{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,3]],"date-time":"2025-11-03T08:20:15Z","timestamp":1762158015498,"version":"build-2065373602"},"reference-count":19,"publisher":"Springer Science and Business Media LLC","issue":"8","license":[{"start":{"date-parts":[[2024,8,20]],"date-time":"2024-08-20T00:00:00Z","timestamp":1724112000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"},{"start":{"date-parts":[[2024,8,20]],"date-time":"2024-08-20T00:00:00Z","timestamp":1724112000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"}],"funder":[{"name":"New England Congenital Cardiology Research Foundation"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Pediatr Cardiol"],"published-print":{"date-parts":[[2025,12]]},"DOI":"10.1007\/s00246-024-03631-5","type":"journal-article","created":{"date-parts":[[2024,8,22]],"date-time":"2024-08-22T03:32:48Z","timestamp":1724297568000},"page":"2244-2251","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Life and Death: A Multicenter Study Evaluating Cardiologists\u2019 Approach to Difficult Conversations with Fontan Patients and Families"],"prefix":"10.1007","volume":"46","author":[{"given":"Seohyuk","family":"Lee","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rahul H.","family":"Rathod","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anne Marie","family":"Valente","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Brooke T.","family":"Davey","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fred","family":"Wu","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nancy","family":"Drucker","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kristin","family":"Lombardi","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nicole","family":"St. Clair","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nina","family":"Azcue","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Olga H.","family":"Toro-Salazar","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Robert W.","family":"Elder","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2024,8,20]]},"reference":[{"issue":"243\u2013253","key":"3631_CR1","first-page":"e242","volume":"154","author":"TE Downing","year":"2017","unstructured":"Downing TE, Allen KY, Glatz AC, Rogers LS, Ravishankar C, Rychik J, Faerber JA, Fuller S, Montenegro LM, Steven JM, Spray TL, Nicolson SC, Gaynor JW, Goldberg DJ (2017) Long-term survival after the Fontan operation: twenty years of experience at a single center. J Thorac Cardiovasc Surg 154(243\u2013253):e242","journal-title":"J Thorac Cardiovasc Surg"},{"key":"3631_CR2","doi-asserted-by":"publisher","first-page":"2735","DOI":"10.1016\/j.jacc.2017.03.582","volume":"69","author":"AM Atz","year":"2017","unstructured":"Atz AM, Zak V, Mahony L, Uzark K, D\u2019Agincourt N, Goldberg DJ, Williams RV, Breitbart RE, Colan SD, Burns KM, Margossian R, Henderson HT, Korsin R, Marino BS, Daniels K, McCrindle BW, Pediatric Heart Network I (2017) Longitudinal outcomes of patients with single ventricle after the Fontan procedure. J Am Coll Cardiol 69:2735\u20132744","journal-title":"J Am Coll Cardiol"},{"key":"3631_CR3","doi-asserted-by":"publisher","first-page":"53","DOI":"10.1007\/s40124-019-00192-7","volume":"7","author":"MA Simmons","year":"2019","unstructured":"Simmons MA, Elder RW (2019) Modern day care of patients with single ventricle heart disease: late complications of Fontan palliation. Current Pediatrics Reports 7:53\u201361","journal-title":"Current Pediatrics Reports"},{"key":"3631_CR4","doi-asserted-by":"publisher","first-page":"393","DOI":"10.1111\/chd.12468","volume":"12","author":"T Alsaied","year":"2017","unstructured":"Alsaied T, Bokma JP, Engel ME, Kuijpers JM, Hanke SP, Zuhlke L, Zhang B, Veldtman GR (2017) Predicting long-term mortality after Fontan procedures: a risk score based on 6707 patients from 28 studies. Congenit Heart Dis 12:393\u2013398","journal-title":"Congenit Heart Dis"},{"key":"3631_CR5","doi-asserted-by":"publisher","first-page":"2118","DOI":"10.1161\/CIRCULATIONAHA.115.017202","volume":"132","author":"GP Diller","year":"2015","unstructured":"Diller GP, Kempny A, Alonso-Gonzalez R, Swan L, Uebing A, Li W, Babu-Narayan S, Wort SJ, Dimopoulos K, Gatzoulis MA (2015) Survival prospects and circumstances of death in contemporary adult congenital heart disease patients under follow-up at a large tertiary centre. Circulation 132:2118\u20132125","journal-title":"Circulation"},{"key":"3631_CR6","doi-asserted-by":"publisher","first-page":"552","DOI":"10.1016\/j.hlc.2017.11.007","volume":"27","author":"CL Poh","year":"2018","unstructured":"Poh CL, d\u2019Udekem Y (2018) Life after surviving Fontan surgery: a meta-analysis of the incidence and predictors of late death. Heart Lung Circ 27:552\u2013559","journal-title":"Heart Lung Circ"},{"key":"3631_CR7","first-page":"S32","volume":"130","author":"Y d'Udekem","year":"2014","unstructured":"d\u2019Udekem Y, Iyengar AJ, Galati JC, Forsdick V, Weintraub RG, Wheaton GR, Bullock A, Justo RN, Grigg LE, Sholler GF, Hope S, Radford DJ, Gentles TL, Celermajer DS, Winlaw DS (2014) Redefining expectations of long-term survival after the Fontan procedure: twenty-five years of follow-up from the entire population of Australia and New Zealand. Circulation 130:S32-38","journal-title":"Circulation"},{"key":"3631_CR8","doi-asserted-by":"publisher","first-page":"e234","DOI":"10.1161\/CIR.0000000000000696","volume":"140","author":"J Rychik","year":"2019","unstructured":"Rychik J, Atz AM, Celermajer DS, Deal BJ, Gatzoulis MA, Gewillig MH, Hsia TY, Hsu DT, Kovacs AH, McCrindle BW, Newburger JW, Pike NA, Rodefeld M, Rosenthal DN, Schumacher KR, Marino BS, Stout K, Veldtman G, Younoszai AK, d\u2019Udekem Y (2019) Evaluation and management of the child and adult with Fontan circulation: a scientific statement from the American heart association. Circulation 140:e234\u2013e284","journal-title":"Circulation"},{"key":"3631_CR9","doi-asserted-by":"publisher","first-page":"230","DOI":"10.1017\/S104795112100175X","volume":"32","author":"AM Lubert","year":"2022","unstructured":"Lubert AM, Alsaied T, Trout AT, Dillman JR, Palermo JJ, Eichelbrenner F, Kleier K, Lorts A, Anwar N, Schecter MG, Tiao GM, Chin C, Feldman DS, Jenkins M, Morales DL, Opotowsky AR, Bucuvalas JC, Veldtman GR, Goldstein SL (2022) Developing an adolescent and adult Fontan management programme. Cardiol Young 32:230\u2013235","journal-title":"Cardiol Young"},{"key":"3631_CR10","doi-asserted-by":"publisher","first-page":"100736","DOI":"10.1016\/j.jacadv.2023.100736","volume":"3","author":"RW Elder","year":"2024","unstructured":"Elder RW, Valente AM, Davey B, Wu F, Drucker N, Lombardi K, Lee S, McCollum S, Shabanova V, St. Clair N, Azcue N, Toro-Salazar OH, Rathod RH (2024) How good are cardiologists at predicting major adverse events in Fontan patients? JACC Adv 3:100736","journal-title":"JACC Adv"},{"key":"3631_CR11","doi-asserted-by":"publisher","first-page":"104","DOI":"10.1136\/heartjnl-2016-310108","volume":"103","author":"T Alsaied","year":"2017","unstructured":"Alsaied T, Bokma JP, Engel ME, Kuijpers JM, Hanke SP, Zuhlke L, Zhang B, Veldtman GR (2017) Factors associated with long-term mortality after Fontan procedures: a systematic review. Heart 103:104\u2013110","journal-title":"Heart"},{"key":"3631_CR12","doi-asserted-by":"publisher","first-page":"9155","DOI":"10.1200\/JCO.2005.04.010","volume":"23","author":"JW Mack","year":"2005","unstructured":"Mack JW, Hilden JM, Watterson J, Moore C, Turner B, Grier HE, Weeks JC, Wolfe J (2005) Parent and physician perspectives on quality of care at the end of life in children with cancer. J Clin Oncol 23:9155\u20139161","journal-title":"J Clin Oncol"},{"key":"3631_CR13","doi-asserted-by":"publisher","first-page":"2","DOI":"10.1097\/01.PCC.0000298644.13882.88","volume":"9","author":"KL Meert","year":"2008","unstructured":"Meert KL, Eggly S, Pollack M, Anand KJ, Zimmerman J, Carcillo J, Newth CJ, Dean JM, Willson DF, Nicholson C (2008) Parents\u2019 perspectives on physician-parent communication near the time of a child\u2019s death in the pediatric intensive care unit. Pediatr Crit Care Med 9:2\u20137","journal-title":"Pediatr Crit Care Med"},{"key":"3631_CR14","doi-asserted-by":"publisher","first-page":"e2021050875","DOI":"10.1542\/peds.2021-050875","volume":"148","author":"M Feldmann","year":"2021","unstructured":"Feldmann M, Bataillard C, Ehrler M, Ullrich C, Knirsch W, Gosteli-Peter MA, Held U, Latal B (2021) Cognitive and executive function in congenital heart disease: a meta-analysis. Pediatrics 148:e2021050875","journal-title":"Pediatrics"},{"key":"3631_CR15","doi-asserted-by":"publisher","first-page":"1041","DOI":"10.1080\/09297049.2023.2196398","volume":"29","author":"M Ehrler","year":"2023","unstructured":"Ehrler M, Bellinger DC, Cassidy AR, Newburger JW, Calderon J (2023) Social cognition and behavioral outcomes in congenital heart disease: profiles and neuropsychiatric comorbidities. Child Neuropsychol 29:1041\u20131063","journal-title":"Child Neuropsychol"},{"key":"3631_CR16","doi-asserted-by":"publisher","first-page":"618","DOI":"10.1016\/j.amjcard.2019.05.023","volume":"124","author":"AD Khanna","year":"2019","unstructured":"Khanna AD, Duca LM, Kay JD, Shore J, Kelly SL, Crume T (2019) Prevalence of mental illness in adolescents and adults with congenital heart disease from the colorado congenital heart defect surveillance system. Am J Cardiol 124:618\u2013626","journal-title":"Am J Cardiol"},{"key":"3631_CR17","doi-asserted-by":"publisher","first-page":"e20201693","DOI":"10.1542\/peds.2020-1693","volume":"147","author":"VJ Gonzalez","year":"2021","unstructured":"Gonzalez VJ, Kimbro RT, Cutitta KE, Shabosky JC, Bilal MF, Penny DJ, Lopez KN (2021) Mental health disorders in children with congenital heart disease. Pediatrics 147:e20201693","journal-title":"Pediatrics"},{"key":"3631_CR18","doi-asserted-by":"publisher","first-page":"173","DOI":"10.1017\/S1047951122000063","volume":"32","author":"AD McCormick","year":"2022","unstructured":"McCormick AD, Wilde MM, Charpie CE, Saylor KM, Yu S, Schumacher KR, Cousino MK (2022) Psychological functioning in paediatric patients with single ventricle heart disease: a systematic review. Cardiol Young 32:173\u2013184","journal-title":"Cardiol Young"},{"key":"3631_CR19","doi-asserted-by":"publisher","first-page":"e000110","DOI":"10.1161\/HCQ.0000000000000110","volume":"15","author":"AH Kovacs","year":"2022","unstructured":"Kovacs AH, Brouillette J, Ibeziako P, Jackson JL, Kasparian NA, Kim YY, Livecchi T, Sillman C, Kochilas LK, American Heart Association Council on Lifelong Congenital Heart Disease, Heart Health in the Young, Stroke Council (2022) Psychological outcomes and interventions for individuals with congenital heart disease: a scientific statement from the american heart association. Circ Cardiovasc Qual Outcomes 15:e000110","journal-title":"Circ Cardiovasc Qual Outcomes"}],"container-title":["Pediatric Cardiology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00246-024-03631-5.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s00246-024-03631-5\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00246-024-03631-5.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,11,3]],"date-time":"2025-11-03T08:17:52Z","timestamp":1762157872000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s00246-024-03631-5"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,8,20]]},"references-count":19,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2025,12]]}},"alternative-id":["3631"],"URL":"https:\/\/doi.org\/10.1007\/s00246-024-03631-5","relation":{},"ISSN":["0172-0643","1432-1971"],"issn-type":[{"type":"print","value":"0172-0643"},{"type":"electronic","value":"1432-1971"}],"subject":[],"published":{"date-parts":[[2024,8,20]]},"assertion":[{"value":"7 June 2024","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"14 August 2024","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"20 August 2024","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The authors have no conflicts of interest to disclose.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interest"}}]}}