{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,26]],"date-time":"2026-10-26T16:32:31Z","timestamp":1793032351084,"version":"4.5.0"},"reference-count":55,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2026,7,14]],"date-time":"2026-07-14T00:00:00Z","timestamp":1783987200000},"content-version":"vor","delay-in-days":13,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T00:00:00Z","timestamp":1782864000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pulm. circ."],"published-print":{"date-parts":[[2026,7]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:p>\n                    Selection of therapy for pulmonary arterial hypertension (PAH) requires tradeoffs among disease severity, therapeutic benefit, adverse effects, treatment burden, quality of life, and patient values. Although professional societies endorse shared decision\u2010making (SDM) in this context, empirical data describing SDM in PAH are limited. We conducted a survey to characterize SDM during PAH treatment selection from both patient and clinician perspectives. Using the Ottawa Decision\u2010Making Framework, we administered parallel surveys to patients and clinicians at the Pulmonary Hypertension Association's 2022 International PH Conference (Atlanta, GA). Survey items assessed decisional characteristics including role preference, confidence, self\u2010efficacy, decisional support and the factors considered most important during PAH therapy selection. Surveys were administered electronically and analyses were performed using Python. A total of 89 participants (51 patients, 38 clinicians) completed the survey. Preference for SDM was nearly universal among patients (96%) and clinicians (95%). However, priorities differed significantly. Patients more frequently emphasized quality of life (81% vs. 54%) and efficacy of therapy (42% vs. 29%), whereas clinicians prioritized risk of disease progression (67% vs. 30%; all\n                    <jats:italic>p<\/jats:italic>\n                    \u2009&lt;\u20090.01). Although 92% of clinicians reported eliciting patient values, only 75% of patients perceived that this occurred (\n                    <jats:italic>p<\/jats:italic>\n                    \u2009=\u20090.20). Decisional conflict, defined by a SURE score of less than 4, was reported in 39% of patients. Despite widespread support for SDM, there is a discordance in treatment priorities between patients and clinicians and a high level of decisional conflict among patients suggesting a gap between intent and execution of SDM.\n                  <\/jats:p>","DOI":"10.1002\/pul2.70364","type":"journal-article","created":{"date-parts":[[2026,7,14]],"date-time":"2026-07-14T09:50:24Z","timestamp":1784022624000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Shared Decision\u2010Making During Pulmonary Arterial Hypertension Therapy Selection: A Patient and Clinician Survey"],"prefix":"10.1002","volume":"16","author":[{"given":"Paresh C.","family":"Giri","sequence":"first","affiliation":[{"name":"Inland Empire Lung and Sleep Institute Yucaipa California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jeanette","family":"Merrill\u2010Henry","sequence":"additional","affiliation":[{"name":"Respiratory Care Department Loma Linda University Medical Center Loma Linda California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tiffany","family":"Rajah","sequence":"additional","affiliation":[{"name":"Loma Linda University School of Medicine Loma Linda California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3266-3389","authenticated-orcid":false,"given":"Donald R.","family":"Sullivan","sequence":"additional","affiliation":[{"name":"Division of Pulmonary, Allergy and Critical Care Medicine Oregon Health &amp; Science University Portland Oregon USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Udochukwu","family":"Oyoyo","sequence":"additional","affiliation":[{"name":"Department of Dental Education Services Loma Linda University School of Dentistry Loma Linda California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katrina","family":"Barry","sequence":"additional","affiliation":[{"name":"A Patient with Pulmonary Arterial Hypertension Patient Moderator with The Pulmonary Vascular Research Institute Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6199-1707","authenticated-orcid":false,"given":"Jean M.","family":"Elwing","sequence":"additional","affiliation":[{"name":"University of Cincinnati Cincinnati Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vijay P.","family":"Balasubramanian","sequence":"additional","affiliation":[{"name":"Valley Advanced Lung Diseases Institute Fresno California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,7,14]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.7326\/0003-4819-107-2-216"},{"key":"e_1_2_13_3_1","doi-asserted-by":"publisher","DOI":"10.1164\/rccm.202009-3698OC"},{"key":"e_1_2_13_4_1","doi-asserted-by":"publisher","DOI":"10.1183\/16000617.0063-2015"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1177\/20458940211046761"},{"key":"e_1_2_13_6_1","doi-asserted-by":"publisher","DOI":"10.1183\/13993003.01919-2018"},{"key":"e_1_2_13_7_1","doi-asserted-by":"publisher","DOI":"10.1002\/pul2.12077"},{"key":"e_1_2_13_8_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40273-024-01427-2"},{"key":"e_1_2_13_9_1","doi-asserted-by":"publisher","DOI":"10.1183\/16000617.0078-2016"},{"key":"e_1_2_13_10_1","article-title":"2022 ESC\/ERS Guidelines for the Diagnosis and Treatment of Pulmonary Hypertension","volume":"43","author":"Humbert M.","year":"2022","journal-title":"European Respiratory Journal"},{"key":"e_1_2_13_11_1","doi-asserted-by":"publisher","DOI":"10.1183\/13993003.01325-2024"},{"key":"e_1_2_13_12_1","unstructured":"Agency for Healthcare Research and Quality.https:\/\/www.ahrq.gov\/sdm\/about\/index.html?utm_source."},{"key":"e_1_2_13_13_1","doi-asserted-by":"publisher","DOI":"10.1183\/13993003.01129-2024"},{"key":"e_1_2_13_14_1","doi-asserted-by":"publisher","DOI":"10.1161\/CIR.0000000000001162"},{"key":"e_1_2_13_15_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-012-2077-6"},{"key":"e_1_2_13_16_1","doi-asserted-by":"publisher","DOI":"10.2106\/JBJS.21.00709"},{"key":"e_1_2_13_17_1","doi-asserted-by":"publisher","DOI":"10.1370\/afm.393"},{"key":"e_1_2_13_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2022.03.025"},{"issue":"9","key":"e_1_2_13_19_1","article-title":"Interventions for Improving the Adoption of Shared Decision Making by Healthcare Professionals","volume":"12","author":"Legare F.","year":"2014","journal-title":"Cochrane Database of Systematic Reviews"},{"key":"e_1_2_13_20_1","doi-asserted-by":"publisher","DOI":"10.1002\/pul2.12441"},{"key":"e_1_2_13_21_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638237.2014.954695"},{"key":"e_1_2_13_22_1","doi-asserted-by":"publisher","DOI":"10.1177\/20458940211015813"},{"key":"e_1_2_13_23_1","doi-asserted-by":"publisher","DOI":"10.7748\/ns.24.38.40.s48"},{"key":"e_1_2_13_24_1","doi-asserted-by":"publisher","DOI":"10.4137\/CCRPM.S18586"},{"key":"e_1_2_13_25_1","doi-asserted-by":"publisher","DOI":"10.1097\/JXX.0000000000001225"},{"key":"e_1_2_13_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.amjcard.2023.11.041"},{"key":"e_1_2_13_27_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jval.2023.10.012"},{"key":"e_1_2_13_28_1","doi-asserted-by":"publisher","DOI":"10.1177\/0272989X20911870"},{"key":"e_1_2_13_29_1","unstructured":"Ottawa Decision Support Framework. 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