{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,21]],"date-time":"2026-09-21T19:50:10Z","timestamp":1790020210868,"version":"4.0.1"},"reference-count":16,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2025,4,24]],"date-time":"2025-04-24T00:00:00Z","timestamp":1745452800000},"content-version":"vor","delay-in-days":23,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000030","name":"Centers for Disease Control and Prevention","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["alz-journals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["A&amp;D Transl Res &amp; Clin Interv"],"published-print":{"date-parts":[[2025,4]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:label\/>\n                    <jats:p>Developing effective resources to support dementia caregivers requires collaboration between public health officials and those with lived experience of caregiving. This perspective highlights why this collaboration is so crucial to elevating public health practice and describes the unique efforts of the BOLD Public Health Center of Excellence on Dementia Caregiving to foster this collaboration through its Lived Experience Advisory Groups (LEAG). The LEAGs convene people living with dementia, family caregivers, and public health officials to guide the development of resources that state, local, and tribal public health departments can use to support dementia caregivers in their communities. Through these interactions, public health strategies become more responsive to the real\u2010life needs of caregivers and people living with dementia. This approach not only enhances caregiver support but also strengthens and aligns public health initiatives with the lived experiences of the populations they serve, fostering health equity and community engagement. This paper highlights key activities, outcomes, and future directions for integrating lived experience and public health perspectives into practice, offering a new and innovative model for other organizations seeking to improve support for dementia caregivers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Highlights<\/jats:title>\n                    <jats:p>\n                      <jats:list list-type=\"bullet\">\n                        <jats:list-item>\n                          <jats:p>Public engagement enhances responsiveness and effectiveness of public health programs.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>LEAGs allow people with lived experience to help shape programs and facilitate collaboration with public health professionals.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>Local and state health agencies can improve engagement by implementing LEAGs.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>Increasing diversity of people with lived experience can improve outcomes for communities disproportionately impacted by dementia.<\/jats:p>\n                        <\/jats:list-item>\n                      <\/jats:list>\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/trc2.70087","type":"journal-article","created":{"date-parts":[[2025,4,25]],"date-time":"2025-04-25T02:56:00Z","timestamp":1745549760000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Supporting dementia caregivers: The role of \u201clived experience\u201d and public health collaboration"],"prefix":"10.1002","volume":"11","author":[{"given":"Chelsea","family":"Kline","sequence":"first","affiliation":[{"name":"Health Policy Alzheimer's Association  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elma","family":"Johnson","sequence":"additional","affiliation":[{"name":"Division of Health Policy and Management University of Minnesota School of Public Health  Minneapolis Minnesota USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ellen","family":"Tambor","sequence":"additional","affiliation":[{"name":"Education Development Center  Waltham Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Catherine Woodall","family":"Colcombe","sequence":"additional","affiliation":[{"name":"Public Health Programs Alzheimer's Association  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sam","family":"Fazio","sequence":"additional","affiliation":[{"name":"Quality Care and Psychosocial Research Alzheimer's Association  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Greg","family":"Woods","sequence":"additional","affiliation":[{"name":"Alzheimer\u2019s Disease and Related Dementias Program, Public Health Division Iowa Department of Health and Human Services  Des Moines Iowa USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dale","family":"Rivard","sequence":"additional","affiliation":[{"name":"Lived Experience Advisory Group Member  East Grand Forks Minnesota USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gary","family":"Epstein\u2010Lubow","sequence":"additional","affiliation":[{"name":"Education Development Center  Waltham Massachusetts USA"},{"name":"Department of Psychiatry and Human Behavior Alpert Medical School of Brown University  Providence Rhode Island USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,4,24]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/alz.13809"},{"key":"e_1_2_13_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2013.02.005"},{"key":"e_1_2_13_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/alz.13809"},{"key":"e_1_2_13_5_1","unstructured":"CohnE McCloskeyD BermanL SilberbergM et\u00a0al.Principles of Community Engagement 3rd edition. 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