{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,28]],"date-time":"2026-09-28T22:06:44Z","timestamp":1790633204362,"version":"4.1.0"},"reference-count":16,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2007,2,7]],"date-time":"2007-02-07T00:00:00Z","timestamp":1170806400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Statistics in Medicine"],"published-print":{"date-parts":[[2007,4,15]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>The World Trade Center Health Registry (WTCHR) is a database for following people who were exposed to the disaster of 11 September 2001. Hundreds of thousands of people were exposed to the immense cloud of dust and debris, the indoor dust, the fumes from persistent fires, and the mental trauma of the terrorist attacks on the WTC on 9\/11. The purpose of the WTCHR is to evaluate the potential short\u2010 and long\u2010term physical and mental health effects of the disaster. The definitions of the exposed groups are broad and defined based on an understanding of which groups had the highest exposures to the WTC disaster and its aftermath. The four exposure groups include rescue and recovery workers, residents, students and school staff, and building occupants and passersby in Lower Manhattan.<\/jats:p><jats:p>While one goal of the WTCHR was to maximize coverage overall and for each exposure group, another was to ensure equal representation within exposure groups. Because of the multiple sample types pursued, several approaches were required to determine eligibility. Estimates of the number of eligible persons in each of the exposed populations were based on the best available information including Census, entity\u2010specific employment figures, and public and private school enrollment data, among other publicly available sources. To address issues of undercoverage and overcoverage a variety of methods were assessed or applied, including a capture\u2013recapture analyses test of overlapping sample building list sources and automated deduplication of sample records.<\/jats:p><jats:p>Estimates of the true eligible population indicate that over 400000 unique individuals were eligible for the baseline health survey. Interviewer\u2010administered surveys were completed with more than 71000 persons, resulting in an overall enrollment rate of approximately 17 per cent. Coverage was highest among rescue and recovery workers, followed by residents, students and school staff, and building occupants. Both the accuracy of coverage estimates and the raw number and representativeness of enrollees were maximized by our approach to coverage. In designing a registry which relies on multiple pathways and sources of data to build the sample, it is important to develop a comprehensive approach that considers all sources of error and minimizes bias that may be introduced through the methodology. Copyright \u00a9 2007 John Wiley &amp; Sons, Ltd.<\/jats:p>","DOI":"10.1002\/sim.2806","type":"journal-article","created":{"date-parts":[[2007,2,7]],"date-time":"2007-02-07T12:50:31Z","timestamp":1170852631000},"page":"1688-1701","source":"Crossref","is-referenced-by-count":92,"title":["Measuring and maximizing coverage in the World Trade Center Health Registry"],"prefix":"10.1002","volume":"26","author":[{"given":"Joe","family":"Murphy","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robert M.","family":"Brackbill","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lisa","family":"Thalji","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melissa","family":"Dolan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paul","family":"Pulliam","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Deborah J.","family":"Walker","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2007,2,7]]},"reference":[{"key":"e_1_2_1_2_2","doi-asserted-by":"publisher","DOI":"10.1097\/00008526-199500730-00008"},{"key":"e_1_2_1_3_2","volume-title":"Survey Sampling","author":"Kish L","year":"1993"},{"key":"e_1_2_1_4_2","doi-asserted-by":"publisher","DOI":"10.1002\/0471725277"},{"key":"e_1_2_1_5_2","unstructured":"U.S. Bureau of the Census. Introduction to Census 2000 Data Products. Washington DC.http:\/\/www.census.gov\/prod\/2001pubs\/mso\u201001icdp.pdf#search=%22introduction%20to%20census%202000%20data%20products%22(accessed 10\/11\/06) 2003."},{"key":"e_1_2_1_6_2","unstructured":"RobinsonJG. ESCAP II: Demographic Analysis Results Executive Steering Committee for A.C.E. Policy II. U.S. Bureau of the Census Report 1 October 13 2001.http:\/\/www.census.gov\/dmd\/www\/pdf\/Report1.PDF#search=%22%22ESCAP%20II%3A%20Demographic%20Analysis%20Results%E2%80%9D%22(accessed 10\/12\/06) 2001."},{"key":"e_1_2_1_7_2","unstructured":"U.S. Bureau of the Census. Technical Assessment of A.C.E. Revision II. Washington DC.http:\/\/www.census.gov\/dmd\/www\/ace2.html(accessed 10\/11\/06) 2003."},{"key":"e_1_2_1_8_2","volume-title":"102 Minutes: The Untold Story of the Fight to Survive Inside the Twin Towers","author":"Dwyer J","year":"2005"},{"key":"e_1_2_1_9_2","unstructured":"AverillJD. World Trade Center Investigation Status Project 7: Occupant Behavior Egress and Emergency Communications.http:\/\/wtc.nist.gov\/pubs\/June2004OccupantBehaviorEmergencyCommunications.pdf(accessed 10\/4\/06) 2004."},{"key":"e_1_2_1_10_2","doi-asserted-by":"publisher","DOI":"10.1146\/annurev.so.12.080186.002153"},{"key":"e_1_2_1_11_2","unstructured":"Urbanomics. Post September 11th Impacts: Technical Memorandum. Prepared for the New York Metropolitan Transportation Council (NYMTC).http:\/\/www.nycp.org\/reports\/ImpactStudy.pdf#search=%22urbanomics%20post%20september%2011th%20impacts%22(accessed 10\/11\/06) 2003."},{"key":"e_1_2_1_12_2","unstructured":"Choicemaker Technologies Incorporated.http:\/\/www.choicemaker.com\/(accessed 10\/11\/06)."},{"key":"e_1_2_1_13_2","unstructured":"MurphyJ PulliamP LucasR.Sample Frame Deduplication in the World Trade Center Health Registry: minimizing overcoverage and cost. Proceedings of the American Statistical Association Section on Survey Research Methods [CD\u2010ROM] Alexandria VA American Statistical Association 2004;4072\u20134076."},{"key":"e_1_2_1_14_2","unstructured":"National Institute for Standards and Technology. NIST Interim Report on Analysis of First\u2010Person Accounts from Survivors of the WTC Evacuation on 11 September 2001: Appendix O: Interim Report on Telephone Interview. 20 October 2004; Washington DC.http:\/\/wtc.nist.gov\/progress_report_june04\/appendixn.pdf 2004."},{"key":"e_1_2_1_15_2","volume-title":"Methodological Guidelines to Estimate the Prevalence of Problem Drug Use on the Local Level","author":"Hay G","year":"1999"},{"key":"e_1_2_1_16_2","doi-asserted-by":"publisher","DOI":"10.1136\/ip.6.1.46"},{"key":"e_1_2_1_17_2","unstructured":"MurphyJ BrackbillR SappJHet al.An analysis of nonresponse bias in the World Trade Center Health Registry. 2005 Proceedings of the American Statistical Association Section on Survey Research Methods [CD\u2010ROM] Alexandria VA American Statistical Association 2005."}],"container-title":["Statistics in Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fsim.2806","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/sim.2806","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,13]],"date-time":"2023-09-13T06:07:26Z","timestamp":1694585246000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/sim.2806"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2007,2,7]]},"references-count":16,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2007,4,15]]}},"alternative-id":["10.1002\/sim.2806"],"URL":"https:\/\/doi.org\/10.1002\/sim.2806","archive":["Portico"],"relation":{},"ISSN":["0277-6715","1097-0258"],"issn-type":[{"value":"0277-6715","type":"print"},{"value":"1097-0258","type":"electronic"}],"subject":[],"published":{"date-parts":[[2007,2,7]]}}}