{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,12]],"date-time":"2026-10-12T22:52:24Z","timestamp":1791845544725,"version":"4.3.4"},"reference-count":35,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2025,6,19]],"date-time":"2025-06-19T00:00:00Z","timestamp":1750291200000},"content-version":"vor","delay-in-days":18,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100000897","name":"Cystic Fibrosis Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000897","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Pulmonology"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:p>\n                    The impact of the intersectional lived experience of having a chronic health condition and identifying as lesbian, gay, bisexual, transgender, queer, intersex, asexual or another sexual or gender minority (LGBTQIA+) on health and wellbeing is largely unknown. In this article, we describe the development and structure of\n                    <jats:italic>PRIDE CF<\/jats:italic>\n                    , an innovative, large\u2010scale epidemiologic study using a mixed\u2010methods team science approach to understand the experiences and health outcomes of people with cystic fibrosis (PwCF) who identify as a gender or sexual minority. Our four separate but symbiotic projects utilize the\n                    <jats:italic>PRIDE CF<\/jats:italic>\n                    cohort (n\u2009~\u2009300) with the shared goal of better understanding the needs of LGBTQIA+ PwCF. We use a fully decentralized study design to recruit a national group of participants from a small population within a small population and strive to protect participants' confidentiality and privacy. Results will inform intervention development and testing to improve health for this population. This study is the first to comprehensively investigate the long\u2010term impact and experiences of LGBTQIA+ identity on a person with any chronic condition and, thus, can serve as a model for future collaborations outside of cystic fibrosis.\n                  <\/jats:p>","DOI":"10.1002\/ppul.71154","type":"journal-article","created":{"date-parts":[[2025,6,19]],"date-time":"2025-06-19T07:22:30Z","timestamp":1750317750000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Investigating the Interplay Between Having Cystic Fibrosis and Being a Member of the LGBTQIA+ Community: Protocol for the\n                    <i>PRIDE CF<\/i>\n                    Study"],"prefix":"10.1002","volume":"60","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3916-8260","authenticated-orcid":false,"given":"Traci M.","family":"Kazmerski","sequence":"first","affiliation":[{"name":"Department of Pediatrics University of Pittsburgh School of Medicine Pittsburgh Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kacie M.","family":"Kidd","sequence":"additional","affiliation":[{"name":"Department of Pediatrics West Virginia University School of Medicine Morgantown West Virginia USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Raksha","family":"Jain","sequence":"additional","affiliation":[{"name":"University of Texas Southwestern Medical Center Dallas Texas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ishaan","family":"Jathal","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Pittsburgh School of Medicine Pittsburgh Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2274-0005","authenticated-orcid":false,"given":"Olivia M.","family":"Stransky","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Pittsburgh School of Medicine Pittsburgh Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4329-506X","authenticated-orcid":false,"given":"MinJae","family":"Lee","sequence":"additional","affiliation":[{"name":"University of Texas Southwestern Medical Center Dallas Texas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachel E.","family":"Salyer","sequence":"additional","affiliation":[{"name":"Department of Pediatrics West Virginia University School of Medicine Morgantown West Virginia USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vin","family":"Tangpricha","sequence":"additional","affiliation":[{"name":"Division of Endocrinology, Metabolism, and Lipids, Department of Medicine Emory University School of Medicine Atlanta Georgia USA"},{"name":"Atlanta Veterans Medical Center Decatur Georgia USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0074-6967","authenticated-orcid":false,"given":"John","family":"Palla","sequence":"additional","affiliation":[{"name":"Department of Pediatrics Northwestern Feinberg School of Medicine Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Adrianne N.","family":"Alpern","sequence":"additional","affiliation":[{"name":"Children's Hospital of Orange County Orange California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mitchell R.","family":"Lunn","sequence":"additional","affiliation":[{"name":"Division of Nephrology, Department of Medicine Stanford University School of Medicine Stanford California USA"},{"name":"Department of Epidemiology and Population Health Stanford University School of Medicine Stanford California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Juno","family":"Obedin\u2010Maliver","sequence":"additional","affiliation":[{"name":"Department of Epidemiology and Population Health Stanford University School of Medicine Stanford California USA"},{"name":"Department of Obstetrics\u2010Gynecology Stanford University School of Medicine Stanford California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jonathan","family":"Greenberg","sequence":"additional","affiliation":[{"name":"Boston Children's Hospital Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Asher","family":"Prangley","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Pittsburgh School of Medicine Pittsburgh Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"PRIDE CF Community Partner Group","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3356-709X","authenticated-orcid":false,"given":"Gregory S.","family":"Sawicki","sequence":"additional","affiliation":[{"name":"Boston Children's Hospital Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,6,19]]},"reference":[{"key":"e_1_2_11_2_1","unstructured":"Cystic Fibrosis Foundation Patient Registry 2023 report accessed January 29 2025."},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2008.09.007"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-030-42382-7_21"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.2147\/CEOR.S162021"},{"key":"e_1_2_11_6_1","unstructured":"LGBTQ+ Identification in U.S. Rises to 9.3% https:\/\/news.gallup.com\/poll\/656708\/lgbtq-identification-rises.aspx. 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