{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,19]],"date-time":"2026-02-19T07:11:01Z","timestamp":1771485061347,"version":"3.50.1"},"reference-count":22,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2025,12,22]],"date-time":"2025-12-22T00:00:00Z","timestamp":1766361600000},"content-version":"vor","delay-in-days":21,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2025,12,1]],"date-time":"2025-12-01T00:00:00Z","timestamp":1764547200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Pulmonology"],"published-print":{"date-parts":[[2025,12]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>\n                      More people with cystic fibrosis (PwCF) are surviving to adulthood and considering their reproductive futures starting in the teen years.\n                      <jats:italic>MyVoice:CF<\/jats:italic>\n                      is a web\u2010based reproductive health decision support tool for adult female PwCF. Given the evolving cystic fibrosis (CF) population, we explored the role of\n                      <jats:italic>MyVoice:CF<\/jats:italic>\n                      and further reproductive health resources for adolescent female PwCF.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      We conducted qualitative interviews with female adolescent and young adult (AYA) PwCF between age 13\u201326 years and their caregivers regarding their reproductive health experiences, the acceptability and usability of\n                      <jats:italic>MyVoice:CF<\/jats:italic>\n                      , and the desired additional resources for female AYA PwCF. We recorded and transcribed all interviews and analyzed them thematically using an inductive coding approach.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      We interviewed 16 AYAs and 11 caregivers. Key themes included: (1) AYA females with CF are considering their reproductive health and are curious about how CF will affect their future reproductive goals; (2) Participants found\n                      <jats:italic>MyVoice:CF<\/jats:italic>\n                      informative, user\u2010friendly, and relevant for adolescents; (3) Suggested additions include information about puberty, healthy relationships, and learning how to self\u2010advocate in interpersonal and medical settings; (4) AYA participants were particularly interested in hearing about reproductive health experiences of peers and being able to use\n                      <jats:italic>MyVoice:CF<\/jats:italic>\n                      to connect with other PwCF; (5) Participants shared the importance of open parent\u2010child conversations regarding reproductive health and the use of\n                      <jats:italic>MyVoice:CF<\/jats:italic>\n                      to supplement these discussions.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>\n                      Participants found\n                      <jats:italic>MyVoice:CF<\/jats:italic>\n                      acceptable and usable for adolescent female PwCF and as a tool to initiate conversations between AYAs, caregivers, and providers.\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/ppul.71438","type":"journal-article","created":{"date-parts":[[2025,12,22]],"date-time":"2025-12-22T08:00:16Z","timestamp":1766390416000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Exploration of MyVoice: CF as a Reproductive Health Decision Support Tool for Adolescent Females With Cystic Fibrosis"],"prefix":"10.1002","volume":"60","author":[{"ORCID":"https:\/\/orcid.org\/0009-0002-5154-2099","authenticated-orcid":false,"given":"Maya L.","family":"Albanowski","sequence":"first","affiliation":[{"name":"School of Medicine University of Pittsburgh Pittsburgh Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Asher","family":"Prangley","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, School of Medicine University of Pittsburgh Pittsburgh Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2274-0005","authenticated-orcid":false,"given":"Olivia M.","family":"Stransky","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, School of Medicine University of Pittsburgh Pittsburgh Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Judy C.","family":"Chang","sequence":"additional","affiliation":[{"name":"Department of Obstetrics and Gynecology, School of Medicine University of Pittsburgh Pittsburgh Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ashley","family":"Deal","sequence":"additional","affiliation":[{"name":"Carnegie Mellon University Pittsburgh Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Raelynn","family":"O'Leary","sequence":"additional","affiliation":[{"name":"Carnegie Mellon University Pittsburgh Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rhiannon","family":"Phillips","sequence":"additional","affiliation":[{"name":"Cardiff Metropolitan University Cardiff UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3916-8260","authenticated-orcid":false,"given":"Traci M.","family":"Kazmerski","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, School of Medicine University of Pittsburgh Pittsburgh Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,12,22]]},"reference":[{"key":"e_1_2_10_2_1","unstructured":"Cystic Fibrosis Foundation Patient Registry Report 2022 [Internet]. Cystic Fibrosis Foundation: 2023 September [cited 2024 July 09].https:\/\/www.cff.org\/media\/31216\/download."},{"key":"e_1_2_10_3_1","unstructured":"Cystic Fibrosis Foundation Patient Registry Highlights 2023[Internet]. Cystic Fibrosis Foundation: 2024 [cited 2024 July 09].https:\/\/www.cff.org\/media\/33636\/download."},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/ppul.25620"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.chest.2021.07.024"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jogn.2016.08.011"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2022.09.013"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2023.10.023"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10995-016-2181-z"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2017.07.017"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2023.10.003"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1177\/23743735221077527"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2019-3150"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1002\/14651858.CD012578.pub2"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2023.02.007"},{"key":"e_1_2_10_16_1","unstructured":"Cystic Fibrosis Foundation Community Voice accessed May 20 2025 https:\/\/www.cff.org\/get-involved\/community-voice."},{"key":"e_1_2_10_17_1","volume-title":"Doing Qualitative Research","author":"Crabtree B. F.","year":"1999"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.adolescence.2020.07.014"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jadohealth.2020.07.036"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1086\/676882"},{"key":"e_1_2_10_21_1","unstructured":"Cystic Fibrosis Foundation. CF Peer Connect [Internet]. Cystic Fibrosis Foundation. [cited July 9 2024].https:\/\/www.cff.org\/get-involved\/cf-peer-connect#what-is-cf-peer-connect."},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.2196\/25014"},{"key":"e_1_2_10_23_1","first-page":"48","article-title":"Challenges and Opportunities Facing Medical Education","volume":"122","author":"Densen P.","year":"2011","journal-title":"Transactions of the American Clinical and Climatological Association"}],"container-title":["Pediatric Pulmonology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/ppul.71438","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/ppul.71438","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/ppul.71438","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,2,18]],"date-time":"2026-02-18T14:59:55Z","timestamp":1771426795000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/ppul.71438"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,12]]},"references-count":22,"journal-issue":{"issue":"12","published-print":{"date-parts":[[2025,12]]}},"alternative-id":["10.1002\/ppul.71438"],"URL":"https:\/\/doi.org\/10.1002\/ppul.71438","archive":["Portico"],"relation":{},"ISSN":["8755-6863","1099-0496"],"issn-type":[{"value":"8755-6863","type":"print"},{"value":"1099-0496","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,12]]},"assertion":[{"value":"2025-06-01","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-12-10","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-12-22","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e71438"}}