{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,14]],"date-time":"2026-10-14T07:49:55Z","timestamp":1791964195061,"version":"4.3.4"},"reference-count":18,"publisher":"Wiley","issue":"10","license":[{"start":{"date-parts":[[2026,10,14]],"date-time":"2026-10-14T00:00:00Z","timestamp":1791936000000},"content-version":"vor","delay-in-days":13,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T00:00:00Z","timestamp":1790812800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100000897","name":"Cystic Fibrosis Foundation","doi-asserted-by":"publisher","award":["002638321\u2010Hjelm"],"award-info":[{"award-number":["002638321\u2010Hjelm"]}],"id":[{"id":"10.13039\/100000897","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Pulmonology"],"published-print":{"date-parts":[[2026,10]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Managing cystic fibrosis (CF) requires balancing medical treatments with age\u2010appropriate activities and responsibilities. Educational success and attainment are predictors of future health and functional outcomes later in life. To optimize educational functioning and provide tailored support, it is essential to understand the unique perspectives and needs of people with CF (PwCF) and their caregivers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A cross\u2010sectional, survey\u2010based study was conducted in August 2024. The Cystic Fibrosis Foundation distributed the survey electronically via the Community Voice platform, and accredited CF programs distributed the survey to their local families.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Survey respondents included 146 PwCF, caregivers and caregiver\u2010PwCF pairs, representing PwCF ages ranging from 2 to 21. Results indicated that PwCF and their caregivers value support from the CF care team to address educational challenges, including frequent absences due to medical appointments, obtaining needed accommodations (i.e., medications and bathroom passes), managing infection control, and the impact of CF\u2010related health issues on academic performance.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This study identifies common school\u2010related issues faced by PwCF and caregivers that warrant targeted and proactive attention to support academic achievement and wellbeing. Caregivers and PwCF feel comfortable addressing school\u2010related issues with CF care teams and prefer the care team to initiate conversations about school. Study results emphasize the benefit of having a centralized and comprehensive CF\u2010specific repository that can be easily accessed by care teams to proactively provide tailored resources and information to reduce the burden of school\u2010related issues and consequently promote improved quality of life.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/ppul.71870","type":"journal-article","created":{"date-parts":[[2026,10,14]],"date-time":"2026-10-14T07:42:58Z","timestamp":1791963778000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Navigating School While Living With Cystic Fibrosis: Barriers and Support Strategies From the Patient and Family Perspective"],"prefix":"10.1002","volume":"61","author":[{"given":"Katelyn","family":"Heimbruch","sequence":"first","affiliation":[{"name":"Pediatric Residency Program, Cincinnati Children's Hospital Cincinnati Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Strong","sequence":"additional","affiliation":[{"name":"Cincinnati Children's Hospital Center for School Services and Education Research Cincinnati Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0006-4310-3503","authenticated-orcid":false,"given":"Matt","family":"Wackler","sequence":"additional","affiliation":[{"name":"Division of Pulmonary Medicine, Cincinnati Children's Hospital Cincinnati Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-4738-3188","authenticated-orcid":false,"given":"Marissa","family":"Taylor","sequence":"additional","affiliation":[{"name":"Cystic Fibrosis Foundation Bethesda Maryland USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Qing","family":"Duan","sequence":"additional","affiliation":[{"name":"Division of Biostatistics and Epidemiology, Cincinnati Children's Hospital Cincinnati Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4347-7397","authenticated-orcid":false,"given":"Stephanie S.","family":"Filigno","sequence":"additional","affiliation":[{"name":"Division of Pulmonary Medicine, Cincinnati Children's Hospital Cincinnati Ohio USA"},{"name":"Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Cincinnati Ohio USA"},{"name":"Department of Pediatrics University of Cincinnati College of Medicine Cincinnati Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4474-8021","authenticated-orcid":false,"given":"Michelle","family":"Hjelm","sequence":"additional","affiliation":[{"name":"Division of Pulmonary Medicine, Cincinnati Children's Hospital Cincinnati Ohio USA"},{"name":"Department of Pediatrics University of Cincinnati College of Medicine Cincinnati Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,10,14]]},"reference":[{"issue":"1","key":"e_1_2_11_2_1","doi-asserted-by":"crossref","first-page":"65","DOI":"10.1016\/S2213-2600(19)30337-6","article-title":"The Future of Cystic Fibrosis Care: A Global Perspective","volume":"8","author":"Bell S. 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