{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,31]],"date-time":"2026-07-31T12:14:51Z","timestamp":1785500091129,"version":"3.56.0"},"reference-count":16,"publisher":"Springer Science and Business Media LLC","issue":"6","license":[{"start":{"date-parts":[[2020,5,18]],"date-time":"2020-05-18T00:00:00Z","timestamp":1589760000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springer.com\/tdm"},{"start":{"date-parts":[[2020,5,18]],"date-time":"2020-05-18T00:00:00Z","timestamp":1589760000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springer.com\/tdm"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Pediatr Cardiol"],"published-print":{"date-parts":[[2020,8]]},"DOI":"10.1007\/s00246-020-02367-2","type":"journal-article","created":{"date-parts":[[2020,5,18]],"date-time":"2020-05-18T03:32:06Z","timestamp":1589772726000},"page":"1160-1165","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Pediatric Cardiology Specialist\u2019s Opinions Toward the Acceptability of Comfort Care for Congenital Heart Disease"],"prefix":"10.1007","volume":"41","author":[{"given":"Tara M.","family":"Swanson","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6760-0340","authenticated-orcid":false,"given":"Angira","family":"Patel","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Austin J.","family":"Baxter","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shaine A.","family":"Morris","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shiraz A.","family":"Maskatia","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John D.","family":"Lantos","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2020,5,18]]},"reference":[{"issue":"5","key":"2367_CR1","doi-asserted-by":"publisher","first-page":"1502","DOI":"10.1542\/peds.2012-3435","volume":"131","author":"ME Oster","year":"2013","unstructured":"Oster ME, Lee KA, Honein MA et al (2013) Temporal trends in survival among infants with critical congenital heart defects. Pediatrics 131(5):1502\u20131508","journal-title":"Pediatrics"},{"issue":"9","key":"2367_CR2","doi-asserted-by":"publisher","first-page":"844","DOI":"10.1001\/archpediatrics.2008.3","volume":"162","author":"AA Kon","year":"2008","unstructured":"Kon AA (2008) Healthcare providers must offer palliative treatment to parents of neonates with hypoplastic left heart syndrome. Arch Pediatr Adolesc Med 162(9):844\u2013848","journal-title":"Arch Pediatr Adolesc Med"},{"issue":"9","key":"2367_CR3","doi-asserted-by":"publisher","first-page":"849","DOI":"10.1001\/archpedi.162.9.849","volume":"162","author":"G Wernovsky","year":"2008","unstructured":"Wernovsky G (2008) The paradigm shift toward surgical intervention for neonates with hypoplastic left heart syndrome. Arch Pediatr Adolesc Med 162(9):849\u2013854","journal-title":"Arch Pediatr Adolesc Med"},{"issue":"1","key":"2367_CR4","doi-asserted-by":"publisher","first-page":"80","DOI":"10.1177\/2150135112456405","volume":"4","author":"J Rychik","year":"2012","unstructured":"Rychik J (2012) What does palliative care mean in the prenatal diagnosis of congenital heart disease? World J Pediatr Congenit Heart Surg 4(1):80\u201384","journal-title":"World J Pediatr Congenit Heart Surg"},{"issue":"S2","key":"2367_CR5","doi-asserted-by":"publisher","first-page":"133","DOI":"10.1017\/s1047951111001715","volume":"21","author":"CD Mavroudis","year":"2011","unstructured":"Mavroudis CD, Farrell RM, Jacobs ML, Jacobs JP, Kodish ED (2011) Informed consent, bioethical equipoise, and hypoplastic left heart syndrome. Cardiol Young 21(S2):133\u2013140. https:\/\/doi.org\/10.1017\/s1047951111001715","journal-title":"Cardiol Young"},{"key":"2367_CR6","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2009-1678","author":"M Prsa","year":"2010","unstructured":"Prsa M, Holly CD, Holly FA, Carnevale JH, Rohlicek CV (2010) Attitudes and practices of cardiologists and surgeons who manage HLHS. Pediatrics. https:\/\/doi.org\/10.1542\/peds.2009-1678","journal-title":"Pediatrics"},{"issue":"5","key":"2367_CR7","doi-asserted-by":"publisher","first-page":"1730","DOI":"10.1542\/peds.2016-1730","volume":"138","author":"AA Kon","year":"2016","unstructured":"Kon AA, Patel A, Leuthner S, Lantos JD (2016) Parental refusal of surgery in an infant with tricuspid atresia. Pediatrics 138(5):1730","journal-title":"Pediatrics"},{"key":"2367_CR8","doi-asserted-by":"publisher","first-page":"436","DOI":"10.1001\/archpedi.158.5.436","volume":"158","author":"AA Kon","year":"2004","unstructured":"Kon AA, Ackerson L, Lo B (2004) How pediatricians counsel parents when no \"best-choice\" management exists: lessons to be learned from hypoplastic left heart syndrome. Arch Pediatr Adolesc Med 158:436\u2013441. https:\/\/doi.org\/10.1001\/archpedi.158.5.436","journal-title":"Arch Pediatr Adolesc Med"},{"issue":"1","key":"2367_CR9","doi-asserted-by":"publisher","first-page":"13","DOI":"10.1007\/s10730-019-09384-6","volume":"32","author":"H Gerdes","year":"2020","unstructured":"Gerdes H, Lantos J (2020) Differing thresholds for overriding parental refusal of life-sustaining treatment. HEC Forum 32(1):13\u201320","journal-title":"HEC Forum"},{"key":"2367_CR10","unstructured":"STS Congenital Heart Surgery Database Fall 2018 Harvest for Infants and Neonates. https:\/\/www.sts.org\/registries-research-center\/sts-national-database\/sts-congenital-heart-surgery-database"},{"issue":"6","key":"2367_CR11","doi-asserted-by":"publisher","first-page":"2526","DOI":"10.1016\/j.jtcvs.2014.05.095","volume":"146","author":"JD St. Louis","year":"2014","unstructured":"St. Louis JD, Upinder J, Jacobs JP et al (2014) Contemporary outcomes of complete atrioventricular septal defect repair: analysis of the Society of Thoracic Surgeons Congenital Heart Surgery database. J Thorac Cardiovasc Surg 146(6):2526\u20132531","journal-title":"J Thorac Cardiovasc Surg"},{"issue":"2","key":"2367_CR12","doi-asserted-by":"publisher","first-page":"419","DOI":"10.1007\/s00246-015-1294-2","volume":"37","author":"JM Kane","year":"2016","unstructured":"Kane JM, Canar J, Kalinowski V, Johnson TJ, Hoehn KS (2016) Management options and outcomes for neonatal hypoplastic left heart syndrome in the early twenty-first century. Pediatr Cardiol 37(2):419\u2013425","journal-title":"Pediatr Cardiol"},{"issue":"1","key":"2367_CR13","doi-asserted-by":"publisher","first-page":"243","DOI":"10.1016\/j.jtcvs.2017.01.056","volume":"154","author":"TE Downing","year":"2017","unstructured":"Downing TE, Allen KY, Glatz AC et al (2017) Long-term survival after the Fontan operation: twenty years of experience at a single center. J Thorac Cardiovasc Surg 154(1):243\u2013253","journal-title":"J Thorac Cardiovasc Surg"},{"issue":"15","key":"2367_CR14","doi-asserted-by":"publisher","first-page":"1700","DOI":"10.1016\/j.jacc.2015.07.065","volume":"66","author":"KN Pundi","year":"2015","unstructured":"Pundi KN, Johnson JN, Dearani JA et al (2015) 40 year follow-up after the Fontan operation: long-term outcomes of 1,052 patients. J Am Coll Cardiol 66(15):1700\u20131710","journal-title":"J Am Coll Cardiol"},{"key":"2367_CR15","doi-asserted-by":"publisher","first-page":"2081","DOI":"10.1161\/CIRCULATIONAHA.111.064113","volume":"125","author":"J Newburger","year":"2012","unstructured":"Newburger J, Sleeper L, Bellinger D et al (2012) Early developmental outcome in children with hypoplastic left heart syndrome and related anomalies: the Single Ventricle Reconstruction Trial. Circulation 125:2081\u20132091","journal-title":"Circulation"},{"key":"2367_CR16","doi-asserted-by":"publisher","first-page":"1687","DOI":"10.1007\/s00246-013-0694-4","volume":"34","author":"S Peyvandi","year":"2013","unstructured":"Peyvandi S, Lupo PJ, Garbarini J, Woyciechowski S, Edman S, Emanuel BS, Mitchell LE, Goldmuntz E (2013) 22q11.2 Deletions in patients with conotruncal defects: data from 1,610 consecutive cases. Pediatr Cardiol. 34:1687\u20131694","journal-title":"Pediatr Cardiol."}],"container-title":["Pediatric Cardiology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00246-020-02367-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s00246-020-02367-2\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00246-020-02367-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2021,5,17]],"date-time":"2021-05-17T23:21:39Z","timestamp":1621293699000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s00246-020-02367-2"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,5,18]]},"references-count":16,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2020,8]]}},"alternative-id":["2367"],"URL":"https:\/\/doi.org\/10.1007\/s00246-020-02367-2","relation":{},"ISSN":["0172-0643","1432-1971"],"issn-type":[{"value":"0172-0643","type":"print"},{"value":"1432-1971","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,5,18]]},"assertion":[{"value":"23 March 2020","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"6 May 2020","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"18 May 2020","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Compliance with Ethical Standards"}},{"value":"All the authors declared that they have no conflict of interest.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interest"}}]}}