{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,21]],"date-time":"2026-09-21T04:25:20Z","timestamp":1789964720499,"version":"4.0.1"},"reference-count":43,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2016,1,25]],"date-time":"2016-01-25T00:00:00Z","timestamp":1453680000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"National Cancer Institute at the National Institutes of Health","award":["R21 CA133337"],"award-info":[{"award-number":["R21 CA133337"]}]},{"name":"Arizona Cancer Center Support (grant number","award":["CA023074"],"award-info":[{"award-number":["CA023074"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Psycho-Oncology"],"published-print":{"date-parts":[[2016,5]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Individuals with ostomies experience extensive changes in health\u2010related quality of life (HRQOL) and daily routine. Patients and families are typically forced to use trial and error to improve self\u2010management.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      This is a longitudinal one\u2010group design pilot study of a five\u2010session ostomy self\u2010care curriculum based on the Chronic Care Model to improve HRQOL and self\u2010management for cancer survivors with ostomies. Participants were surveyed to evaluate each session. Multiple instruments were administered to examine outcomes at baseline, post\u2010intervention, and at 6\u2010month follow\u2010up (Patient Activation Measure, self\u2010efficacy, Hospital Anxiety and Depression Scale, Ways of Coping, Group Health Association of America Satisfaction with ostomy care survey, and the City of Hope Quality of Life Ostomy). Changes from pre\u2010intervention to post\u2010intervention and pre\u2010intervention to follow\u2010up were evaluated with paired\n                      <jats:italic>t<\/jats:italic>\n                      \u2010tests. Text responses were coded and evaluated for important themes and recommendations.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Thirty\u2010eight subjects participated in the study. Most had a history of rectal cancer (60.5%) or bladder cancer (28.9%). Participants rated the overall program high (4.4\u20134.8 on 5\u2010point scale). Text feedback indicated that participants enjoyed the group forums, wanted more participants, and more hands\u2010on training. Scores on multiple surveys were shown to be improved and sustained, including patient activation (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.0004), self\u2010efficacy (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.006), total HRQOL (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.01), physical well\u2010being (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.005), and social well\u2010being (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.002). Survivor anxiety was significantly reduced by follow\u2010up (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.047).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This self\u2010management ostomy program can help cancer survivors with ostomies adapt to their stoma. Initiating this program in the community setting would be beneficial to many cancer survivors. Copyright \u00a9 2016 John Wiley &amp; Sons, Ltd.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/pon.4078","type":"journal-article","created":{"date-parts":[[2016,1,25]],"date-time":"2016-01-25T00:28:38Z","timestamp":1453681718000},"page":"574-581","source":"Crossref","is-referenced-by-count":111,"title":["A chronic care ostomy self\u2010management program for cancer survivors"],"prefix":"10.1002","volume":"25","author":[{"given":"Robert S.","family":"Krouse","sequence":"first","affiliation":[{"name":"Southern Arizona Veterans Affairs Health Care System  Tucson AZ USA"},{"name":"University of Arizona College of Medicine  Tucson AZ USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marcia","family":"Grant","sequence":"additional","affiliation":[{"name":"City of Hope National Medical Center\/Beckman Research Institute  Duarte CA 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