{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,6]],"date-time":"2026-10-06T08:44:53Z","timestamp":1791276293914,"version":"4.1.0"},"reference-count":30,"publisher":"Springer Science and Business Media LLC","issue":"10","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Ann Hematol"],"published-print":{"date-parts":[[2012,10]]},"DOI":"10.1007\/s00277-012-1495-1","type":"journal-article","created":{"date-parts":[[2012,7,22]],"date-time":"2012-07-22T02:55:28Z","timestamp":1342925728000},"page":"1587-1595","source":"Crossref","is-referenced-by-count":47,"title":["Perceived information provision and satisfaction among lymphoma and multiple myeloma survivors\u2014results from a Dutch population-based study"],"prefix":"10.1007","volume":"91","author":[{"given":"Simone","family":"Oerlemans","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Olga","family":"Husson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Floortje","family":"Mols","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Philip","family":"Poortmans","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Henk","family":"Roerdink","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laurien A.","family":"Daniels","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carien L.","family":"Creutzberg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lonneke V.","family":"van de Poll-Franse","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2012,5,26]]},"reference":[{"key":"1495_CR1","unstructured":"Kankerbestrijding SvK. Kanker in Nederland tot 2020, Trends en prognoses. http:\/\/www.kankerbestrijding.nl 2011. Accessed 5 January 2012"},{"key":"1495_CR2","unstructured":"Howlader N, Noone AM, Krapcho M, et al. SEER Cancer Statistics Review, 1975\u20132008, National Cancer Institute. Bethesda, MD, http:\/\/seer.cancer.gov\/csr\/1975_2008\/ , based on November 2010 SEER data submission, posted to the SEER web site, 2011. Accessed 10 May 2011"},{"key":"1495_CR3","unstructured":"Beter-projectgroep. Beter na Hodgkin. https:\/\/beternahodgkin.nl . Accessed 10 January 2012"},{"key":"1495_CR4","doi-asserted-by":"crossref","first-page":"1471","DOI":"10.1002\/cncr.23713","volume":"113","author":"DK McInnes","year":"2008","unstructured":"McInnes DK, Cleary PD, Stein KD et al (2008) Perceptions of cancer-related information among cancer survivors: a report from the American Cancer Society's Studies of Cancer Survivors. Cancer 113:1471\u20131479","journal-title":"Cancer"},{"key":"1495_CR5","doi-asserted-by":"crossref","first-page":"1048","DOI":"10.1002\/pon.1305","volume":"17","author":"NJ Davies","year":"2008","unstructured":"Davies NJ, Kinman G, Thomas RJ, Bailey T (2008) Information satisfaction in breast and prostate cancer patients: implications for quality of life. Psychooncology 17:1048\u20131052","journal-title":"Psychooncology"},{"key":"1495_CR6","doi-asserted-by":"crossref","first-page":"137","DOI":"10.1891\/1061-3749.6.2.137","volume":"6","author":"LF Degner","year":"1998","unstructured":"Degner LF, Davison BJ, Sloan JA, Mueller B (1998) Development of a scale to measure information needs in cancer care. J Nurs Meas 6:137\u2013153","journal-title":"J Nurs Meas"},{"key":"1495_CR7","doi-asserted-by":"crossref","first-page":"2630","DOI":"10.1002\/(SICI)1097-0142(19960615)77:12<2630::AID-CNCR29>3.0.CO;2-S","volume":"77","author":"PN Butow","year":"1996","unstructured":"Butow PN, Kazemi JN, Beeney LJ et al (1996) When the diagnosis is cancer: patient communication experiences and preferences. Cancer 77:2630\u20132637","journal-title":"Cancer"},{"key":"1495_CR8","doi-asserted-by":"crossref","first-page":"761","DOI":"10.1093\/annonc\/mdq413","volume":"22","author":"O Husson","year":"2011","unstructured":"Husson O, Mols F, van de Poll-Franse LV (2011) The relation between information provision and health-related quality of life, anxiety and depression among cancer survivors: a systematic review. Ann Oncol 22:761\u2013772","journal-title":"Ann Oncol"},{"key":"1495_CR9","doi-asserted-by":"crossref","first-page":"279","DOI":"10.1111\/j.1600-0609.2009.01303.x","volume":"83","author":"AK Kvam","year":"2009","unstructured":"Kvam AK, Fayers P, Hjermstad M et al (2009) Health-related quality of life assessment in randomised controlled trials in multiple myeloma: a critical review of methodology and impact on treatment recommendations. Eur J Haematol 83:279\u2013289","journal-title":"Eur J Haematol"},{"key":"1495_CR10","doi-asserted-by":"crossref","first-page":"993","DOI":"10.1007\/s00277-011-1274-4","volume":"90","author":"S Oerlemans","year":"2011","unstructured":"Oerlemans S, Mols F, Nijziel MR et al (2011) The impact of treatment, socio-demographic and clinical characteristics on health-related quality of life among Hodgkin's and non-Hodgkin's lymphoma survivors: a systematic review. Ann Hematol 90:993\u20131004","journal-title":"Ann Hematol"},{"key":"1495_CR11","volume-title":"International classification of diseases for oncology","author":"A Fritz","year":"2000","unstructured":"Fritz A, Percy C, Jack A et al (2000) International classification of diseases for oncology, 3rd edn. World Health Organization, Geneva","edition":"3"},{"issue":"14","key":"1495_CR12","doi-asserted-by":"crossref","first-page":"2188","DOI":"10.1016\/j.ejca.2011.04.034","volume":"47","author":"LV Poll-Franse van de","year":"2011","unstructured":"van de Poll-Franse LV, Horevoorts N, Eenbergen MV et al (2011) The Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship registry: Scope, rationale and design of an infrastructure for the study of physical and psychosocial outcomes in cancer survivorship cohorts. Eur J Cancer 47(14):2188\u201394","journal-title":"Eur J Cancer"},{"key":"1495_CR13","doi-asserted-by":"crossref","first-page":"249","DOI":"10.1002\/pon.1047","volume":"16","author":"JI Arraras","year":"2007","unstructured":"Arraras JI, Kuljanic-Vlasic K, Bjordal K et al (2007) EORTC QLQ-INFO26: a questionnaire to assess information given to cancer patients a preliminary analysis in eight countries. Psychooncology 16:249\u2013254","journal-title":"Psychooncology"},{"key":"1495_CR14","doi-asserted-by":"crossref","first-page":"2726","DOI":"10.1016\/j.ejca.2010.06.118","volume":"46","author":"JI Arraras","year":"2010","unstructured":"Arraras JI, Greimel E, Sezer O et al (2010) An international validation study of the EORTC QLQ-INFO25 questionnaire: an instrument to assess the information given to cancer patients. Eur J Cancer 46:2726\u20132738","journal-title":"Eur J Cancer"},{"key":"1495_CR15","doi-asserted-by":"crossref","first-page":"156","DOI":"10.1002\/art.10993","volume":"49","author":"O Sangha","year":"2003","unstructured":"Sangha O, Stucki G, Liang MH et al (2003) The Self-Administered Comorbidity Questionnaire: a new method to assess comorbidity for clinical and health services research. Arthritis Rheum 49:156\u2013163","journal-title":"Arthritis Rheum"},{"key":"1495_CR16","first-page":"1860","volume":"31","author":"PP Carbone","year":"1971","unstructured":"Carbone PP, Kaplan HS, Musshoff K et al (1971) Report of the Committee on Hodgkin's Disease Staging Classification. Cancer Res 31:1860\u20131861","journal-title":"Cancer Res"},{"key":"1495_CR17","doi-asserted-by":"crossref","first-page":"139","DOI":"10.1200\/JCO.1998.16.1.139","volume":"16","author":"D Osoba","year":"1998","unstructured":"Osoba D, Rodrigues G, Myles J et al (1998) Interpreting the significance of changes in health-related quality-of-life scores. J Clin Oncol 16:139\u2013144","journal-title":"J Clin Oncol"},{"key":"1495_CR18","unstructured":"(EORTC) EOfRaToC. http:\/\/groups.eortc.be\/qol\/documentation_manuals . Accessed 6 September 2011"},{"key":"1495_CR19","doi-asserted-by":"crossref","first-page":"179","DOI":"10.1007\/s11764-008-0055-0","volume":"2","author":"EB Beckjord","year":"2008","unstructured":"Beckjord EB, Arora NK, McLaughlin W et al (2008) Health-related information needs in a large and diverse sample of adult cancer survivors: implications for cancer care. J Cancer Surviv 2:179\u2013189","journal-title":"J Cancer Surviv"},{"key":"1495_CR20","doi-asserted-by":"crossref","first-page":"193","DOI":"10.1081\/CNV-100000154","volume":"19","author":"TC Davis","year":"2001","unstructured":"Davis TC, Dolan NC, Ferreira MR et al (2001) The role of inadequate health literacy skills in colorectal cancer screening. Cancer Invest 19:193\u2013200","journal-title":"Cancer Invest"},{"key":"1495_CR21","doi-asserted-by":"crossref","first-page":"134","DOI":"10.3322\/canjclin.52.3.134","volume":"52","author":"TC Davis","year":"2002","unstructured":"Davis TC, Williams MV, Marin E et al (2002) Health literacy and cancer communication. CA Cancer J Clin 52:134\u2013149","journal-title":"CA Cancer J Clin"},{"key":"1495_CR22","doi-asserted-by":"crossref","first-page":"879","DOI":"10.1111\/j.1365-2133.2010.09895.x","volume":"163","author":"O Husson","year":"2010","unstructured":"Husson O, Holterhues C, Mols F et al (2010) Melanoma survivors are dissatisfied with perceived information about their diagnosis, treatment and follow-up care. Br J Dermatol 163:879\u2013881","journal-title":"Br J Dermatol"},{"key":"1495_CR23","doi-asserted-by":"crossref","first-page":"1247","DOI":"10.1136\/bmj.319.7219.1247","volume":"319","author":"R Jones","year":"1999","unstructured":"Jones R, Pearson J, McGregor S et al (1999) Cross sectional survey of patients' satisfaction with information about cancer. BMJ 319:1247\u20131248","journal-title":"BMJ"},{"key":"1495_CR24","doi-asserted-by":"crossref","first-page":"250","DOI":"10.1016\/j.pec.2004.06.006","volume":"57","author":"LJ Rutten","year":"2005","unstructured":"Rutten LJ, Arora NK, Bakos AD et al (2005) Information needs and sources of information among cancer patients: a systematic review of research (1980\u20132003). Patient Educ Couns 57:250\u2013261","journal-title":"Patient Educ Couns"},{"key":"1495_CR25","doi-asserted-by":"crossref","first-page":"251","DOI":"10.1097\/01.NCC.0000281735.25609.af","volume":"30","author":"J Jansen","year":"2007","unstructured":"Jansen J, van Weert J, van Dulmen S et al (2007) Patient education about treatment in cancer care: an overview of the literature on older patients' needs. Cancer Nurs 30:251\u2013260","journal-title":"Cancer Nurs"},{"key":"1495_CR26","doi-asserted-by":"crossref","first-page":"971","DOI":"10.1097\/01.PSY.0000028825.64279.F2","volume":"64","author":"LM Petersson","year":"2002","unstructured":"Petersson LM, Nordin K, Glimelius B et al (2002) Differential effects of cancer rehabilitation depending on diagnosis and patients' cognitive coping style. Psychosom Med 64:971\u2013980","journal-title":"Psychosom Med"},{"key":"1495_CR27","doi-asserted-by":"crossref","first-page":"1","DOI":"10.3310\/hta6320","volume":"6","author":"R Crow","year":"2002","unstructured":"Crow R, Gage H, Hampson S et al (2002) The measurement of satisfaction with healthcare: implications for practice from a systematic review of the literature. Health Technol Assess 6:1\u2013244","journal-title":"Health Technol Assess"},{"issue":"3","key":"1495_CR28","doi-asserted-by":"crossref","first-page":"e229","DOI":"10.1016\/j.pec.2011.03.022","volume":"85","author":"RK Matsuyama","year":"2011","unstructured":"Matsuyama RK, Wilson-Genderson M, Kuhn L et al (2011) Education level, not health literacy, associated with information needs for patients with cancer. Patient Educ Couns 85(3):e229\u201336","journal-title":"Patient Educ Couns"},{"key":"1495_CR29","doi-asserted-by":"crossref","DOI":"10.17226\/10883","volume-title":"Health literacy: a prescription to end confusion","author":"L Nielsen-Bohlman","year":"2004","unstructured":"Nielsen-Bohlman L, Panzer A, Kindig D (2004) Health literacy: a prescription to end confusion. National Academies Press, Washington, DC"},{"key":"1495_CR30","volume-title":"From cancer patient to cancer survivor: lost in transition","author":"M Hewitt","year":"2006","unstructured":"Hewitt M, Greenfield S, Stovall E (2006) From cancer patient to cancer survivor: lost in transition. National Academies Press, Washington, DC"}],"container-title":["Annals of Hematology"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s00277-012-1495-1","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,1,22]],"date-time":"2022-01-22T16:11:37Z","timestamp":1642867897000},"score":1,"resource":{"primary":{"URL":"http:\/\/link.springer.com\/10.1007\/s00277-012-1495-1"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2012,5,26]]},"references-count":30,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2012,10]]}},"alternative-id":["1495"],"URL":"https:\/\/doi.org\/10.1007\/s00277-012-1495-1","relation":{},"ISSN":["0939-5555","1432-0584"],"issn-type":[{"value":"0939-5555","type":"print"},{"value":"1432-0584","type":"electronic"}],"subject":[],"published":{"date-parts":[[2012,5,26]]}}}