{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,19]],"date-time":"2026-06-19T11:44:41Z","timestamp":1781869481753,"version":"3.54.5"},"reference-count":50,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2025,2,19]],"date-time":"2025-02-19T00:00:00Z","timestamp":1739923200000},"content-version":"vor","delay-in-days":49,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["RF1AG075904"],"award-info":[{"award-number":["RF1AG075904"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["alz-journals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["A&amp;amp;D Transl Res &amp;amp; Clin Interv"],"published-print":{"date-parts":[[2025,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>INTRODUCTION<\/jats:title>\n                    <jats:p>Low health literacy about Alzheimer's disease and related disorders (ADRD) may limit help\u2010seeking, early detection, and enrollment in clinical trials, particularly in minoritized communities. We created the Dementia Literacy Assessment (DeLA) to improve ADRD health literacy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>METHODS<\/jats:title>\n                    <jats:p>The DeLA, a storytelling method that included culturally adaptable vignettes embedded with important factoids about ADRD, was administered to 213 participants from urban and rural regions of Palm Beach and Broward County in Florida and 193 participants in American Samoa.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>RESULTS<\/jats:title>\n                    <jats:p>The DeLA increased dementia health literacy and performed well across different participant characteristics (age, sex, education, geographic locale, race, ethnicity, and cognitive performance). Gains in ADRD health literacy were associated with older age, more education, better socioeconomic status, greater resilience, and better cognitive performance.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>DISCUSSION<\/jats:title>\n                    <jats:p>Increasing ADRD health literacy could increase health\u2010seeking behaviors in diverse populations for treatment, enrich recruitment into clinical trials, and may help reduce disparities in health outcomes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Highlights<\/jats:title>\n                    <jats:p>\n                      <jats:list list-type=\"bullet\">\n                        <jats:list-item>\n                          <jats:p>Low health literacy about Alzheimer's disease and related disorders (ADRD) may limit help\u2010seeking, early detection, and enrollment in clinical trials, particularly in minoritized communities.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>The Dementia Literacy Assessment (DeLA), a storytelling method that included culturally adaptable vignettes embedded with important factoids about ADRD, was administered to 406 participants from urban and rural regions of Palm Beach and Broward County in Florida and American Samoa (11.8% White, 39.8% Black or African American, and 48.4% Pacific Islander [predominantly Samoan] individuals).<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>The DeLA increased dementia health literacy and performed well across different participant characteristics (age, sex, education, geographic locale, race, and cognitive performance).<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>Gains in ADRD health literacy were associated with older age, more education, better socioeconomic status, greater resilience, and better cognitive performance.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>Increasing ADRD health literacy could increase health\u2010seeking behaviors in diverse populations for treatment, enrich recruitment into clinical trials, and help reduce disparities in health outcomes.<\/jats:p>\n                        <\/jats:list-item>\n                      <\/jats:list>\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/trc2.70054","type":"journal-article","created":{"date-parts":[[2025,2,19]],"date-time":"2025-02-19T10:03:01Z","timestamp":1739959381000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["The Dementia Literacy Assessment (DeLA): A novel measure of Alzheimer's disease and related disorders health literacy in diverse populations"],"prefix":"10.1002","volume":"11","author":[{"given":"James E.","family":"Galvin","sequence":"first","affiliation":[{"name":"Department of Neurology Comprehensive Center for Brain Health Miller School of Medicine University of Miami  Boca Raton Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Deborah M.","family":"Germain","sequence":"additional","affiliation":[{"name":"Department of Neurology Comprehensive Center for Brain Health Miller School of Medicine University of Miami  Boca Raton Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claudia P.","family":"Moore","sequence":"additional","affiliation":[{"name":"Department of Neurology Comprehensive Center for Brain Health Miller School of Medicine University of Miami  Boca Raton Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer A.","family":"Jeanty","sequence":"additional","affiliation":[{"name":"Department of Neurology Comprehensive Center for Brain Health Miller School of Medicine University of Miami  Boca Raton Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vaatausili","family":"Tofaeono","sequence":"additional","affiliation":[{"name":"American Samoa Community Cancer Coalition  Pago American Samoa USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lisa K.","family":"Wiese","sequence":"additional","affiliation":[{"name":"Christine E. Lynn College of Nursing Florida Atlantic University  Boca Raton Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,2,19]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/alz.13809"},{"key":"e_1_2_10_3_1","unstructured":"United States Census.Race and ethnicity in the United States: 2010 Census and 2020 Census. Accessed on August 12 2024.https:\/\/www.census.gov\/library\/visualizations\/interactive\/race\u2010and\u2010ethnicity\u2010in\u2010the\u2010united\u2010state\u20102010\u2010and\u20102020\u2010census.html"},{"key":"e_1_2_10_4_1","unstructured":"US Census Bureau.2021. Accessed August 8 2024.https:\/\/www.alz.org\/getmedia\/a7390c29\u2010e4c0\u20104d3c\u2010b000\u2010377b6c112eea\/alzheimers\u2010facts\u2010and\u2010figures\u2010special\u2010report.pdf"},{"key":"e_1_2_10_5_1","unstructured":"Alzheimer's Association.2024 Alzheimer's disease facts and figures: special report: mapping a better future for dementia care navigation. Accessed August 8 2024.https:\/\/www.alz.org\/getmedia\/a7390c29\u2010e4c0\u20104d3c\u2010b000\u2010377b6c112eea\/alzheimers\u2010facts\u2010and\u2010figures\u2010special\u2010report.pdf"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/alz.12285"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.14025"},{"key":"e_1_2_10_8_1","first-page":"29","article-title":"Disparities in Alzheimer's disease and related dementias outcomes","volume":"23","author":"Galvin JE","year":"2024","journal-title":"Practical Neurol"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0235534"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1207\/s15327027hc2002_4"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1080\/10810730600637426"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jagp.2018.09.010"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12889-024-18972-2"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1097\/WAD.0b013e3181f14b22"},{"key":"e_1_2_10_15_1","first-page":"387","article-title":"The role of literacy in health and health care","volume":"72","author":"Dewalt DA","year":"2005","journal-title":"Am Fam Physician"},{"key":"e_1_2_10_16_1","unstructured":"US Department of Health and Human Services: Health Literacy in Healthy People 2030. Accessed August 6 2024.https:\/\/odphp.health.gov\/healthypeople\/priority\u2010areas\/health\u2010literacy\u2010healthy\u2010people\u20102030"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1177\/2333721418812246"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.conctc.2019.100351"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1097\/00005650-200205000-00005"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.12968\/bjon.2012.21.19.1156"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.92.8.1278"},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.amjmed.2005.01.010"},{"key":"e_1_2_10_23_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-008-0566-4"},{"key":"e_1_2_10_24_1","doi-asserted-by":"publisher","DOI":"10.1097\/00002093-200607000-00010"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jalz.2007.09.005"},{"key":"e_1_2_10_26_1","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-215020"},{"key":"e_1_2_10_27_1","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-220959"},{"key":"e_1_2_10_28_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40271\u2010024\u201000700\u2010y"},{"key":"e_1_2_10_29_1","doi-asserted-by":"publisher","DOI":"10.1097\/MLR.0b013e3180616c1b"},{"key":"e_1_2_10_30_1","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-210269"},{"key":"e_1_2_10_31_1","doi-asserted-by":"publisher","DOI":"10.1093\/gerona\/56.3.M146"},{"key":"e_1_2_10_32_1","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-215077"},{"key":"e_1_2_10_33_1","doi-asserted-by":"publisher","DOI":"10.1002\/dad2.12249"},{"key":"e_1_2_10_34_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0240422"},{"key":"e_1_2_10_35_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.43.11.2412-a"},{"key":"e_1_2_10_36_1","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-240331"},{"key":"e_1_2_10_37_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0738-3991(98)00116-5"},{"key":"e_1_2_10_38_1","doi-asserted-by":"publisher","DOI":"10.1076\/jcen.25.5.680.14579"},{"key":"e_1_2_10_39_1","doi-asserted-by":"publisher","DOI":"10.1080\/23279095.2024.2334348"},{"key":"e_1_2_10_40_1","doi-asserted-by":"publisher","DOI":"10.1080\/13607860020020582"},{"key":"e_1_2_10_41_1","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/gnp023"},{"key":"e_1_2_10_42_1","doi-asserted-by":"publisher","DOI":"10.1891\/1061-3749.25.3.519"},{"key":"e_1_2_10_43_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.apnr.2015.09.004"},{"key":"e_1_2_10_44_1","first-page":"225","volume-title":"Middle Range Theory for Nursing","author":"Smith MJ","year":"2014"},{"key":"e_1_2_10_45_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph20021344"},{"key":"e_1_2_10_46_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-016-1474-7"},{"key":"e_1_2_10_47_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12889-022-13595-x"},{"key":"e_1_2_10_48_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2020.04.014"},{"key":"e_1_2_10_49_1","doi-asserted-by":"publisher","DOI":"10.1353\/cpr.2018.0055"},{"key":"e_1_2_10_50_1","doi-asserted-by":"publisher","DOI":"10.1097\/MLR.0000000000000766"},{"key":"e_1_2_10_51_1","first-page":"121","article-title":"Oral traditions, cultural significance of storytelling, and Samoan understandings of place or Fanua","volume":"7","author":"Lilomaiava\u2010Doktor S","year":"2020","journal-title":"Native Am Indigenous Studies"}],"container-title":["Alzheimer's &amp; Dementia: Translational Research &amp; Clinical Interventions"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/alz-journals.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/trc2.70054","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,26]],"date-time":"2025-10-26T15:16:51Z","timestamp":1761491811000},"score":1,"resource":{"primary":{"URL":"https:\/\/alz-journals.onlinelibrary.wiley.com\/doi\/10.1002\/trc2.70054"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,1]]},"references-count":50,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2025,1]]}},"alternative-id":["10.1002\/trc2.70054"],"URL":"https:\/\/doi.org\/10.1002\/trc2.70054","archive":["Portico"],"relation":{},"ISSN":["2352-8737","2352-8737"],"issn-type":[{"value":"2352-8737","type":"print"},{"value":"2352-8737","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,1]]},"assertion":[{"value":"2024-08-21","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-01-13","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-02-19","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70054"}}