{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,15]],"date-time":"2026-05-15T03:26:30Z","timestamp":1778815590393,"version":"3.51.4"},"reference-count":13,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2026,2,13]],"date-time":"2026-02-13T00:00:00Z","timestamp":1770940800000},"content-version":"vor","delay-in-days":12,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,2,1]],"date-time":"2026-02-01T00:00:00Z","timestamp":1769904000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Pulmonology"],"published-print":{"date-parts":[[2026,2]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Bronchiectasis in children is a neglected chronic suppurative lung disease that imposes a substantial burden on children and adolescents and their families, adversely affecting quality of life (QoL). Incorporating health\u2010related quality of life (HRQoL) tools into routine care can improve outcomes by highlighting disease burden and guiding tailored interventions. This scoping review aimed to identify self\u2010reported questionnaires assessing QoL in pediatric bronchiectasis (PB).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Following the PRISMA extension for scoping reviews, we searched Embase, CINAHL, MEDLINE, Cochrane Central Register of Controlled Trials, PsycINFO, and PubMed for articles published in English since 2000. Pre\u2010specified keywords (QoL, children, adolescents, bronchiectasis, lung disease, patient reported outcome measures (PROM), primary ciliary dyskinesia, cystic fibrosis) and related index terms were used. Studies employing questionnaires or items assessing QoL in children and adolescents with bronchiectasis were included without geographical restrictions. Two authors independently screened and appraised eligible manuscripts.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The search yielded 731 articles, of which 373 were relevant to respiratory diseases. Thirty\u2010three met inclusion criteria, identifying 15 unique HRQoL tools used in bronchiectasis or related conditions. Only five (33%) of these tools were developed for adults with bronchiectasis and no pediatric\u2010specific bronchiectasis HRQoL questionnaires were identified.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This scoping review highlights the absence of any validated, pediatric\u2010specific HRQoL tools for bronchiectasis. Developing such a questionnaire, informed by existing instruments and our review findings, is an urgent priority. A validated tool will enhance understanding of disease impact on children, adolescents and their families, supporting tailored clinical care and research interventions.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/ppul.71490","type":"journal-article","created":{"date-parts":[[2026,2,14]],"date-time":"2026-02-14T06:46:13Z","timestamp":1771051573000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Pediatric Bronchiectasis Quality\u2010of\u2010Life Questionnaire\u2014What Does the Literature Say?"],"prefix":"10.1002","volume":"61","author":[{"ORCID":"https:\/\/orcid.org\/0009-0007-8996-228X","authenticated-orcid":false,"given":"Hollie","family":"Smith","sequence":"first","affiliation":[{"name":"Birmingham Women's and Children's NHS Foundation Trust Birmingham UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5715-7020","authenticated-orcid":false,"given":"Derick","family":"Yates","sequence":"additional","affiliation":[{"name":"Birmingham Women's and Children's NHS Foundation Trust Birmingham UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0837-0308","authenticated-orcid":false,"given":"Prasad","family":"Nagakumar","sequence":"additional","affiliation":[{"name":"Birmingham Women's and Children's NHS Foundation Trust Birmingham UK"},{"name":"Department of Inflammation and Ageing University of Birmingham Birmingham UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0000-0980-4417","authenticated-orcid":false,"given":"Priti","family":"Kenia","sequence":"additional","affiliation":[{"name":"Birmingham Women's and Children's NHS Foundation Trust Birmingham UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2026,2,13]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.3389\/fped.2017.00027"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.chest.2023.06.040"},{"issue":"3","key":"e_1_2_11_4_1","article-title":"Management of Children and Adolescents With Bronchiectasis: Summary of the ERS Clinical Practice Guideline","volume":"17","author":"Chang A. 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