Psychology and Psychotherapy Erasmus Medical Center  Rotterdam The Netherlands"},{"name":"Department of Clinical Genetics Erasmus Medical Center  Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Reinier","family":"Timman","sequence":"additional","affiliation":[{"name":"Department of Medical Psychology and Psychotherapy Erasmus Medical Center  Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hugo J","family":"Duivenvoorden","sequence":"additional","affiliation":[{"name":"Department of Medical Psychology and Psychotherapy Erasmus Medical Center  Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Madeleine","family":"Tilanus\u2010Linthorst","sequence":"additional","affiliation":[{"name":"Family Cancer Clinic, Department of Surgical Oncology Erasmus MC\u2010Daniel den Hoed Cancer Center  Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marian BE","family":"Menke\u2010Pluijmers","sequence":"additional","affiliation":[{"name":"Family Cancer Clinic, Department of Surgical Oncology Erasmus MC\u2010Daniel den Hoed Cancer Center  Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Aad","family":"Tibben","sequence":"additional","affiliation":[{"name":"Department of Medical Psychology and Psychotherapy Erasmus Medical Center  Rotterdam The Netherlands"},{"name":"Department of Clinical Genetics Erasmus Medical Center  Rotterdam The Netherlands"},{"name":"Centre of Human and Clinical Genetics Leiden University Medical Center  Leiden The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2012,2,7]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1086\/375033"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1086\/301749"},{"key":"e_1_2_6_4_1","first-page":"45","article-title":"Evaluating cancer risks in BRCA mutation carriers","volume":"2","author":"Georgiou I","year":"2003","journal-title":"Gastric Breast Cancer"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1126\/science.1088759"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00109-005-0696-7"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(00)02347-3"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2003.09.052"},{"key":"e_1_2_6_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.2960040207"},{"key":"e_1_2_6_10_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF02895155"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.20.2.514"},{"key":"e_1_2_6_12_1","doi-asserted-by":"publisher","DOI":"10.1159\/000079385"},{"key":"e_1_2_6_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejca.2004.05.004"},{"key":"e_1_2_6_14_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10549-004-2623-y"},{"key":"e_1_2_6_15_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.1135"},{"key":"e_1_2_6_16_1","doi-asserted-by":"publisher","DOI":"10.2307\/2136617"},{"key":"e_1_2_6_17_1","volume-title":"Stress, Appraisal and Coping","author":"Lazarus RS","year":"1984"},{"key":"e_1_2_6_18_1","volume-title":"De Utrechtse Coping Lijst: UCL. 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