{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,5]],"date-time":"2026-02-05T14:18:16Z","timestamp":1770301096604,"version":"3.49.0"},"reference-count":25,"publisher":"Oxford University Press (OUP)","issue":"3","license":[{"start":{"date-parts":[[2024,10,12]],"date-time":"2024-10-12T00:00:00Z","timestamp":1728691200000},"content-version":"vor","delay-in-days":605,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"This article received no specific grant from any funding agency in the public, commercial, or not-for-profit sectors"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2023,6,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:sec>\n                  <jats:title>Background<\/jats:title>\n                  <jats:p>The German Hairdex quality of life (QoL) instrument is specific to hair and scalp diseases, developed for self-rating and consists of 48 statements divided into five domains: Symptoms, Functioning, Emotions, Self-confidence and Stigmatisation. There was a need of a Swedish reliability tested, validated hair and scalp specific QoL instrument why the German Hairdex was chosen to be translated and reliability tested in a systematic way.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Objectives<\/jats:title>\n                  <jats:p>To make a translation, a reliability test of stability, and validation of the German Hairdex QoL instrument among 100 Swedish patients with a dermatological ICD-10 diagnosis of alopecia areata (AA).<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Methods<\/jats:title>\n                  <jats:p>An eight-step method by Gudmundsson was used as a model with a forward and backward translation and with comments from an expert panel. A statistical test\u2013retest (ICC (2,1)) analysis was made, followed by an internal consistency analysis. A comparison between the German and Swedish Hairdex-S constructs by a principal component analysis was performed.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>The Hairdex-S was very well accepted by patients. The ICC(2,1) test\u2013retest showed a good to excellent correlation of 0.91 (CI [0.85\u20130.95]). Internal consistency was \u03b1 = 0.92. Like the original Hairdex, Hairdex-S showed good factorability with a Kaiser\u2013Meyer\u2013Olkin measure of 0.82 and with one component explaining 70% of the variance: original Hairdex instrument (69%). When tested on patients with AA, the domains Functioning and Emotions had the strongest loadings, followed by Stigmatisation and Self-confidence. Younger AA patients at self-assessment and patients who reported to be younger at the onset of AA, scored statistically significantly higher on the Hairdex-S, indicating an overall lower QoL on domains Emotions and Functioning, respectively.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>The Hairdex-S is very well accepted by AA patients, shows very good psychometric properties, and a very good agreement with the original Hairdex. The Swedish Hairdex instrument can be recommended for evaluation of patients QoL as well as for research purposes.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1002\/ski2.220","type":"journal-article","created":{"date-parts":[[2023,2,16]],"date-time":"2023-02-16T07:30:39Z","timestamp":1676532639000},"source":"Crossref","is-referenced-by-count":4,"title":["The Hairdex Quality of Life Instrument\u2014A Translation and Psychometric Validation in Patients with Alopecia Areata"],"prefix":"10.1093","volume":"3","author":[{"given":"Johan","family":"Fhager","sequence":"first","affiliation":[{"name":"Department of Care Science, Malm\u00f6 University , Malm\u00f6 ,","place":["Sweden"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"\u00c5ke","family":"Svensson","sequence":"additional","affiliation":[{"name":"Department of Dermatology and Venereology, Lund University, Sk\u00e5ne University Hospital , Lund ,","place":["Sweden"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karin","family":"\u00d6rmon","sequence":"additional","affiliation":[{"name":"Department of Care Science, Malm\u00f6 University , Malm\u00f6 ,","place":["Sweden"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tobias W.","family":"Fischer","sequence":"additional","affiliation":[{"name":"Department of Dermatology and Venereology, Kepler University Hospital, Johannes Kepler University , Linz ,","place":["Austria"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karin","family":"Sj\u00f6str\u00f6m","sequence":"additional","affiliation":[{"name":"Department of Care Science, Malm\u00f6 University , Malm\u00f6 ,","place":["Sweden"]}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"286","published-online":{"date-parts":[[2023,2,15]]},"reference":[{"issue":"5","key":"2025010818143428700_ski2220-bib-0001","doi-asserted-by":"publisher","first-page":"1038","DOI":"10.1046\/j.1365-2133.2001.04195.x","article-title":"Strategies of coping and quality of life in women with alopecia","volume":"144","author":"Schmidt","year":"2001","journal-title":"Br J Dermatol"},{"issue":"3","key":"2025010818143428700_ski2220-bib-0002","doi-asserted-by":"publisher","first-page":"210","DOI":"10.1111\/j.1365-2230.1994.tb01167.x","article-title":"Dermatology Life Quality Index (DLQI) \u2013 a simple practical measure for routine clinical use","volume":"19","author":"Finlay","year":"1994","journal-title":"Clin Exp Dermatol"},{"issue":"3","key":"2025010818143428700_ski2220-bib-0003","doi-asserted-by":"publisher","first-page":"424","DOI":"10.1111\/jdv.13985","article-title":"Why quality of life measurement is important in dermatology clinical practice: an expert-based opinion statement by the EADV Task Force on Quality of Life","volume":"31","author":"Finlay","year":"2017","journal-title":"J Eur Acad Dermatol Venereol"},{"issue":"11","key":"2025010818143428700_ski2220-bib-0004","doi-asserted-by":"publisher","first-page":"1433","DOI":"10.1001\/archderm.133.11.1433","article-title":"Improved discriminative and evaluative capability of a refined version of Skindex, a quality-of-life instrument for patients with skin diseases","volume":"133","author":"Chren","year":"1997","journal-title":"Arch Dermatol"},{"key":"2025010818143428700_ski2220-bib-0005","doi-asserted-by":"publisher","first-page":"1614","DOI":"10.1111\/jdv.17370","article-title":"Quality of life measurement in alopecia areata. 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