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Annual cross-sectional data on treatment, disease activity, patient-reported outcomes, hospitalization and employment were compared across the years. Information on phenotypes, organ manifestations and autoantibodies was collected for a subset to compare the assessment of global health, pain, fatigue and sleeping disorders.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      In 2017, significantly more IIM patients were assessed to be in low disease activity (94%) than in 1997 (59%),\n                      <jats:italic>p<\/jats:italic>\n                      \u2009&lt;\u20090.01. Pain (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.001), global health (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.049), fatigue (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.03) and sleeping disorders (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.01) also improved since recording. Glucocorticoid use decreased from 84 to 58% (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009&lt;\u20090.01). Employment in patients\u2009&lt;\u200965\u00a0years remained unchanged (53%), while early retirement (23\u20139%), hospitalization\/year (34\u201318%) and sick leave (52\u201324%) decreased. A total of 186 patients with information on subtypes were classified as polymyositis (44%), dermatomyositis (33%), anti-synthetase syndrome (10%), overlapping-myositis (8%), inclusion body myositis (2%), necrotizing myositis (0.5%) and unspecific (3%). The most frequently reported symptoms were limitations in global health (60%), fatigue (57%) and sleeping disorders (51%), and all of them were most frequent in overlap-myositis. Pulmonary hypertension and cardiomyopathy were associated with poor outcomes regarding global health, daily activities and fatigue.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>IIM patients report better outcomes than 20\u00a0years ago, along with good physician-reported disease control. Global health, fatigue and sleeping disorders are relevant patient-reported domains in IIM.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1007\/s00296-020-04634-0","type":"journal-article","created":{"date-parts":[[2020,6,27]],"date-time":"2020-06-27T03:09:00Z","timestamp":1593227340000},"page":"1639-1647","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":27,"title":["Trends in idiopathic inflammatory myopathies: cross-sectional data from the German National Database"],"prefix":"10.1007","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0886-0294","authenticated-orcid":false,"given":"Katinka","family":"Albrecht","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9070-0761","authenticated-orcid":false,"given":"D\u00f6rte","family":"Huscher","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3923-2728","authenticated-orcid":false,"given":"Johanna","family":"Callhoff","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jutta G.","family":"Richter","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1193-0097","authenticated-orcid":false,"given":"Tobias","family":"Alexander","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J\u00f6rg","family":"Henes","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7072-9022","authenticated-orcid":false,"given":"Angela","family":"Zink","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2020,6,27]]},"reference":[{"key":"4634_CR1","doi-asserted-by":"publisher","first-page":"275","DOI":"10.1007\/s11926-012-0249-3","volume":"14","author":"I Marie","year":"2012","unstructured":"Marie I (2012) Morbidity and mortality in adult polymyositis and dermatomyositis. 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