{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,19]],"date-time":"2026-05-19T17:46:16Z","timestamp":1779212776436,"version":"3.51.4"},"reference-count":39,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2023,2,27]],"date-time":"2023-02-27T00:00:00Z","timestamp":1677456000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000897","name":"Cystic Fibrosis Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000897","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Pulmonology"],"published-print":{"date-parts":[[2023,5]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>As more people with cystic fibrosis (CF) consider their reproductive futures, the impact of parenthood on CF must be better understood. In the context of chronic disease, deciding if, when, and how to become a parent is complex. Little research has investigated how parents with CF balance their role as parents with its associated health impacts and demands of CF.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>PhotoVoice is a research methodology that utilizes photography to generate discussion about community issues. We recruited parents with CF with at least 1 child &lt;10 years old and divided them into three\u00a0cohorts. Each cohort met five\u00a0times. Cohorts developed photography prompts, took photographs between sessions, and reflected on the photos at subsequent meetings. At the final meeting, participants selected 2\u22123 pictures, wrote captions, and as a group organized the photographs into thematic groups. Secondary thematic analysis identified metathemes.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Participants (<jats:italic>n<\/jats:italic>\u2009=\u200918) generated a total of 202 photographs. Each cohort identified 3\u22124 themes (<jats:italic>n<\/jats:italic>\u2009=\u200910) which secondary analysis grouped into 3\u00a0metathemes: (1) It is important for parents with CF to pay attention to the joyful aspects of parenting and to cultivate positive experiences; (2) Parenting with CF requires balancing your own needs with those of your child, and creativity and flexibility can be key; (3) Parenting with CF consists of competing priorities and expectations often with no clear \u201ccorrect\u201d choice.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Parents with CF identified unique challenges to their existence as both parents and patients as well as ways in which parenting has enhanced their lives.<\/jats:p><\/jats:sec>","DOI":"10.1002\/ppul.26355","type":"journal-article","created":{"date-parts":[[2023,2,18]],"date-time":"2023-02-18T17:56:22Z","timestamp":1676742982000},"page":"1527-1534","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["\u201cFind ways to work parenting into cystic fibrosis\u201d: A PhotoVoice exploration of being a parent and having CF"],"prefix":"10.1002","volume":"58","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2274-0005","authenticated-orcid":false,"given":"Olivia M.","family":"Stransky","sequence":"first","affiliation":[{"name":"Center for Innovative Research on Gender Health Equity (CONVERGE) University of Pittsburgh  Pittsburgh Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Savvy","family":"Benipal","sequence":"additional","affiliation":[{"name":"Department of Obstetrics and Gynecology University of Utah Health  Salt Lake City Utah USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Molly","family":"Pam","sequence":"additional","affiliation":[{"name":"Cystic Fibrosis Reproductive and Sexual Health Collaborative  Seattle Washington USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5436-9722","authenticated-orcid":false,"given":"Jennifer L.","family":"Taylor\u2010Cousar","sequence":"additional","affiliation":[{"name":"Divisions of Pulmonary, Critical Care and Sleep Medicine and Pediatric Pulmonary Medicine National Jewish Health  Denver Colorado USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5943-4389","authenticated-orcid":false,"given":"Patricia","family":"Documet","sequence":"additional","affiliation":[{"name":"Behavioral and Community Health Sciences University of Pittsburgh School of Public Health  Pittsburgh Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3916-8260","authenticated-orcid":false,"given":"Traci M.","family":"Kazmerski","sequence":"additional","affiliation":[{"name":"Center for Innovative Research on Gender Health Equity (CONVERGE) University of Pittsburgh  Pittsburgh Pennsylvania USA"},{"name":"Department of Pediatrics University of Pittsburgh School of Medicine  Pittsburgh Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2023,2,27]]},"reference":[{"key":"e_1_2_9_2_1","unstructured":"2021 Cystic Fibrosis Foundation Patient Registry Highlights. Cystic Fibrosis Foundation; c2022. 2022.https:\/\/www.cff.org\/media\/26631\/download"},{"issue":"1","key":"e_1_2_9_3_1","article-title":"Family\u2010building and parenting considerations for people with cystic fibrosis","volume":"57","author":"Kazmerski TM","year":"2022","journal-title":"Pediatr Pulmonol"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1080\/14647273.2019.1656824"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1136\/thx.2004.027599"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2017.07.017"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMoa1908639"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(19)32597-8"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1164\/rccm.201503-0578OC"},{"key":"e_1_2_9_10_1","unstructured":"2018 Revised Model for CF Foundation Medical Strategy Retreat. 2022. Personal communication with J. P. Clancy. 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