{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,23]],"date-time":"2026-09-23T06:21:18Z","timestamp":1790144478348,"version":"4.0.1"},"reference-count":40,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2026,1,20]],"date-time":"2026-01-20T00:00:00Z","timestamp":1768867200000},"content-version":"vor","delay-in-days":19,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,1,1]],"date-time":"2026-01-01T00:00:00Z","timestamp":1767225600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100000897","name":"Cystic Fibrosis Foundation","doi-asserted-by":"publisher","award":["QUITTNER21X0\u2010SC"],"award-info":[{"award-number":["QUITTNER21X0\u2010SC"]}],"id":[{"id":"10.13039\/100000897","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Pulmonology"],"published-print":{"date-parts":[[2026,1]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Mental health was identified as a top research priority of the cystic fibrosis (CF) community. The CF Foundation formed a Mental Health Research Priorities Working Group and sought input into specific mental health topics for research prioritization.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      A survey of adults with CF, caregivers\/family members, CF Foundation staff, and multidisciplinary CF healthcare providers elicited feedback regarding prioritization of a range of mental health research topics. We compared quantitative and qualitative responses based on respondent type and demographic characteristics, and analyzed group means using two\u2010sided T\u2010tests with Bonferroni adjustment for multiple comparisons (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009&lt;\u20090.1). We summarized progress to date in addressing the identified research priorities.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Community (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u2009693) and provider (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u2009352) respondents agreed on the top six research priorities rated as \u201cvery important\u201d or \u201ca top priority\u201d: (1) anxiety, including procedural anxiety; (2) depression\/mood disorders; (3) effects of mental health on physical health; (4) effects of treatment burden on mental health; (5) understanding risk factors and prevalence of mental health conditions in people with CF (PWCF); (6) effects of CF on the family, including family planning. Providers rated substance misuse and disordered eating\/body image \u201cvery important\/top priority\u201d more often than community members. Community members rated mental health side effects of CF medications, PTSD\/medical trauma, grief\/bereavement, and survivor's guilt \u201cvery important\/top priority\u201d more often than providers.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The CF Foundation Mental Health Research Prioritization survey yielded a compelling roadmap for CF mental health research. These priorities are shaping initiatives to improve the mental health and well\u2010being of PWCF and their families.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/ppul.71472","type":"journal-article","created":{"date-parts":[[2026,1,21]],"date-time":"2026-01-21T06:27:27Z","timestamp":1768976847000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Stakeholder Priorities for Cystic Fibrosis Mental Health Research: A Community and Provider Survey"],"prefix":"10.1002","volume":"61","author":[{"given":"Anna M.","family":"Georgiopoulos","sequence":"first","affiliation":[{"name":"Department of Child and Adolescent Psychiatry Massachusetts General Hospital Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Beth A.","family":"Smith","sequence":"additional","affiliation":[{"name":"Departments of Psychiatry and Pediatrics Jacobs School of Medicine and Biomedical Sciences Buffalo New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Enid","family":"Aliaj","sequence":"additional","affiliation":[{"name":"Cystic Fibrosis Foundation Bethesda Maryland USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dara","family":"Riva","sequence":"additional","affiliation":[{"name":"Cystic Fibrosis Foundation Bethesda Maryland USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kayli","family":"Davis","sequence":"additional","affiliation":[{"name":"Cystic Fibrosis Foundation Bethesda Maryland USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paula","family":"Lomas","sequence":"additional","affiliation":[{"name":"Cystic Fibrosis Foundation Bethesda Maryland USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katie","family":"Kirby","sequence":"additional","affiliation":[{"name":"Community Advisor St. Louis Missouri USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alexandra \u201cXan\u201d C.H.","family":"Nowakowski","sequence":"additional","affiliation":[{"name":"Department of Geriatrics, Department of Behavioral Sciences and Social Medicine Florida State University College of Medicine Orlando Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melissa","family":"Shiffman","sequence":"additional","affiliation":[{"name":"Community Advisor New York New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura","family":"Tillman","sequence":"additional","affiliation":[{"name":"Community Advisor Northville Michigan USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nivedita","family":"Chaudhary","sequence":"additional","affiliation":[{"name":"Department of Pediatrics Massachusetts General Hospital Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ruobin","family":"Wei","sequence":"additional","affiliation":[{"name":"Department of Pediatrics Massachusetts General Hospital Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael S.","family":"Schechter","sequence":"additional","affiliation":[{"name":"Department of Pediatrics Children's Hospital of Richmond at Virginia Commonwealth University Richmond Virginia USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alexandra L.","family":"Quittner","sequence":"additional","affiliation":[{"name":"Joe DiMaggio Cystic Fibrosis, Pulmonary and Sleep Center Hollywood Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,1,20]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2018.11.010"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1136\/thoraxjnl-2014-205983"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjresp-2024-002606"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2020.07.020"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1136\/thoraxjnl-2015-207488"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1002\/ppul.24949"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/ppul.26400"},{"key":"e_1_2_11_9_1","unstructured":"Cystic Fibrosis Foundation Patient Registry 2023 Annual Data Report. 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