{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T05:19:44Z","timestamp":1788239984321,"version":"build-2803163510"},"reference-count":21,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2026,8,13]],"date-time":"2026-08-13T00:00:00Z","timestamp":1786579200000},"content-version":"vor","delay-in-days":12,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,8,1]],"date-time":"2026-08-01T00:00:00Z","timestamp":1785542400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Pulmonology"],"published-print":{"date-parts":[[2026,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Gastrostomies are used to support nutritional adequacy, growth and lung function in people with Cystic Fibrosis (CF). Adults with CF living with a gastrostomy face unique challenges due to the time and length of placement often being inserted in childhood and extending through to adulthood. In the era of CF modulator therapies removal of gastrostomies is increasingly being contemplated, and our aim was to understand experiences and perspectives of adults with CF who have lived with a gastrostomy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This was a single\u2010centre qualitative study in adults with CF who have lived with a gastrostomy. All semi\u2010structured interviews were audio recorded, transcribed and analyzed inductively using grounded theory methodology. Data saturation was reached when no new codes emerged. Findings were summarized into major conceptual themes. Participant demographics and medical history were obtained.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>In total, thirteen participants completed semi\u2010structured interviews. Analyzes revealed four main themes in adults with CF who have lived with a gastrostomy (1) Psychological (i.e. body image, embarrassment, isolating\/social stigma, acceptance\/adjustment), (2) Pain &amp; physical concerns (i.e. general pain, hyper granulation, leaking), (3) Social (i.e. relationships and navigating social conversations), and (4) Functionality.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Our study explored lived experiences of adults with CF and a gastrostomy. We found there was significant psychological and social impact of growing up with a gastrostomy, highlighting the need for clinicians to provide holistic support that addresses both physical and mental challenges of long\u2010term gastrostomy care for adults with CF.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/ppul.71781","type":"journal-article","created":{"date-parts":[[2026,8,13]],"date-time":"2026-08-13T08:07:57Z","timestamp":1786608477000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Exploring Longterm Gastrostomy Use in Adults With Cystic Fibrosis"],"prefix":"10.1002","volume":"61","author":[{"ORCID":"https:\/\/orcid.org\/0009-0004-6720-307X","authenticated-orcid":false,"given":"Felicity","family":"Loel","sequence":"first","affiliation":[{"name":"Department of Nutrition and Dietetics, and Adult Cystic Fibrosis Centre Accredited Practicing Dietitian, The Prince Charles Hospital Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0001-9983-6785","authenticated-orcid":false,"given":"Tracy","family":"McMahon","sequence":"additional","affiliation":[{"name":"Clinical Nurse, Adult Cystic Fibrosis Centre, The Prince Charles Hospital Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8553-4786","authenticated-orcid":false,"given":"Angela G.","family":"Matson","sequence":"additional","affiliation":[{"name":"Department of Nutrition and Dietetics, and Adult Cystic Fibrosis Centre Accredited Practicing Dietitian, The Prince Charles Hospital Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shanal","family":"Kumar","sequence":"additional","affiliation":[{"name":"Endocrinologist, Adult Cystic Fibrosis Centre, The Prince Charles Hospital Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8945-1531","authenticated-orcid":false,"given":"Daniel","family":"Smith","sequence":"additional","affiliation":[{"name":"Clinical Director of Cystic Fibrosis and Bronchiectasis Services, Thoracic and Cystic Fibrosis Physician, Adult Cystic Fibrosis Centre, The Prince Charles Hospital Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,8,13]]},"reference":[{"key":"e_1_2_12_2_1","unstructured":"N.Saxby C.Painter A.Kench S.King T.Crowder andN.van derHaak and the Australian and New Zealand Cystic Fibrosis Nutrition Guideline Authorship Group (2017) \u201cNutrition Guidelines for Cystic Fibrosis in Australia and New Zealand\u201d ed. Scott C. Bell Thoracic Society of Australia and New Zealand Sydney."},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2024.01.007"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-230X-12-126"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.1136\/eb-2016-102306"},{"key":"e_1_2_12_7_1","volume-title":"Hypergranulation: A Clinician's Guide [Internet]","author":"Agency for Clinical Innovation","year":"2025"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.1136\/thoraxjnl-2014-205983"},{"key":"e_1_2_12_9_1","doi-asserted-by":"publisher","DOI":"10.1037\/11860-000"},{"issue":"340","key":"e_1_2_12_10_1","first-page":"2","article-title":"Adolescents With Diet\u2010Related Chronic Health Conditions (DRCHCs) and Unique Risk for Development of Eating Pathology","volume":"05","author":"David J.","year":"2017","journal-title":"Journal of Child and Adolescent Behavior"},{"key":"e_1_2_12_11_1","doi-asserted-by":"publisher","DOI":"10.2147\/AHMT.S68344"},{"key":"e_1_2_12_12_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-031-09512-2_9"},{"key":"e_1_2_12_13_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsv024"},{"issue":"4","key":"e_1_2_12_14_1","article-title":"Long\u2010Term Outcomes and Caregiver Perspectives of Percutaneous Endoscopic Gastrostomy: A Study From a Tertiary Care Hospital in Pakistan","volume":"16","author":"Khan M. 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