{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,22]],"date-time":"2026-07-22T14:02:01Z","timestamp":1784728921005,"version":"3.55.0"},"reference-count":32,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2026,5,5]],"date-time":"2026-05-05T00:00:00Z","timestamp":1777939200000},"content-version":"vor","delay-in-days":4,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Pulmonology"],"published-print":{"date-parts":[[2026,5]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Advances in cystic fibrosis (CF) treatment have seen more people with CF starting a family. Females with CF (FwCF) have expressed a need for improved reproductive health\u2010related shared decision\u2010making (SDM) with health care providers. This study explored perspectives of FwCF and clinicians on the role and implementation of SDM tools in CF reproductive health care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted qualitative semi\u2010structured interviews with FwCF and clinicians. We recruited clinicians through professional networks and FwCF via a previous study and social media. Interviews explored experiences of SDM related to reproductive health. Participants were given examples of SDM tools and asked to consider their utility within CF care. We analyzed interview transcripts using an inductive approach, identifying key themes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Six FwCF and 23 clinicians participated. Four themes were identified: Perceived usefulness of an SDM approach for CF reproductive health, Role of tools in facilitating SDM, Considerations for SDM tool development, and Implementation of SDM in routine CF care. Participants saw information provision as key to SDM, enhancing patient confidence to initiate and engage in conversations. Participants considered SDM tools helpful at three stages: preparing for consultations, facilitating in\u2010consultation communication, and supporting post\u2010consultation reflection and discussion. Trustworthy content was key to engagement. Participants felt reproductive health conversations should start in adolescence and recur throughout the life course. Clinicians highlighted the need for a service\u2010wide culture supporting SDM.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Both groups supported early and ongoing reproductive health\u2010related SDM. Further research should evaluate CF\u2010specific reproductive health SDM interventions that build confidence, skills, and foster a health\u2010service culture supportive of SDM.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/ppul.71643","type":"journal-article","created":{"date-parts":[[2026,5,5]],"date-time":"2026-05-05T13:50:14Z","timestamp":1777989014000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Considerations for the Role and Implementation of Reproductive Health Shared Decision\u2010Making Interventions for Cystic Fibrosis: A Qualitative Investigation of Perspectives From Clinicians and Females With Cystic Fibrosis"],"prefix":"10.1002","volume":"61","author":[{"given":"Sarah","family":"Brown","sequence":"first","affiliation":[{"name":"School of Sport and Health Sciences, Cardiff Metropolitan University Cardiff UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Denitza","family":"Williams","sequence":"additional","affiliation":[{"name":"Division of Population Medicine School of Medicine, Cardiff University Cardiff UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jamie","family":"Duckers","sequence":"additional","affiliation":[{"name":"All Wales Adult CF Centre, Cardiff and Vale University Health Board Cardiff UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Traci M.","family":"Kazmerski","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Pittsburgh School of Medicine Pittsburgh USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2274-0005","authenticated-orcid":false,"given":"Olivia M.","family":"Stransky","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Pittsburgh School of Medicine Pittsburgh USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Caitlin","family":"Mason","sequence":"additional","affiliation":[{"name":"School of Sport and Health Sciences, Cardiff Metropolitan University Cardiff UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6176-2573","authenticated-orcid":false,"given":"Alexis","family":"Bennett","sequence":"additional","affiliation":[{"name":"School of Sport and Health Sciences, Cardiff Metropolitan University Cardiff UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer","family":"Ward","sequence":"additional","affiliation":[{"name":"School of Sport and Health Sciences, Cardiff Metropolitan University Cardiff UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Taylor\u2010Robinson","sequence":"additional","affiliation":[{"name":"Department of Public Health Policy and Systems, University of Liverpool Liverpool UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7903-8770","authenticated-orcid":false,"given":"Oluwaseun B.","family":"Esan","sequence":"additional","affiliation":[{"name":"Department of Public Health Policy and Systems, University of Liverpool Liverpool UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shantini","family":"Paranjothy","sequence":"additional","affiliation":[{"name":"Aberdeen Centre for Health Data Science, Institute of Applied Health Sciences, University of Aberdeen Aberdeen UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniela","family":"Schl\u00fceter","sequence":"additional","affiliation":[{"name":"Department of Public Health Policy and Systems, University of Liverpool Liverpool UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rhiannon","family":"Phillips","sequence":"additional","affiliation":[{"name":"School of Sport and Health Sciences, Cardiff Metropolitan University Cardiff 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Thinking of Starting a Family? A Guide for Adults With Cystic Fibrosis and Their Partners. 2016."},{"key":"e_1_2_10_20_1","unstructured":"A. M.O'Connor D.Stacey andT.Jacobson \u201cOttawa Personal Decision Guide \u201d (2015):1\u20132 accessed September 2 2024 http:\/\/decisionaid.ohri.ca\/docs\/das\/opdg.pdf."},{"key":"e_1_2_10_21_1","unstructured":"J.Duckers D.Taylor\u2010Robinson S.Paranjothy et al. CF PROSPER accessed September 2 2024 https:\/\/cfprosper.yolasite.com\/."},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732315617444"},{"key":"e_1_2_10_23_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40814-019-0425-6"},{"key":"e_1_2_10_24_1","doi-asserted-by":"crossref","unstructured":"V.BraunandV.Clarke. Thematic Analysis: A Practical Guide. 1st ed. 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Standards for the Clinical Care of Children and Adults With Cystic Fibrosis in the UK. 2024."},{"key":"e_1_2_10_33_1","doi-asserted-by":"crossref","unstructured":"S.Litzkendorf M.Frank A.Babac D.Rosenfeldt F.Schauer andT.Hartz. Use and Importance of Different Information Sources Among Patients with Rare Diseases and Their Relatives Over Time: A Qualitative Study. 2020:1\u201314; 00.","DOI":"10.1186\/s12889-020-08926-9"}],"container-title":["Pediatric Pulmonology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/ppul.71643","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/ppul.71643","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/ppul.71643","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,7,22]],"date-time":"2026-07-22T13:10:49Z","timestamp":1784725849000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/ppul.71643"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5]]},"references-count":32,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2026,5]]}},"alternative-id":["10.1002\/ppul.71643"],"URL":"https:\/\/doi.org\/10.1002\/ppul.71643","archive":["Portico"],"relation":{},"ISSN":["8755-6863","1099-0496"],"issn-type":[{"value":"8755-6863","type":"print"},{"value":"1099-0496","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,5]]},"assertion":[{"value":"2025-09-01","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-04-20","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-05-05","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e71643"}}