{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,19]],"date-time":"2026-08-19T17:26:09Z","timestamp":1787160369804,"version":"build-2736575974"},"reference-count":31,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2023,4,20]],"date-time":"2023-04-20T00:00:00Z","timestamp":1681948800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["APP1174733"],"award-info":[{"award-number":["APP1174733"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Psycho-Oncology"],"published-print":{"date-parts":[[2023,6]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>From diagnosis and beyond, a paediatric brain tumour and its treatment impact the child and their family in a myriad of ways. While it is considered best practice to offer ongoing psychosocial support for all family members, there is little scholarly investigation of both families' experiences and the practical implications of offering such care. We aimed to explore families' experiences of paediatric brain tumour and their associated psychosocial health service needs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Families receiving care at the Queensland Children's Hospital in Brisbane, Australia, for a child (0\u201318\u00a0years) who had been diagnosed with a brain tumour between 2019 and 2022 were invited to be interviewed about their experiences. Using qualitative description, we analysed these interviews to identify families' unmet psychosocial health service needs and their suggestions for improvement.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Twenty\u2010three clinically and socially diverse families were represented. While parents\/carers expressed gratitude for the care their child had received, most also described unmet needs for the broader family. We identified three primary needs to be addressed: (1) parents want accessible psychological\/emotional support for themselves; (2) parents\/carers want additional guidance to navigate the hospital setting to reduce uncertainty and loss of control; and (3) parents want support to minimise treatment\u2010associated trauma for their child.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Our findings evidence the need for improved family\u2010centred psychosocial care within paediatric brain tumour care in Queensland, Australia. We propose a counselling and care coordination intervention to support parents\/carers to care for themselves, their child, and their family through an extremely challenging experience.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/pon.6136","type":"journal-article","created":{"date-parts":[[2023,4,20]],"date-time":"2023-04-20T23:15:43Z","timestamp":1682032543000},"page":"942-950","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":14,"title":["Supporting families through paediatric brain tumour: Unmet needs and suggestions for change"],"prefix":"10.1002","volume":"32","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3539-3727","authenticated-orcid":false,"given":"Kate","family":"Young","sequence":"first","affiliation":[{"name":"Cancer and Palliative Care Outcomes Centre Centre for Healthcare Transformation Queensland University of Technology  Brisbane Queensland Australia"},{"name":"Centre for Children's Health Research Children's Health Queensland Hospital and Health Service  South Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christine","family":"Cashion","sequence":"additional","affiliation":[{"name":"Centre for Children's Health Research Children's Health Queensland Hospital and Health Service  South Brisbane Queensland Australia"},{"name":"Children's Health Queensland Hospital and Health Service  South Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Timothy","family":"Hassall","sequence":"additional","affiliation":[{"name":"Children's Health Queensland Hospital and Health Service  South Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stuart","family":"Ekberg","sequence":"additional","affiliation":[{"name":"Children's Health Queensland Hospital and Health Service  South Brisbane Queensland Australia"},{"name":"School of Psychology &amp; Counselling Queensland University of Technology  Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1602-4544","authenticated-orcid":false,"given":"Natalie","family":"Bradford","sequence":"additional","affiliation":[{"name":"Cancer and Palliative Care Outcomes Centre Centre for Healthcare Transformation Queensland University of Technology  Brisbane Queensland Australia"},{"name":"Centre for Children's Health Research Children's Health Queensland Hospital and Health Service  South Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,4,20]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/s1470\u20102045(17)30186\u20109"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41571\u2010019\u20100177\u20105"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1200\/jgo.19.00140"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1177\/0883073809341709"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.32186"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.5745"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjep.12474"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11060\u2010013\u20101130\u20106"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00381\u2010015\u20102669\u20107"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1097\/mop.0000000000000837"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1089\/jayao.2018.0053"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1097\/mph.0b013e3181e7dda6"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.25675"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.29470"},{"key":"e_1_2_9_16_1","doi-asserted-by":"publisher","DOI":"10.1080\/00981389.2018.1441212"},{"key":"e_1_2_9_17_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.26634"},{"key":"e_1_2_9_18_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.26869"},{"key":"e_1_2_9_19_1","doi-asserted-by":"publisher","DOI":"10.1017\/s1478951520000449"},{"key":"e_1_2_9_20_1","doi-asserted-by":"publisher","DOI":"10.1089\/jayao.2020.0027"},{"key":"e_1_2_9_21_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.28409"},{"key":"e_1_2_9_22_1","first-page":"61","volume-title":"Institute of Medicine (US) Committee on Quality of Health Care in America. 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