{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T22:30:24Z","timestamp":1788215424294,"version":"build-2803163510"},"reference-count":21,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2025,2,3]],"date-time":"2025-02-03T00:00:00Z","timestamp":1738540800000},"content-version":"vor","delay-in-days":2,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Pulmonology"],"published-print":{"date-parts":[[2025,2]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>CF R.I.S.E is a program that helps people with Cystic Fibrosis (pwCF) transition from pediatric to adult care. In 2022, we adapted it to CF S.O.B.E in Turkish during a training session. This project aims to present the results of the CF S.O.B.E program.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      This study included 81 pwCF aged 16\u201325, divided into two groups: the standard CF S.O.B.E. group (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200939) and the modified group (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200942). The standard group received face\u2010to\u2010face education. Both groups participated in online training sessions and received written materials. The knowledge levels were evaluated with Knowledge Assessment Questionnaires (KAQ).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      The standard group showed higher post\u2010training scores in \u201cLung Health and Airway Clearance\u201d and \u201cEquipment Maintenance and Infection Control\u201d (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.014 and 0.002). Modified group showed improvements in all KAQs except \u201cLung Health and Airway Clearance\u201d, \u201cCF\u2010related Liver Disease,\u201d \u201cPancreatic Insufficiency and Nutrition,\u201d and \u201cMale Sexual Health.\u201d Regarding Pancreatic Insufficiency &amp; Nutrition and CF\u2010related Diabetes, individuals with these conditions demonstrated higher pretest scores than those without these conditions (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.01 and 0.002, respectively). Both groups and their parents reported high satisfaction, and healthcare providers endorsed the program's effectiveness.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Our study demonstrated the CF S.O.B.E program's success in enhancing knowledge, disease management skills, and self\u2010confidence among pwCF. While the modified CF S.O.B.E program may be suitable for resource\u2010limited centers, the priority should be to implement the standard program due to its superior outcomes in self\u2010confidence and disease management. This study lays the foundation for incorporating CF S.O.B.E as a standard practice and evaluating its long\u2010term clinical impact.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/ppul.27506","type":"journal-article","created":{"date-parts":[[2025,2,3]],"date-time":"2025-02-03T08:29:07Z","timestamp":1738571347000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Implementation of Cystic Fibrosis Responsibility, Independence, Self\u2010Care, Education Program Enhances Cystic Fibrosis Knowledge in Limited Resource Country: Results From a Randomized Controlled Trial"],"prefix":"10.1002","volume":"60","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2146-3966","authenticated-orcid":false,"given":"Merve Selcuk","family":"Balc\u0131","sequence":"first","affiliation":[{"name":"School of Medicine, Division of Pediatric Pulmonology Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yasemin","family":"G\u00f6kdemir","sequence":"additional","affiliation":[{"name":"School of Medicine, Division of Pediatric Pulmonology Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ela Erdem","family":"Eralp","sequence":"additional","affiliation":[{"name":"School of Medicine, Division of Pediatric Pulmonology Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0228-9832","authenticated-orcid":false,"given":"Almala P\u0131nar","family":"Ergenekon","sequence":"additional","affiliation":[{"name":"School of Medicine, Division of Pediatric Pulmonology Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8239-4776","authenticated-orcid":false,"given":"Cansu Y\u0131lmaz","family":"Yegit","sequence":"additional","affiliation":[{"name":"School of Medicine, Division of Pediatric Pulmonology Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1591-5735","authenticated-orcid":false,"given":"M\u00fcr\u00fcvvet","family":"Yanaz","sequence":"additional","affiliation":[{"name":"School of Medicine, Division of Pediatric Pulmonology Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Aynur","family":"Gulieva","sequence":"additional","affiliation":[{"name":"School of Medicine, Division of Pediatric Pulmonology Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4594-2822","authenticated-orcid":false,"given":"Mine","family":"Kalyoncu","sequence":"additional","affiliation":[{"name":"School of Medicine, Division of Pediatric Pulmonology Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Seyda","family":"Karabulut","sequence":"additional","affiliation":[{"name":"School of Medicine, Division of Pediatric Pulmonology Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Neval Metin","family":"Cakar","sequence":"additional","affiliation":[{"name":"School of Medicine, Division of Pediatric Pulmonology Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Burcu","family":"Uzunoglu","sequence":"additional","affiliation":[{"name":"Selim C\u00f6remen Cystic Fibrosis Center, Pendik Education and Training Hospital Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gamze","family":"Tastan","sequence":"additional","affiliation":[{"name":"Selim C\u00f6remen Cystic Fibrosis Center, Pendik Education and Training Hospital Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Damla","family":"Kocaman","sequence":"additional","affiliation":[{"name":"Nutrition and Dietetics, Pendik Education and Training Hospital Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3004-1992","authenticated-orcid":false,"given":"Ozge Kenis","family":"Coskun","sequence":"additional","affiliation":[{"name":"Department of Physical Medicine and Rehabilitation, School of Medicine Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ilknur","family":"Gorgun","sequence":"additional","affiliation":[{"name":"KIFDER Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Randall","family":"Messier","sequence":"additional","affiliation":[{"name":"Institute for Excellence in Health and Social Systems (IEHSS) Durham New Hampshire USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pamela","family":"Mertz","sequence":"additional","affiliation":[{"name":"Institute for Excellence in Health and Social Systems (IEHSS) Durham New Hampshire USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fazilet","family":"Karakoc","sequence":"additional","affiliation":[{"name":"School of Medicine, Division of Pediatric Pulmonology Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"B\u00fclent","family":"Karadag","sequence":"additional","affiliation":[{"name":"School of Medicine, Division of Pediatric Pulmonology Marmara University Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,2,3]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/s0140-6736(03)12567-6"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2022.10.008"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2006.05.008"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.00196314"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/ppul.23778"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.arcped.2021.03.008"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1164\/ajrccm.155.3.9117010"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1089\/ped.2015.0594"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1569-1993(23)01348-6"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1002\/ppul.27235"},{"key":"e_1_2_10_12_1","unstructured":"KIFDER. \u201cCF S.O.B.E. \u201d2022 https:\/\/www.kifder.org.tr\/sobe."},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/jpc.13458"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.5863\/1551-6776-28.8.741"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2214.2008.00862.x"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1177\/1367493517712479"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1002\/ppul.25307"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2011.04.001"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2010.07.001"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10995-016-2181-z"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcte.2021.100288"},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/ppul.24476"}],"container-title":["Pediatric Pulmonology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/ppul.27506","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,22]],"date-time":"2025-10-22T10:32:32Z","timestamp":1761129152000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/ppul.27506"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,2]]},"references-count":21,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2025,2]]}},"alternative-id":["10.1002\/ppul.27506"],"URL":"https:\/\/doi.org\/10.1002\/ppul.27506","archive":["Portico"],"relation":{},"ISSN":["8755-6863","1099-0496"],"issn-type":[{"value":"8755-6863","type":"print"},{"value":"1099-0496","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,2]]},"assertion":[{"value":"2024-05-15","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-01-24","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-02-03","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e27506"}}