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Analysing patterns of this online activity offers a new way to understand our patients\u2019 concerns and behaviour around disease. Large volume data can be evaluated on a scale not feasible through alternative methods. A cross sectional review of specific terms relating to \u2018back pain\u2019 (BP) and \u2018ankylosing spondylitis\u2019 (AS) were tracked internationally on popular websites, blogs and boards over two 3\u00a0month periods, in 2016 and 2019. Relevant co-terms were also tracked in these discussions, such as \u2018exercise\u2019, \u2018medication\u2019 and \u2018doctor\u2019. The size of the current online BP conversation is significant; there were over 100,000 mentions\/month across each study period, particularly \u2018low-\u2019 BP. Discussions about AS increased threefold between 2016 and 2019. More discussions took place online at the start of the week, and in the afternoons. Pregnancy, baby and mens\u2019 health resources were the most popular sites for BP chats. People posting about AS were mainly female (80%) and predominantly had an established diagnosis, with health forums hosting more of these discussions than for BP. Exercise was more commonly mentioned in the context of BP, whereas medications were more common in the AS conversations. Analysing online discussions about BP and AS helps to identify themes amongst patients. Some are seeking a diagnosis, support, or treatment information. Understanding the massive scale of online conversations could help clinicians adopt targeted approaches to increase patient identification, meet patient concerns better, and optimise engagement.<\/jats:p>","DOI":"10.1007\/s00296-020-04600-w","type":"journal-article","created":{"date-parts":[[2020,5,19]],"date-time":"2020-05-19T14:51:48Z","timestamp":1589899908000},"page":"1493-1499","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":12,"title":["Back pain, ankylosing spondylitis and social media usage; a descriptive analysis of current activity"],"prefix":"10.1007","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9619-226X","authenticated-orcid":false,"given":"Elizabeth","family":"Reilly","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9720-0396","authenticated-orcid":false,"given":"Raj","family":"Sengupta","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2020,5,19]]},"reference":[{"issue":"1","key":"4600_CR1","doi-asserted-by":"publisher","first-page":"442","DOI":"10.1186\/s12913-016-1691-0","volume":"16","author":"E Smailhodzic","year":"2016","unstructured":"Smailhodzic E, Hooijsma W, Boonstra A, Langley DJ (2016) Social media use in healthcare: a systematic review of effects on patients and on their relationship with healthcare professionals. 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ER has been part funded through a research grant by Celgene Corp for unrelated research. RS has received research grants, consultancy and speaker fees from Abbvie, Biogen, Celgene, Lilly, Novartis and UCB.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interest"}},{"value":"Ethical approval was not required as the information used was in the public domain and patients were not recruited for participation. No patient identifiable information was recorded or analysed in the study. The work did not fulfil the Health Research Authority\u2019s definition of research, as participants were not randomised, there was not change in care for participants, and the results could not be generalised outside of the specific circumstance that was being analysed.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval"}},{"value":"Consent to participate and publication: Participants were not required to consent as no recruitment took place to collect data, and data was in the public domain.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Informed consent"}}]}}