{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,13]],"date-time":"2026-02-13T10:11:44Z","timestamp":1770977504836,"version":"3.50.1"},"reference-count":34,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2021,9,9]],"date-time":"2021-09-09T00:00:00Z","timestamp":1631145600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100007961","name":"Melbourne School of Psychological Sciences","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100007961","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Psycho-Oncology"],"published-print":{"date-parts":[[2022,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>Haematological cancer patients are particularly vulnerable to the effects of COVID\u201019. In addition to being immunocompromised, pandemic\u2010related travel restrictions have impacted access to treatments and overseas stem cell donations for patients requiring transplantation. Given this vulnerability, people with haematological cancers are at risk of experiencing heightened distress during the pandemic. This study aimed to explore haematological cancer patients' experiences and needs.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Twenty\u2010four Australian haematological cancer patients completed semi\u2010structured interviews exploring their concerns and worries during the pandemic, impact of pandemic on management of disease, access to information and support, lifestyle changes, and attitudes towards emerging models of healthcare during the pandemic. Interview transcripts were thematically analysed.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Four themes reflecting the experiences of haematological cancer patients during the pandemic were identified: \u2018Fears about contracting COVID\u201019' (behaviour changes to protect health, impact on daily routine and habits, annoyance at dismissive attitude of others toward COVID\u201019); \u2018Reduced sense of connection and support\u2019 (reduced social support and access to external support services); \u2018New challenges\u2019 (increased financial hardship, worsened health), and; \u2018Underlying system and communication issues' (access to trusted information, satisfaction\/dissatisfaction with care, navigating telehealth). Participants expressed a need for improved access to support services and trusted information.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The findings emphasise the additional challenges experienced by haematological cancer patients during the COVID\u201019 pandemic and their impact on daily life. Results point to the importance of validation of increased distress during periods of uncertainty; reinforcing recommendations about high\u2010quality sources of information; and facilitating access to support services when face\u2010to\u2010face care is limited.<\/jats:p><\/jats:sec>","DOI":"10.1002\/pon.5819","type":"journal-article","created":{"date-parts":[[2021,9,9]],"date-time":"2021-09-09T18:07:51Z","timestamp":1631210871000},"page":"416-424","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":27,"title":["Experiences and needs of people with haematological cancers during the COVID\u201019 pandemic: A qualitative study"],"prefix":"10.1002","volume":"31","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5008-6429","authenticated-orcid":false,"given":"Nienke","family":"Zomerdijk","sequence":"first","affiliation":[{"name":"Melbourne School of Psychological Sciences University of Melbourne  Melbourne Victoria 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