{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T16:58:34Z","timestamp":1785776314202,"version":"3.56.0"},"reference-count":19,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2026,5,19]],"date-time":"2026-05-19T00:00:00Z","timestamp":1779148800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,5,19]],"date-time":"2026-05-19T00:00:00Z","timestamp":1779148800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100014653","name":"Manchester Biomedical Research Centre","doi-asserted-by":"publisher","award":["NIHR203308"],"award-info":[{"award-number":["NIHR203308"]}],"id":[{"id":"10.13039\/100014653","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Respirology"],"published-print":{"date-parts":[[2026,8]]},"abstract":"ABSTRACT<\/jats:title>\n \n Background and Objective<\/jats:title>\n Inducible laryngeal obstruction (ILO) is a laryngeal disorder that intermittently affects breathing. A psychometrically robust patient\u2010reported outcome measure for ILO is required. We have generated items from individual patient interviews and a scoping review. The objective of this study is to ascertain which items covering the physical, social, and psychological impact of ILO were relevant for measuring the impact of living with ILO to inform a new patient\u2010reported outcome measure.<\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n An international two\u2010round online Delphi study was conducted amongst a group including patients with ILO and relevant health care professionals. Participants judged the relevance of 80 items about the impact of ILO on a 9\u2010point scale. We defined consensus as a minimum of 70% of participants rating items as 7\u20139. Participants were asked to give a reason for their ratings.<\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n Forty\u2010six participants registered for the Delphi survey, with 37\/46 (80%) and 29\/37 (78%) completing rounds one and two, respectively. Participants were patients living with ILO (63%), respiratory physicians (10%), speech and language therapists (16%), physiotherapists (5%), a psychologist (3%) and a nurse (3%). Consensus was reached after round two for 37\/80 (46%) to include, 11\/80 (14%) not important to include and 32\/80 (40%) being important but not critical to include [therefore 43\/80 (54%) excluded].<\/jats:p>\n <\/jats:sec>\n \n Conclusion<\/jats:title>\n \n Stakeholders agreed on 37 items that should be included in a PROM for ILO. Further studies to establish the psychometrics of a PROM based on these items are required.\n \n \n image<\/jats:alt-text>\n <\/jats:graphic>\n <\/jats:boxed-text>\n <\/jats:p>\n <\/jats:sec>","DOI":"10.1002\/resp.70262","type":"journal-article","created":{"date-parts":[[2026,5,19]],"date-time":"2026-05-19T23:18:37Z","timestamp":1779232717000},"page":"840-847","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Preliminary Development of a Patient\u2010Reported Outcome Measure for Inducible Laryngeal Obstruction: Findings From a Delphi Process"],"prefix":"10.1002","volume":"31","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4128-9651","authenticated-orcid":false,"given":"Siobhan","family":"Ludlow","sequence":"first","affiliation":[{"name":"Manchester University NHS Foundation Trust Manchester UK"},{"name":"University of Manchester Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephen","family":"Fowler","sequence":"additional","affiliation":[{"name":"Manchester University NHS Foundation Trust Manchester UK"},{"name":"University of Manchester Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jamie","family":"Kirkham","sequence":"additional","affiliation":[{"name":"University of Manchester Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lucie","family":"Byrne\u2010Davis","sequence":"additional","affiliation":[{"name":"University of Manchester Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,5,19]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1183\/13993003.02221-2016"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1164\/rccm.201606-1249CI"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/cea.12550"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/cea.13715"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1177\/0194599815600144"},{"key":"e_1_2_11_7_1","first-page":"1","article-title":"The Impact of Living With Inducible Laryngeal Obstruction","volume":"0","author":"Ludlow S.","year":"2025","journal-title":"Clinical and Experimental Allergy"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0307002"},{"issue":"4","key":"e_1_2_11_9_1","first-page":"A261","article-title":"Quality of Life in Inducible Laryngeal Obstruction; a Questionnaire Pilot","volume":"73","author":"Bassil L.","year":"2018","journal-title":"Thorax"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/B978-0-323-06551-1.00002-6"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaci.2021.09.027"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jvoice.2013.12.017"},{"issue":"1","key":"e_1_2_11_13_1","first-page":"1","article-title":"A Scoping Review to Map Health Outcomes in Individuals With Inducible Laryngeal Obstruction","volume":"61","author":"Ludlow S.","year":"2025","journal-title":"International Journal of Language and Communication Disorders"},{"key":"e_1_2_11_14_1","volume-title":"International Classification of Functioning, Disability, and Health (ICF)","author":"World Health Organisation","year":"2001"},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.1002\/9781444392029"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216317690685"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jbi.2008.08.010"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2288-7-52"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2648.2000.t01-1-01569.x"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.1097\/OPX.0000000000000001"}],"container-title":["Respirology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/resp.70262","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/resp.70262","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/resp.70262","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T16:34:40Z","timestamp":1785774880000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/resp.70262"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5,19]]},"references-count":19,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2026,8]]}},"alternative-id":["10.1002\/resp.70262"],"URL":"https:\/\/doi.org\/10.1002\/resp.70262","archive":["Portico"],"relation":{},"ISSN":["1323-7799","1440-1843"],"issn-type":[{"value":"1323-7799","type":"print"},{"value":"1440-1843","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,5,19]]},"assertion":[{"value":"2025-11-12","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-05-01","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-05-19","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}