{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,12]],"date-time":"2026-10-12T16:31:41Z","timestamp":1791822701207,"version":"4.3.4"},"reference-count":18,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2023,5,28]],"date-time":"2023-05-28T00:00:00Z","timestamp":1685232000000},"content-version":"vor","delay-in-days":57,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["P30AG072976"],"award-info":[{"award-number":["P30AG072976"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["P30AG010133"],"award-info":[{"award-number":["P30AG010133"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["NIA U01 AG057195"],"award-info":[{"award-number":["NIA U01 AG057195"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000957","name":"Alzheimer's Association","doi-asserted-by":"publisher","award":["LDRFP\u201021\u2010818464"],"award-info":[{"award-number":["LDRFP\u201021\u2010818464"]}],"id":[{"id":"10.13039\/100000957","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["P30 AG010133"],"award-info":[{"award-number":["P30 AG010133"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["P30 AG072976"],"award-info":[{"award-number":["P30 AG072976"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["R01 AG019771"],"award-info":[{"award-number":["R01 AG019771"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["R01 AG057739"],"award-info":[{"award-number":["R01 AG057739"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["U01 AG024904"],"award-info":[{"award-number":["U01 AG024904"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["R01 LM013463"],"award-info":[{"award-number":["R01 LM013463"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["R01 AG068193"],"award-info":[{"award-number":["R01 AG068193"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["T32 AG071444"],"award-info":[{"award-number":["T32 AG071444"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["U01 AG068057"],"award-info":[{"award-number":["U01 AG068057"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["U01 AG072177"],"award-info":[{"award-number":["U01 AG072177"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["alz-journals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["A&amp;D Transl Res &amp; Clin Interv"],"published-print":{"date-parts":[[2023,4]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Community advisory boards (CABs) and researcher partnerships present a promising opportunity to accelerate enrollment of underrepresented groups (URGs). We outline the framework for how the CAB and researchers at the Indiana Alzheimer's Disease Research Center (IADRC) partnered to accelerate URG participation in AD neuroimaging research.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>CAB and the IADRC researchers partnered to increase the CAB's impact on URG study enrollment through community and research interactions. Community interactions included the CAB collaboratively building a network of URG focused community organizations and collaborating with those URG\u2010focused organizations to host IADRC outreach and recruitment events. Research interactions included direct impact (CAB members referring themselves or close contacts as participants) and strategic impact, mainly by the CAB working with researchers to develop and refine URG focused outreach and recruitment strategies for IADRC and affiliated studies to increase URG representation. We created a database infrastructure to measure how these interactions impacted URG study enrollment.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Out of the 354 URG research referrals made to the IADRC between October 2019 and December 2022, 267 referrals were directly referred by the CAB (\n                      <jats:italic>N<\/jats:italic>\n                      = 36) or from community events in which CAB members organized and\/or volunteered at (\n                      <jats:italic>N<\/jats:italic>\n                      = 231). Out of these 267 referrals, 34 were enrolled in IADRC and 2 were enrolled in Indiana University Longitudinal Early Onset AD Study (IU LEADS). Of note, both studies require the prospective participants to be willing to do MRI and PET scans. As of December 2022, 30 out of the 34 enrolled participants have received a consensus diagnosis; the majority were cognitively normal (64.7%), with the remainder having mild cognitive impairment (17.6%) or early\u2010stage AD (2.9%).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>The IADRC CAB\u2010researcher partnership had a measurable impact on the enrollment of African American\/Black adults in AD neuroimaging studies. Future studies will need to test whether this conceptual model works for other sites and for other URGs.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/trc2.12400","type":"journal-article","created":{"date-parts":[[2023,5,29]],"date-time":"2023-05-29T01:29:20Z","timestamp":1685323760000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["Accelerating diversity in Alzheimer's disease research by partnering with a community advisory board"],"prefix":"10.1002","volume":"9","author":[{"given":"Alex","family":"Pena\u2010Garcia","sequence":"first","affiliation":[{"name":"Marian University College of Osteopathic Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ralph","family":"Richards","sequence":"additional","affiliation":[{"name":"Indiana University Alzheimer's Disease Research Center Community Advisory Board Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mollie","family":"Richards","sequence":"additional","affiliation":[{"name":"Indiana University Alzheimer's Disease Research Center Community Advisory Board Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christopher","family":"Campbell","sequence":"additional","affiliation":[{"name":"Indiana University Alzheimer's Disease Research Center Community Advisory Board Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hank","family":"Mosley","sequence":"additional","affiliation":[{"name":"Indiana University Alzheimer's Disease Research Center Community Advisory Board Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joseph","family":"Asper","sequence":"additional","affiliation":[{"name":"Marian University College of Osteopathic Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Johanne","family":"Eliacin","sequence":"additional","affiliation":[{"name":"Department of Internal General Medicine Indiana University School of Medicine  Indianapolis Indiana USA"},{"name":"Indiana Alzheimer's Disease Research Center Indiana University School of Medicine  Indianapolis Indiana USA"},{"name":"VA HSR&amp;D Center for Health Information and Communication Roudebush VA Medical Center  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Angelina","family":"Polsinelli","sequence":"additional","affiliation":[{"name":"Indiana University Alzheimer's Disease Research Center Community Advisory Board Indiana University School of Medicine  Indianapolis Indiana USA"},{"name":"Department of Neurology Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Liana","family":"Apostolova","sequence":"additional","affiliation":[{"name":"Department of Neurology Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hugh","family":"Hendrie","sequence":"additional","affiliation":[{"name":"Department of Psychiatry Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew","family":"Tackett","sequence":"additional","affiliation":[{"name":"Indiana Alzheimer's Disease Research Center Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Caprice","family":"Elliott","sequence":"additional","affiliation":[{"name":"Indiana Alzheimer's Disease Research Center Indiana University School of Medicine  Indianapolis Indiana USA"},{"name":"Department of Radiology Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Van Heiden","sequence":"additional","affiliation":[{"name":"Indiana Alzheimer's Disease Research Center Indiana University School of Medicine  Indianapolis Indiana USA"},{"name":"Department of Radiology Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sujuan","family":"Gao","sequence":"additional","affiliation":[{"name":"Indiana Alzheimer's Disease Research Center Indiana University School of Medicine  Indianapolis Indiana USA"},{"name":"Department of Biostatistics Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew","family":"Saykin","sequence":"additional","affiliation":[{"name":"Indiana Alzheimer's Disease Research Center Indiana University School of Medicine  Indianapolis Indiana USA"},{"name":"Department of Radiology Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2274-859X","authenticated-orcid":false,"given":"Sophia","family":"Wang","sequence":"additional","affiliation":[{"name":"Indiana Alzheimer's Disease Research Center Indiana University School of Medicine  Indianapolis Indiana USA"},{"name":"Department of Psychiatry Indiana University School of Medicine  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"IADRC CAB","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,5,28]]},"reference":[{"key":"e_1_2_8_2_1","volume-title":"Together we Make the Difference National Strategy for Recruitment and Participation in 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Dement"},{"key":"e_1_2_8_6_1","doi-asserted-by":"crossref","DOI":"10.1002\/alz.051946","article-title":"IDEAS and New IDEAS: amyloid PET in diverse populations","volume":"17","author":"Windon C","year":"2021","journal-title":"Alzheimers Dement"},{"issue":"1","key":"e_1_2_8_7_1","article-title":"Including ethnic minorities in dementia research: Recommendations from a scoping review","volume":"8","author":"Brijnath B","year":"2022","journal-title":"Alzheimers Dement"},{"issue":"10","key":"e_1_2_8_8_1","doi-asserted-by":"crossref","DOI":"10.1002\/alz.039237","article-title":"Strategies to improve dementia clinical research participation at the local level","volume":"16","author":"Bouranis N","year":"2020","journal-title":"Alzheimers Dement"},{"issue":"12","key":"e_1_2_8_9_1","doi-asserted-by":"crossref","first-page":"1734","DOI":"10.1002\/alz.12160","article-title":"Perspective on the \u201cAfrican American participation in Alzheimer disease research: effective strategies\u201d workshop, 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methodology","volume":"17","author":"Apostolova LG","year":"2021","journal-title":"Alzheimers Dement"},{"issue":"2","key":"e_1_2_8_13_1","doi-asserted-by":"crossref","first-page":"755","DOI":"10.18865\/ed.30.S2.755","article-title":"Building and sustaining a community advisory board of African American older adults as the foundation for volunteer research recruitment and retention in health sciences","volume":"30","author":"Mitchell J","year":"2020","journal-title":"Ethn Dis"},{"issue":"1","key":"e_1_2_8_14_1","doi-asserted-by":"crossref","first-page":"88","DOI":"10.1177\/1556264620974898","article-title":"Ethical and methodological considerations for evaluating participant views on Alzheimer's and dementia research","volume":"16","author":"Benson C","year":"2021","journal-title":"J Empir Res Hum Res Ethics"},{"issue":"2","key":"e_1_2_8_15_1","doi-asserted-by":"crossref","first-page":"719","DOI":"10.18865\/ed.30.S2.719","article-title":"Earning the trust of African American communities to increase representation in dementia research","volume":"30","author":"Portacolone E","year":"2020","journal-title":"Ethn Dis"},{"key":"e_1_2_8_16_1","first-page":"751","article-title":"Recruitment and retention of underrepresented populations in Alzheimer's disease research: a systematic review","volume":"5","author":"Gilmore\u2010Bykovskyi AL","year":"2019","journal-title":"Alzheimers Dement"},{"issue":"2","key":"e_1_2_8_17_1","first-page":"78","article-title":"Recruiting older African Americans to brain health and aging research through community engagement: lessons from the African\u2010American brain health initiative at Rutgers university\u2010Newark","volume":"42","author":"Gluck MA","year":"2018","journal-title":"Generations"},{"key":"e_1_2_8_18_1","doi-asserted-by":"crossref","first-page":"125","DOI":"10.3389\/fnagi.2019.00125","article-title":"Addressing disparities in Alzheimer's disease and African\u2010American participation in research: an asset\u2010based community development approach","volume":"11","author":"Green\u2010Harris G","year":"2019","journal-title":"Front Aging Neurosci"},{"issue":"2","key":"e_1_2_8_19_1","doi-asserted-by":"crossref","first-page":"118","DOI":"10.1097\/YCO.0000000000000777","article-title":"The role of memory clinics in the assessment and management of dementia, now and into the future","volume":"35","author":"Mehrani I","year":"2022","journal-title":"Curr Opin Psychiatry"}],"container-title":["Alzheimer's &amp; Dementia: Translational Research &amp; Clinical 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