{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,3,25]],"date-time":"2025-03-25T14:50:28Z","timestamp":1742914228396,"version":"3.40.3"},"publisher-location":"Cham","reference-count":29,"publisher":"Springer International Publishing","isbn-type":[{"type":"print","value":"9783030328344"},{"type":"electronic","value":"9783030328351"}],"license":[{"start":{"date-parts":[[2020,1,1]],"date-time":"2020-01-01T00:00:00Z","timestamp":1577836800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"},{"start":{"date-parts":[[2020,1,1]],"date-time":"2020-01-01T00:00:00Z","timestamp":1577836800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2020]]},"DOI":"10.1007\/978-3-030-32835-1_6","type":"book-chapter","created":{"date-parts":[[2020,7,16]],"date-time":"2020-07-16T13:03:43Z","timestamp":1594904623000},"page":"77-93","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Approaches for Authentic Engagement: Younger Onset Dementia"],"prefix":"10.1007","author":[{"given":"Dennis","family":"Frost","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Suzanne","family":"Dillon","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Stephen","family":"Grady","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jeffrey","family":"Thurlow","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tuck Wah","family":"Leong","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jeanette","family":"Bell","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2020,7,17]]},"reference":[{"key":"6_CR1","unstructured":"Alzheimer Australia (2017) Dementia language guidelines. \nhttps:\/\/www.fightdementia.org.au\/resources\/dementia-language-guidelines\n\n. Accessed 10 Jun 2017"},{"key":"6_CR2","doi-asserted-by":"publisher","first-page":"646","DOI":"10.1177\/1471301214532263","volume":"15","author":"C Arntzen","year":"2016","unstructured":"Arntzen C, Holthe T, Jentoft R (2016) Tracing the successful incorporation of assistive technology into everyday life for younger people with dementia and family carers. Dementia 15:646\u2013662","journal-title":"Dementia"},{"key":"6_CR50","doi-asserted-by":"crossref","unstructured":"Baum F, MacDougall C, Smith D (2006) Participatory action research. J Epidemiol Community Health 60: 854\u2013857","DOI":"10.1136\/jech.2004.028662"},{"key":"6_CR3","doi-asserted-by":"crossref","unstructured":"Bell J, Leong TW (2017) Collaborative futures: a technology design approach to support living well with dementia. In: Proceedings of the 29th Australian conference on computer-human interaction. ACM, pp 397\u2013401","DOI":"10.1145\/3152771.3156144"},{"key":"6_CR4","doi-asserted-by":"crossref","unstructured":"Bell J, Leong TW (2019) Collaborative futures: co-designing research methods for younger people living with dementia. In: Proceedings of the 2019 CHI conference on human factors in computing systems. ACM, p 352","DOI":"10.1145\/3290605.3300582"},{"key":"6_CR5","unstructured":"Berg B, Lune H (2004) Cap. 7: action research. Qualitative research methods for the social sciences. vol 5, pp 247\u2013268"},{"key":"6_CR6","doi-asserted-by":"crossref","unstructured":"Brereton M, Roe P, Schroeter R, Hong AL (2014) Beyond ethnography: engagement and reciprocity as foundations for design research out here. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI\u201914). ACM, pp 1183\u20131186","DOI":"10.1145\/2556288.2557374"},{"key":"6_CR7","unstructured":"Brown L, Hansnata E, La HA (2017) Economic cost of dementia in Australia"},{"key":"6_CR8","unstructured":"Bryden C (2012) Who will I be when I die? Jessica Kingsley Publishers"},{"key":"6_CR9","doi-asserted-by":"publisher","first-page":"313","DOI":"10.1177\/1471301204045163","volume":"3","author":"S Cahill","year":"2004","unstructured":"Cahill S, Begley E, Topo P, Saarikalle K, Macijauskiene J, Budraitiene A, Hagen I, Holthe T, Jones K (2004) \u2018I Know Where this is Going and I Know it won\u2019t Go Back\u2019 hearing the individual\u2019s voice in dementia quality of life assessments. Dementia 3:313\u2013330","journal-title":"Dementia"},{"key":"6_CR10","unstructured":"DAI (2017) Dementia Alliance International. \nhttps:\/\/www.dementiaallianceinternational.org\/"},{"key":"6_CR11","doi-asserted-by":"publisher","first-page":"157","DOI":"10.1177\/147130120200100204","volume":"1","author":"J Dewing","year":"2002","unstructured":"Dewing J (2002) From ritual to relationship: a person-centred approach to consent in qualitative research with older people who have a dementia. Dementia 1:157\u2013171","journal-title":"Dementia"},{"key":"6_CR12","doi-asserted-by":"publisher","first-page":"597","DOI":"10.1017\/S0144686X9700665X","volume":"17","author":"M Downs","year":"1997","unstructured":"Downs M (1997) The emergence of the person in dementia research. Ageing Soc 17:597\u2013607","journal-title":"Ageing Soc"},{"key":"6_CR13","doi-asserted-by":"crossref","unstructured":"Green D, Kirk D (2018) Open design, inclusivity and the intersections of making. In: Proceedings of the 2018 designing interactive systems conference. ACM, pp 173\u2013186","DOI":"10.1145\/3196709.3196718"},{"key":"6_CR14","doi-asserted-by":"publisher","first-page":"102","DOI":"10.1016\/j.maturitas.2016.07.019","volume":"92","author":"N Greenwood","year":"2016","unstructured":"Greenwood N, Smith R (2016) The experiences of people with young-onset dementia: a meta-ethnographic review of the qualitative literature. Maturitas 92:102\u2013109","journal-title":"Maturitas"},{"key":"6_CR15","doi-asserted-by":"publisher","first-page":"13","DOI":"10.1080\/13607869757344","volume":"1","author":"T Kitwood","year":"1997","unstructured":"Kitwood T (1997) The experience of dementia. Aging Mental Health 1:13\u201322","journal-title":"Aging Mental Health"},{"key":"6_CR16","doi-asserted-by":"publisher","first-page":"163","DOI":"10.1177\/0894318403251793251793","volume":"16","author":"TF Moore","year":"2003","unstructured":"Moore TF, Hollett J (2003) Giving voice to persons living with dementia: the researcher\u2019s opportunities and challenges. Nurs Sci Q 16:163\u2013167","journal-title":"Nurs Sci Q"},{"key":"6_CR17","doi-asserted-by":"publisher","first-page":"793","DOI":"10.1016\/S1474-4422(10)70159-9","volume":"9","author":"MN Rossor","year":"2010","unstructured":"Rossor MN, Fox NC, Mummery CJ, Schott JM, Warren JD (2010) The diagnosis of young-onset dementia. Lancet Neurol 9: 793\u2013806","journal-title":"Lancet Neurol"},{"key":"6_CR18","doi-asserted-by":"publisher","first-page":"693","DOI":"10.1177\/1533317515619481","volume":"31","author":"J Sansoni","year":"2016","unstructured":"Sansoni J, Duncan C, Grootemaat P, Capell J, Samsa P, Westera A (2016) Younger onset dementia: a review of the literature to inform service development. Am J Alzheimer\u2019s Dis Other Dementiasr 31:693\u2013705","journal-title":"Am J Alzheimer\u2019s Dis Other Dementiasr"},{"key":"6_CR19","unstructured":"Sansoni J, Duncan C, Grootemaat P, Samsa P, Capell J, Westera A (2014) Younger onset dementia: a literature review. University of Wollongong: Centre for Health Service Development. \nhttp:\/\/ro.uow.edu.au\/ahsri\/373"},{"key":"6_CR20","volume-title":"Dementia: stigma, language, and dementia-friendly","author":"K Swaffer","year":"2014","unstructured":"Swaffer K (2014) Dementia: stigma, language, and dementia-friendly. Sage Publications Sage UK, London, England"},{"key":"6_CR21","unstructured":"Swaffer K (2016) What the hell happened to my brain?: living beyond dementia. Jessica Kingsley Publishers"},{"key":"6_CR22","unstructured":"Swaffer K, Rahman S (2015) What the hell happened to my brain?: living beyond dementia. Jessica Kingsley Limited"},{"key":"6_CR23","doi-asserted-by":"publisher","first-page":"296","DOI":"10.3109\/09638237.2011.651658","volume":"21","author":"D Tanner","year":"2012","unstructured":"Tanner D (2012) Co-research with older people with dementia: experience and reflections. J Mental Health 21:296\u2013306","journal-title":"J Mental Health"},{"key":"6_CR24","volume-title":"Service and support requirements for people with younger onset dementia and their families","author":"D Thompson","year":"2011","unstructured":"Thompson D (2011) Service and support requirements for people with younger onset dementia and their families. Social Policy Research Centre, University of New South Wale, Sydney"},{"key":"6_CR25","doi-asserted-by":"publisher","first-page":"319","DOI":"10.1159\/000342824","volume":"34","author":"D Van Vliet","year":"2012","unstructured":"Van Vliet D, De Vugt ME, Aalten P, Bakker C, Pijnenburg YA, Vernooij-Dassen MJ, Koopmans RT, Verhey FR (2012) Prevalence of neuropsychiatric symptoms in young-onset compared to late-onset Alzheimer\u2019s disease\u2013part 1: findings of the two-year longitudinal NeedYD-study. Dement Geriatr Cogn Disord 34:319\u2013327","journal-title":"Dement Geriatr Cogn Disord"},{"key":"6_CR26","doi-asserted-by":"crossref","unstructured":"Vines J, Mcnaney R, Clarke R, Lindsay S, Mccarthy J, Howard S, Romero M, Wallace J (2013) Designing for-and with-vulnerable people. CHI\u201913 extended abstracts on human factors in computing systems. ACM, pp 3231\u20133234","DOI":"10.1145\/2468356.2479654"},{"key":"6_CR27","doi-asserted-by":"crossref","unstructured":"Wallace J, Wright P C, McCarthy J, Green D P, Thomas J, and Olivier P. 2013. A design-led inquiry into personhood in dementia. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI\u201913). ACM, 2617\u20132626.\u00a0","DOI":"10.1145\/2470654.2481363"},{"key":"6_CR28","doi-asserted-by":"publisher","first-page":"1955","DOI":"10.1017\/S1041610214001835","volume":"26","author":"A Withall","year":"2014","unstructured":"Withall A, Draper B, Seeher K, Brodaty H (2014) The prevalence and causes of younger onset dementia in Eastern Sydney. Aust, Int Psychogeriatr 26:1955\u20131965","journal-title":"Aust, Int Psychogeriatr"}],"container-title":["Human\u2013Computer Interaction Series","HCI and Design in the Context of Dementia"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/978-3-030-32835-1_6","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,7,16]],"date-time":"2020-07-16T13:07:48Z","timestamp":1594904868000},"score":1,"resource":{"primary":{"URL":"http:\/\/link.springer.com\/10.1007\/978-3-030-32835-1_6"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020]]},"ISBN":["9783030328344","9783030328351"],"references-count":29,"URL":"https:\/\/doi.org\/10.1007\/978-3-030-32835-1_6","relation":{},"ISSN":["1571-5035","2524-4477"],"issn-type":[{"type":"print","value":"1571-5035"},{"type":"electronic","value":"2524-4477"}],"subject":[],"published":{"date-parts":[[2020]]},"assertion":[{"value":"17 July 2020","order":1,"name":"first_online","label":"First Online","group":{"name":"ChapterHistory","label":"Chapter History"}}]}}