{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,16]],"date-time":"2026-07-16T02:58:47Z","timestamp":1784170727838,"version":"3.55.0"},"reference-count":46,"publisher":"Wiley","issue":"10","license":[{"start":{"date-parts":[[2024,5,7]],"date-time":"2024-05-07T00:00:00Z","timestamp":1715040000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Pulmonology"],"published-print":{"date-parts":[[2024,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Cystic fibrosis (CF) related diabetes affects up to half of all adults with CF and is associated with higher morbidity and mortality. Our aim is to codevelop an ideal model of care that integrates diabetes technology and better meets the needs of adults living with the condition to improve attendance, engagement, service satisfaction, and clinical outcomes.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Using qualitative research methods, we evaluated disease perceptions, barriers, and enablers to optimal CF\u2010related diabetes management and service delivery. Integration of continuous glucose monitoring (CGM) was also explored. An initial broad purposive consumer survey was followed by focus groups with end\u2010users. Grounded theory approach was utilized with major problem areas identified then explored, coded, and grouped into requisites for an \u201cideal model of care\u201d\u00a0for adults living with CF\u2010related diabetes.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Two key themes emerged (i) an ideal model of care consisted of a dual\u2010specialty service co\u2010led by endocrinology and CF physicians and supported by diabetes educator and CF dietitian with a goal to provide consistent and personalized diabetes management and (ii) CGM was acceptable for use in adults with CF\u2010related diabetes with many perceived benefits and should be integrated into the model of care. Barriers to optimizing glycemic control included diet, finger\u2010prick testing, reduced access to CGM, and pulmonary exacerbations. End\u2010user feedback on CGM was overwhelmingly positive with regard to operability. CGM was also identified as a tool that could be used to engage, educate, and empower adults living with CF\u2010related diabetes and facilitate constructive and personalized clinical decision\u2010making by healthcare providers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>For adults living with CF, a diagnosis of diabetes is associated with increased treatment burden. Our findings suggest an \u201cideal model of care\u201d\u00a0for CF\u2010related diabetes would be co\u2010led by endocrinology services integrated within a pre\u2010existing CF service, incorporating CGM.<\/jats:p><\/jats:sec>","DOI":"10.1002\/ppul.27047","type":"journal-article","created":{"date-parts":[[2024,5,7]],"date-time":"2024-05-07T11:18:58Z","timestamp":1715080738000},"page":"2472-2481","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Codevelopment of a model of care for adults living with cystic fibrosis\u2010related diabetes"],"prefix":"10.1002","volume":"59","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5456-2699","authenticated-orcid":false,"given":"Shanal","family":"Kumar","sequence":"first","affiliation":[{"name":"Monash Centre for Health Research and Implementation Monash University Melbourne Victoria Australia"},{"name":"Adult Cystic Fibrosis Centre The Prince Charles Hospital Chermside Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael","family":"Pallin","sequence":"additional","affiliation":[{"name":"Monash Lung and Sleep Monash Health Clayton Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Georgia","family":"Soldatos","sequence":"additional","affiliation":[{"name":"Monash Centre for Health Research and Implementation Monash University Melbourne Victoria Australia"},{"name":"Diabetes and Vascular Medicine Unit Monash Health Clayton Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,5,7]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41598-022-24374-4"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/ppul.1142"},{"issue":"8","key":"e_1_2_11_4_1","first-page":"345","article-title":"Diabetes mellitus in patients with cystic fibrosis: the impact of diabetes mellitus on pulmonary function and clinical outcome","volume":"6","author":"Rosenecker J","year":"2001","journal-title":"Eur J Med Res"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0119938"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.2337\/diabetes.50.6.1336"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-3476(88)80315-9"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.2165\/00019053-200624100-00007"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.3389\/fendo.2018.00020"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.2147\/DMSO.S180597"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2008.09.007"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2022.07.013"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.2337\/dc09-0586"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcte.2022.100305"},{"issue":"11","key":"e_1_2_11_15_1","first-page":"753","article-title":"Perceptions of diabetes technology use in cystic fibrosis\u2010related diabetes management","volume":"23","author":"Marks BE","year":"2021","journal-title":"Diabetes Technol Ther"},{"issue":"4","key":"e_1_2_11_16_1","first-page":"323","article-title":"What are models of care? 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