{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,12]],"date-time":"2026-06-12T21:24:43Z","timestamp":1781299483475,"version":"3.54.1"},"reference-count":31,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2022,9,23]],"date-time":"2022-09-23T00:00:00Z","timestamp":1663891200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100000223","name":"Muscular Dystrophy Canada","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000223","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Pulmonology"],"published-print":{"date-parts":[[2023,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Despite recommendations for regular lung volume recruitment (LVR) use in clinical practice guidelines for children with neuromuscular disease, adherence to LVR is poor. We aimed to describe the experience of LVR by boys with Duchenne muscular dystrophy (DMD), their families, and healthcare providers (HCPs), as well as to identify the barriers and facilitators to LVR use.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>This multicenter, qualitative study evaluated boys with DMD (<jats:italic>n<\/jats:italic>\u2009=\u200911) who used twice\u2010daily LVR as part of a randomized controlled trial, as well as their parents (<jats:italic>n<\/jats:italic>\u2009=\u200911), and HCPs\u00a0involved in the clinical use of LVR (<jats:italic>n<\/jats:italic>\u2009=\u20099). Semistructured interviews were conducted to identify participants' understanding of LVR therapy and their beliefs, barriers and facilitators to its use. Thematic analysis was conducted using an inductive approach. A subanalysis compared adherent and nonadherent children.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Seven themes were identified related to participants' beliefs and experiences with LVR: emotional impact, adaptation to LVR, perceived benefits of LVR, routine, family engagement, clinical resources, and equipment\u2010related factors. Strategies to improve adherence were also identified, including education, reinforcement and demonstration of LVR benefit, as well as clinician support. There were no thematic differences between adherent and nonadherent children.<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion<\/jats:title><jats:p>Despite the benefits of LVR and positive experiences with it by many families, there remain barriers to adherence to treatment. HCPs\u00a0need to balance the need for early introduction to give families time to adapt to LVR while ensuring that the benefit of LVR outweighs the burden. Clinician support is important for family engagement.<\/jats:p><\/jats:sec>","DOI":"10.1002\/ppul.26154","type":"journal-article","created":{"date-parts":[[2022,9,14]],"date-time":"2022-09-14T12:38:56Z","timestamp":1663159136000},"page":"46-54","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Understanding the experiences of lung volume recruitment among boys with Duchenne muscular dystrophy: A multicenter qualitative study"],"prefix":"10.1002","volume":"58","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1879-1990","authenticated-orcid":false,"given":"Sherri L.","family":"Katz","sequence":"first","affiliation":[{"name":"Department of Pediatrics Children's Hospital of Eastern Ontario  Ottawa Ontario Canada"},{"name":"Children's Hospital of Eastern Ontario Research Institute  Ottawa Ontario Canada"},{"name":"Faculty of Medicine University of Ottawa Ottawa Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Henrietta","family":"Blinder","sequence":"additional","affiliation":[{"name":"Children's Hospital of Eastern Ontario Research Institute  Ottawa Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dennis","family":"Newhook","sequence":"additional","affiliation":[{"name":"Children's Hospital of Eastern Ontario Research Institute  Ottawa Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leana","family":"Azerrad","sequence":"additional","affiliation":[{"name":"Children's Hospital of Eastern Ontario Research Institute  Ottawa Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stuart","family":"Nicholls","sequence":"additional","affiliation":[{"name":"The Ottawa Hospital Research Institute  Ottawa Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hugh J.","family":"McMillan","sequence":"additional","affiliation":[{"name":"Department of Pediatrics Children's Hospital of Eastern Ontario  Ottawa Ontario Canada"},{"name":"Children's Hospital of Eastern Ontario Research Institute  Ottawa Ontario Canada"},{"name":"Faculty of Medicine University of Ottawa Ottawa Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jean K.","family":"Mah","sequence":"additional","affiliation":[{"name":"Department of Pediatrics and Clinical Neurosciences, Cumming School of Medicine University of Calgary Calgary Alberta Canada"},{"name":"Alberta Children's Hospital Research Institute  Calgary Alberta Canada"},{"name":"Division of Pediatric Neurology Alberta Children's Hospital  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Craig","family":"Campbell","sequence":"additional","affiliation":[{"name":"Pediatrics, Epidemiology and Clinical Neurological Sciences University of Western Ontario  London Ontario Canada"},{"name":"Department of Paediatrics Children's Hospital London Health Sciences Centre  London Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura C.","family":"McAdam","sequence":"additional","affiliation":[{"name":"Holland Bloorview Kids Rehabilitation Hospital  Toronto Ontario Canada"},{"name":"Department of Pediatrics University of Toronto  Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Zielinski","sequence":"additional","affiliation":[{"name":"Montreal Children's Hospital  Montreal Quebec Canada"},{"name":"Research Institute of McGill University Health Centre McGill University  Montreal Quebec Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karine","family":"Toupin\u2010April","sequence":"additional","affiliation":[{"name":"Children's Hospital of Eastern Ontario Research Institute  Ottawa Ontario Canada"},{"name":"Faculty of Medicine University 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Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,9,23]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(18)30024-3"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(18)30025-5"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/resp.13431"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.apmr.2012.02.024"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1513\/AnnalsATS.201507-475BC"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.2340\/16501977-2144"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.apmr.2020.07.014"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1164\/rccm.200307-885ST"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1080\/24745332.2017.1300463"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1136\/thoraxjnl-2012-201964"},{"key":"e_1_2_10_12_1","doi-asserted-by":"crossref","unstructured":"KatzSL 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Routine lung volume recruitment in boys with Duchenne muscular dystrophy: a randomised clinical trial.Thorax. 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