{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,26]],"date-time":"2026-05-26T11:03:27Z","timestamp":1779793407270,"version":"3.53.1"},"reference-count":32,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2026,4,8]],"date-time":"2026-04-08T00:00:00Z","timestamp":1775606400000},"content-version":"vor","delay-in-days":7,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,4,1]],"date-time":"2026-04-01T00:00:00Z","timestamp":1775001600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100000054","name":"National Cancer Institute","doi-asserted-by":"publisher","award":["R34CA283408"],"award-info":[{"award-number":["R34CA283408"]}],"id":[{"id":"10.13039\/100000054","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Psycho-Oncology"],"published-print":{"date-parts":[[2026,4]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Despite LGBTQ+\u00a0cancer survivors and caregivers reporting worse physical and mental health\u2010related quality of life than their heterosexual and cisgender peers, few interventions exist to improve their wellbeing.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aims<\/jats:title>\n                    <jats:p>We are adapting the evidence\u2010based FOCUS Program for LGBTQ+\u00a0survivors and caregivers using the ADAPT\u2010ITT framework. Here we present results of \u201ctheater test\u201d focus groups conducted as part of the Adaptation phase of that framework.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted 9 focus groups with 45 LGBTQ+\u00a0cancer survivors and caregivers from across the United States. Participants were asked to provide general and LGBTQ+\u00a0\u2010specific feedback on the 5 FOCUS domains (family involvement, outlook, coping effectiveness, uncertainty reduction, and symptom management) as well as on the format and delivery of the intervention. Interviews were audio and video recorded, transcribed, and coded via qualitative thematic analysis using the Framework Method to capture both a priori and emergent themes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Proposed LGBTQ+\u00a0\u2010specific modifications included acknowledging chosen family; addressing legal issues, experiences of minority stress, and concerns related to body image and gender identity; identifying and addressing gaps in LGBTQ+\u00a0\u2010specific support resources; providing guidance on finding credible LGBTQ+\u00a0\u2010specific information; and engaging in self\u2010advocacy with providers. More general topic suggestions included addressing the challenges of long\u2010distance caregiving, avoiding toxic positivity, and navigating and appraising the quality of online resources.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Participant feedback informed the development of an adapted, manualized intervention (\u201cFOCUS On Us\u201d). This work addresses a critical gap in supportive cancer care by adapting an evidence\u2010based intervention to provide information and resources designed specifically for LGBTQ+\u00a0cancer survivors and caregivers.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/pon.70455","type":"journal-article","created":{"date-parts":[[2026,4,9]],"date-time":"2026-04-09T04:16:37Z","timestamp":1775708197000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["FOCUS On Us: Adapting a Psychosocial Intervention for LGBTQ+ Cancer Patients and Caregivers Using Community Feedback"],"prefix":"10.1002","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6251-6422","authenticated-orcid":false,"given":"Theresa A.","family":"Hastert","sequence":"first","affiliation":[{"name":"Department of Oncology Wayne State University School of Medicine  Detroit Michigan USA"},{"name":"Population Studies Program Karmanos Cancer Institute  Detroit Michigan USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nora N.","family":"Akcasu","sequence":"additional","affiliation":[{"name":"Department of Oncology Wayne State University School of Medicine  Detroit Michigan USA"},{"name":"Population Studies Program Karmanos Cancer Institute  Detroit Michigan USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Milena E.","family":"Insalaco","sequence":"additional","affiliation":[{"name":"Department of Surgery, Division of Supportive Care in Cancer University of Rochester School of Medicine and Dentistry  Rochester New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lelaina","family":"Nagle","sequence":"additional","affiliation":[{"name":"Department of Surgery, Division of Supportive Care in Cancer University of Rochester School of Medicine and Dentistry  Rochester New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Valerie","family":"Chiodo","sequence":"additional","affiliation":[{"name":"FOCUS Community Advisory Board  Rochester New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Linda","family":"Donahue","sequence":"additional","affiliation":[{"name":"FOCUS Community Advisory Board  Rochester New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Heidi","family":"Miller","sequence":"additional","affiliation":[{"name":"FOCUS Community Advisory Board  Rochester New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8678-2730","authenticated-orcid":false,"given":"Matt","family":"Poquadeck","sequence":"additional","affiliation":[{"name":"FOCUS Community Advisory Board  Rochester New York USA"},{"name":"Wilmot Cancer Institute University of Rochester Medical Center  Rochester New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Francisco","family":"Cartujano\u2010Barrera","sequence":"additional","affiliation":[{"name":"Department of Public Health Sciences University of Rochester School of Medicine and Dentistry  Rochester New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Felicity W. K.","family":"Harper","sequence":"additional","affiliation":[{"name":"Department of Oncology Wayne State University School of Medicine  Detroit Michigan USA"},{"name":"Population Studies Program Karmanos Cancer Institute  Detroit Michigan USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hayley S.","family":"Thompson","sequence":"additional","affiliation":[{"name":"Department of Oncology Wayne State University School of Medicine  Detroit Michigan USA"},{"name":"Population Studies Program Karmanos Cancer Institute  Detroit Michigan USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4219-4320","authenticated-orcid":false,"given":"Charles S.","family":"Kamen","sequence":"additional","affiliation":[{"name":"Department of Surgery, Division of Supportive Care in Cancer University of Rochester School of Medicine and Dentistry  Rochester New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,4,8]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pmedr.2022.101881"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12889\u2010017\u20104937\u20109"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.19204\/2024\/HLTH2"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1089\/lgbt.2015.0124"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1037\/0033\u20102909.129.5.674"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1037\/a0016441"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2013.02.019"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1089\/lgbt.2020.0185"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.3746"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/ecc.12501"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1089\/lgbt.2015.0096"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.1013"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951512000594"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1188\/15.ONF.44\u201051"},{"key":"e_1_2_9_16_1","article-title":"Families of Choice; Sources of Support for LGBT Cancer Survivors","author":"Margolies L.","year":"2013","journal-title":"LGBT HealthLink, The Network for Health Equity"},{"key":"e_1_2_9_17_1","doi-asserted-by":"publisher","DOI":"10.1200\/JOP.2014.000877"},{"key":"e_1_2_9_18_1","doi-asserted-by":"publisher","DOI":"10.1089\/lgbt.2017.0144"},{"key":"e_1_2_9_19_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.3118"},{"key":"e_1_2_9_20_1","doi-asserted-by":"publisher","DOI":"10.3389\/fonc.2022.873491"},{"key":"e_1_2_9_21_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.871"},{"key":"e_1_2_9_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.23114"},{"key":"e_1_2_9_23_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.3036"},{"key":"e_1_2_9_24_1","doi-asserted-by":"publisher","DOI":"10.1097\/QAI.0b013e3181605df1"},{"key":"e_1_2_9_25_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471\u20102288\u201013\u2010117"},{"key":"e_1_2_9_26_1","unstructured":"AARP National Alliance for Caregiving 2025 Caregiving in the US"},{"key":"e_1_2_9_27_1","volume-title":"OUT: The National Cancer Survey, Summary of Findings","author":"Scout N.","year":"2021"},{"key":"e_1_2_9_28_1","unstructured":"A.Liptak (August 2025). 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