{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,1,24]],"date-time":"2025-01-24T07:10:08Z","timestamp":1737702608132,"version":"3.33.0"},"reference-count":50,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2025,1,13]],"date-time":"2025-01-13T00:00:00Z","timestamp":1736726400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"},{"start":{"date-parts":[[2025,1,13]],"date-time":"2025-01-13T00:00:00Z","timestamp":1736726400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Rheumatol Int"],"DOI":"10.1007\/s00296-024-05782-3","type":"journal-article","created":{"date-parts":[[2025,1,13]],"date-time":"2025-01-13T09:19:15Z","timestamp":1736759955000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Hypermobile type Ehlers-Danlos syndrome and generalized hypermobile spectrum disorder treatment preferences \u2013 a cross-sectional survey of patients"],"prefix":"10.1007","volume":"45","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0942-3531","authenticated-orcid":false,"given":"Patricia","family":"Teran-Wodzinski","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1260-6694","authenticated-orcid":false,"given":"Ambuj","family":"Kumar","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2025,1,13]]},"reference":[{"issue":"1","key":"5782_CR1","doi-asserted-by":"publisher","first-page":"48","DOI":"10.1002\/ajmg.c.31538","volume":"175","author":"B Tinkle","year":"2017","unstructured":"Tinkle B, Castori M, Berglund B, Cohen H, Grahame R, Kazka H, Levy H (2017) Hypermobile Ehlers-Danlos syndrome (a.k.a. Ehlers-Danlos syndrome type III and Ehlers-Danlos syndrome hypermobility type): clinical description and natural history. Am J Med Genet C 175(1):48\u201369. https:\/\/doi.org\/10.1002\/ajmg.c.31538","journal-title":"Am J Med Genet C"},{"issue":"1","key":"5782_CR2","doi-asserted-by":"publisher","first-page":"148","DOI":"10.1002\/ajmg.c.31539","volume":"175","author":"M Castori","year":"2017","unstructured":"Castori M, Tinkle B, Levy H, Grahame R, Malfait F, Hakim A (2017) A framework for the classification of joint hypermobility and related conditions. Am J Med Genet C 175(1):148\u2013157. https:\/\/doi.org\/10.1002\/ajmg.c.31539","journal-title":"Am J Med Genet C"},{"issue":"10","key":"5782_CR3","doi-asserted-by":"publisher","first-page":"1785","DOI":"10.1007\/s00296-021-04968-3","volume":"41","author":"B Aubry-Rozier","year":"2021","unstructured":"Aubry-Rozier B, Schwitzguebel A, Valerio F, Tanniger J, Paquier C, Berna C, H\u00fcgle T, Benaim C (2021) Are patients with hypermobile Ehlers-Danlos syndrome or hypermobility spectrum disorder so different? Rheumatol Int 41(10):1785\u20131794. https:\/\/doi.org\/10.1007\/s00296-021-04968-3","journal-title":"Rheumatol Int"},{"issue":"16","key":"5782_CR4","doi-asserted-by":"publisher","first-page":"1339","DOI":"10.3109\/09638280903514739","volume":"32","author":"L Rombaut","year":"2010","unstructured":"Rombaut L, Malfait F, Cools A, De Paepe A, Calders P (2010) Musculoskeletal complaints, physical activity and health-related quality of life among patients with the Ehlers-Danlos syndrome hypermobility type. Disabil Rehabil 32(16):1339\u20131345. https:\/\/doi.org\/10.3109\/09638280903514739","journal-title":"Disabil Rehabil"},{"issue":"3","key":"5782_CR5","doi-asserted-by":"publisher","first-page":"370","DOI":"10.1016\/j.jpainsymman.2009.12.026","volume":"40","author":"NC Voermans","year":"2010","unstructured":"Voermans NC, Knoop H, Bleijenberg G, van Engelen BG (2010) Pain in Ehlers-Danlos syndrome is common, severe, and associated with functional impairment. J Pain Symptom Manag 40(3):370\u2013378. https:\/\/doi.org\/10.1016\/j.jpainsymman.2009.12.026","journal-title":"J Pain Symptom Manag"},{"issue":"8","key":"5782_CR6","doi-asserted-by":"publisher","first-page":"706","DOI":"10.3109\/09638288.2010.531373","volume":"33","author":"NC Voermans","year":"2011","unstructured":"Voermans NC, Knoop H (2011) Both pain and fatigue are important possible determinants of disability in patients with the Ehlers-Danlos syndrome hypermobility type. Disabil Rehabil 33(8):706\u2013707. https:\/\/doi.org\/10.3109\/09638288.2010.531373","journal-title":"Disabil Rehabil"},{"issue":"11","key":"5782_CR7","doi-asserted-by":"publisher","first-page":"3661","DOI":"10.1007\/s00296-011-2071-z","volume":"32","author":"A Checa","year":"2012","unstructured":"Checa A (2012) Severe cartilage damage of the knee joint in two young women with hypermobility. Rheumatol Int 32(11):3661\u20133664. https:\/\/doi.org\/10.1007\/s00296-011-2071-z","journal-title":"Rheumatol Int"},{"issue":"1","key":"5782_CR8","first-page":"15","volume":"22","author":"G Luder","year":"2022","unstructured":"Luder G, Aeberli D, Mueller Mebes C, Haupt-Bertschy B, Verra ML, Baeyens JP (2022) Correlation of muscle and bone parameters, daily function and participation in women with generalized joint hypermobility: a descriptive evaluation. J Musculoskel Neuronal Interact 22(1):15\u201326","journal-title":"J Musculoskel Neuronal Interact"},{"issue":"1","key":"5782_CR9","doi-asserted-by":"publisher","first-page":"8","DOI":"10.1002\/ajmg.c.31552","volume":"175","author":"F Malfait","year":"2017","unstructured":"Malfait F, Francomano C, Byers P, Belmont J, Berglund B, Black J, Bloom L, Bowen JM, Brady AF, Burrows NP, Castori M, Cohen H, Colombi M, Demirdas S, De Backer J, De Paepe A, Fournel-Gigleux S, Frank M, Ghali N, Giunta C et al (2017) The 2017 international classification of the Ehlers-Danlos syndromes. Am J Med Genet C 175(1):8\u201326. https:\/\/doi.org\/10.1002\/ajmg.c.31552","journal-title":"Am J Med Genet C"},{"issue":"3","key":"5782_CR10","doi-asserted-by":"publisher","first-page":"318","DOI":"10.1002\/dvdy.220","volume":"250","author":"C Gensemer","year":"2021","unstructured":"Gensemer C, Burks R, Kautz S, Judge DP, Lavallee M, Norris RA (2021) Hypermobile Ehlers-Danlos syndromes: complex phenotypes, challenging diagnoses, and poorly understood causes. Dev Dynamics: Official Publication Am Association Anatomists 250(3):318\u2013344. https:\/\/doi.org\/10.1002\/dvdy.220","journal-title":"Dev Dynamics: Official Publication Am Association Anatomists"},{"issue":"1","key":"5782_CR11","doi-asserted-by":"publisher","first-page":"158","DOI":"10.1002\/ajmg.c.31545","volume":"175","author":"RH Engelbert","year":"2017","unstructured":"Engelbert RH, Juul-Kristensen B, Pacey V, de Wandele I, Smeenk S, Woinarosky N, Sabo S, Scheper MC, Russek L, Simmonds JV (2017) The evidence-based rationale for physical therapy treatment of children, adolescents, and adults diagnosed with joint hypermobility syndrome\/hypermobile Ehlers Danlos syndrome. Am J Med Genet C 175(1):158\u2013167. https:\/\/doi.org\/10.1002\/ajmg.c.31545","journal-title":"Am J Med Genet C"},{"key":"5782_CR12","doi-asserted-by":"publisher","first-page":"59","DOI":"10.1186\/s13047-018-0302-1","volume":"11","author":"B Peterson","year":"2018","unstructured":"Peterson B, Coda A, Pacey V, Hawke F (2018) Physical and mechanical therapies for lower limb symptoms in children with hypermobility spectrum disorder and Hypermobile Ehlers-Danlos Syndrome: a systematic review. J Foot Ankle Res 11:59. https:\/\/doi.org\/10.1186\/s13047-018-0302-1","journal-title":"J Foot Ankle Res"},{"issue":"10","key":"5782_CR13","doi-asserted-by":"publisher","first-page":"2986","DOI":"10.1002\/ajmg.a.62393","volume":"185","author":"G Reychler","year":"2021","unstructured":"Reychler G, De Backer MM, Piraux E, Poncin W, Caty G (2021) Physical therapy treatment of Hypermobile Ehlers-Danlos syndrome: a systematic review. Am J Med Genet: A 185(10):2986\u20132994. https:\/\/doi.org\/10.1002\/ajmg.a.62393","journal-title":"Am J Med Genet: A"},{"issue":"3","key":"5782_CR14","doi-asserted-by":"publisher","first-page":"1113","DOI":"10.1007\/s10067-020-05284-0","volume":"40","author":"S Palmer","year":"2021","unstructured":"Palmer S, Davey I, Oliver L, Preece A, Sowerby L, House S (2021) The effectiveness of conservative interventions for the management of syndromic hypermobility: a systematic literature review. Clin Rheumatol 40(3):1113\u20131129. https:\/\/doi.org\/10.1007\/s10067-020-05284-0","journal-title":"Clin Rheumatol"},{"issue":"10","key":"5782_CR15","doi-asserted-by":"publisher","first-page":"1936","DOI":"10.1080\/09638288.2023.2216028","volume":"46","author":"M Garreth Brittain","year":"2024","unstructured":"Garreth Brittain M, Flanagan S, Foreman L, Teran-Wodzinski P (2024) Physical therapy interventions in generalized hypermobility spectrum disorder and hypermobile Ehlers-Danlos syndrome: a scoping review. Disabil Rehabil 46(10):1936\u20131953. https:\/\/doi.org\/10.1080\/09638288.2023.2216028","journal-title":"Disabil Rehabil"},{"issue":"2","key":"5782_CR16","doi-asserted-by":"publisher","first-page":"183","DOI":"10.1002\/msc.1387","volume":"17","author":"S Palmer","year":"2019","unstructured":"Palmer S, Bridgeman K, Di Pierro I, Jones R, Phillips C, Wilson M (2019) The views of people with joint hypermobility syndrome on its impact, management and the use of patient-reported outcome measures. A thematic analysis of open-ended questionnaire responses. Musculoskelet Care 17(2):183\u2013193. https:\/\/doi.org\/10.1002\/msc.1387","journal-title":"Musculoskelet Care"},{"issue":"4","key":"5782_CR17","doi-asserted-by":"publisher","first-page":"731","DOI":"10.1080\/09638288.2023.2176554","volume":"46","author":"E Estrella","year":"2024","unstructured":"Estrella E, Frazier PA (2024) Healthcare experiences among adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder in the United States. Disabil Rehabil 46(4):731\u2013740. https:\/\/doi.org\/10.1080\/09638288.2023.2176554","journal-title":"Disabil Rehabil"},{"issue":"1","key":"5782_CR18","doi-asserted-by":"publisher","first-page":"29","DOI":"10.1186\/s12955-017-0604-1","volume":"15","author":"G Zeppieri","year":"2017","unstructured":"Zeppieri G, Jr, George SZ (2017) Patient-defined desired outcome, success criteria, and expectation in outpatient physical therapy: a longitudinal assessment. Health Qual Life Outcomes 15(1):29. https:\/\/doi.org\/10.1186\/s12955-017-0604-1","journal-title":"Health Qual Life Outcomes"},{"issue":"1","key":"5782_CR19","doi-asserted-by":"publisher","first-page":"6","DOI":"10.1111\/j.1526-4637.2009.00685.x","volume":"11","author":"EM O\u2019Brien","year":"2010","unstructured":"O\u2019Brien EM, Staud RM, Hassinger AD, McCulloch RC, Craggs JG, Atchison JW, Price DD, Robinson ME (2010) Patient-centered perspective on treatment outcomes in chronic pain. Pain Med (Malden Mass) 11(1):6\u201315. https:\/\/doi.org\/10.1111\/j.1526-4637.2009.00685.x","journal-title":"Pain Med (Malden Mass)"},{"issue":"5","key":"5782_CR20","doi-asserted-by":"publisher","first-page":"336","DOI":"10.1111\/j.1526-4637.2005.00059.x","volume":"6","author":"ME Robinson","year":"2005","unstructured":"Robinson ME, Brown JL, George SZ, Edwards PS, Atchison JW, Hirsh AT, Waxenberg LB, Wittmer V, Fillingim RB (2005) Multidimensional success criteria and expectations for treatment of chronic pain: the patient perspective. Pain Med (Malden Mass) 6(5):336\u2013345. https:\/\/doi.org\/10.1111\/j.1526-4637.2005.00059.x","journal-title":"Pain Med (Malden Mass)"},{"issue":"6","key":"5782_CR21","doi-asserted-by":"publisher","first-page":"e798","DOI":"10.1097\/PR9.0000000000000798","volume":"4","author":"AT Wilson","year":"2019","unstructured":"Wilson AT, George SZ, Bialosky JE (2019) Patient-defined outcomes for pain, fatigue, emotional distress, and interference with activities did not differ by age for individuals with musculoskeletal pain. Pain Rep 4(6):e798. https:\/\/doi.org\/10.1097\/PR9.0000000000000798","journal-title":"Pain Rep"},{"issue":"10","key":"5782_CR22","doi-asserted-by":"publisher","first-page":"1935","DOI":"10.1007\/s00296-023-05378-3","volume":"43","author":"P Teran-Wodzinski","year":"2023","unstructured":"Teran-Wodzinski P, Kumar A (2023) Clinical characteristics of patients with hypermobile type Ehlers-Danlos syndrome (hEDS) and generalized hypermobility spectrum disorders (G-HSD): an online survey. Rheumatol Int 43(10):1935\u20131945. https:\/\/doi.org\/10.1007\/s00296-023-05378-3","journal-title":"Rheumatol Int"},{"issue":"3","key":"5782_CR23","doi-asserted-by":"publisher","first-page":"101508","DOI":"10.1016\/j.berh.2020.101508","volume":"34","author":"BT Tinkle","year":"2020","unstructured":"Tinkle BT (2020) Symptomatic joint hypermobility. Best Pract Res Clin Rheumatol 34(3):101508. https:\/\/doi.org\/10.1016\/j.berh.2020.101508","journal-title":"Best Pract Res Clin Rheumatol"},{"issue":"6","key":"5782_CR24","doi-asserted-by":"publisher","first-page":"985","DOI":"10.1007\/s00296-023-05298-2","volume":"43","author":"NL Clark","year":"2023","unstructured":"Clark NL, Johnson M, Rangan A, Kottam L, Swainston K (2023) The biopsychosocial impact of hypermobility spectrum disorders in adults: a scoping review. Rheumatol Int 43(6):985\u20131014. https:\/\/doi.org\/10.1007\/s00296-023-05298-2","journal-title":"Rheumatol Int"},{"issue":"3","key":"5782_CR25","doi-asserted-by":"publisher","first-page":"e34","DOI":"10.2196\/jmir.6.3.e34","volume":"6","author":"G Eysenbach","year":"2004","unstructured":"Eysenbach G (2004) Improving the quality of web surveys: the Checklist for reporting results of internet E-Surveys (CHERRIES). J Med Internet Res 6(3):e34. https:\/\/doi.org\/10.2196\/jmir.6.3.e34","journal-title":"J Med Internet Res"},{"issue":"10","key":"5782_CR26","doi-asserted-by":"publisher","first-page":"3179","DOI":"10.1007\/s11606-021-06737-1","volume":"36","author":"A Sharma","year":"2021","unstructured":"Sharma A, Minh Duc NT, Luu Lam Thang T, Nam NH, Ng SJ, Abbas KS, Huy NT, Maru\u0161i\u0107 A, Paul CL, Kwok J, Karbwang J, de Waure C, Drummond FJ, Kizawa Y, Taal E, Vermeulen J, Lee GHM, Gyedu A, To G, Verra ML et al (2021) A Consensus-based checklist for reporting of Survey studies (CROSS). J Gen Intern Med 36(10):3179\u20133187. https:\/\/doi.org\/10.1007\/s11606-021-06737-1","journal-title":"J Gen Intern Med"},{"issue":"45","key":"5782_CR27","doi-asserted-by":"publisher","first-page":"e398","DOI":"10.3346\/jkms.2020.35.e398","volume":"35","author":"PS Gaur","year":"2020","unstructured":"Gaur PS, Zimba O, Agarwal V, Gupta L (2020) Reporting Survey Based studies - a primer for authors. J Korean Med Sci 35(45):e398. https:\/\/doi.org\/10.3346\/jkms.2020.35.e398","journal-title":"J Korean Med Sci"},{"issue":"11","key":"5782_CR28","doi-asserted-by":"publisher","first-page":"e031365","DOI":"10.1136\/bmjopen-2019-031365","volume":"9","author":"JC Demmler","year":"2019","unstructured":"Demmler JC, Atkinson MD, Reinhold EJ, Choy E, Lyons RA, Brophy ST (2019) Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic cohort study and case-control comparison. BMJ open 9(11):e031365. https:\/\/doi.org\/10.1136\/bmjopen-2019-031365","journal-title":"BMJ open"},{"issue":"4","key":"5782_CR29","doi-asserted-by":"publisher","first-page":"1029","DOI":"10.1007\/s10067-015-2951-9","volume":"35","author":"LN Russek","year":"2016","unstructured":"Russek LN, Errico DM (2016) Prevalence, injury rate and, symptom frequency in generalized joint laxity and joint hypermobility syndrome in a healthy college population. Clin Rheumatol 35(4):1029\u20131039. https:\/\/doi.org\/10.1007\/s10067-015-2951-9","journal-title":"Clin Rheumatol"},{"issue":"671","key":"5782_CR30","doi-asserted-by":"publisher","first-page":"e433","DOI":"10.3399\/bjgp18X695765","volume":"68","author":"M Murphy","year":"2018","unstructured":"Murphy M, Hollinghurst S, Cowlishaw S, Salisbury C (2018) Primary care outcomes Questionnaire: psychometric testing of a new instrument. Br J Gen Practice: J Royal Coll Gen Practitioners 68(671):e433\u2013e440. https:\/\/doi.org\/10.3399\/bjgp18X695765","journal-title":"Br J Gen Practice: J Royal Coll Gen Practitioners"},{"issue":"1","key":"5782_CR31","doi-asserted-by":"publisher","first-page":"246","DOI":"10.1007\/s11999-015-4595-0","volume":"474","author":"I El-Daly","year":"2016","unstructured":"El-Daly I, Ibraheim H, Rajakulendran K, Culpan P, Bates P (2016) Are patient-reported outcome measures in orthopaedics easily read by patients? Clin Orthop Relat Res 474(1):246\u2013255. https:\/\/doi.org\/10.1007\/s11999-015-4595-0","journal-title":"Clin Orthop Relat Res"},{"issue":"Suppl 2","key":"5782_CR32","doi-asserted-by":"publisher","first-page":"27","DOI":"10.2106\/JBJS.20.00060","volume":"102","author":"RF Santore","year":"2020","unstructured":"Santore RF, Gosey GM, Muldoon MP, Long AA, Healey RM (2020) Hypermobility Assessment in 1,004 adult patients presenting with Hip Pain: correlation with diagnoses and demographics. J Bone Joint Surg Am Vol 102(Suppl 2):27\u201333. https:\/\/doi.org\/10.2106\/JBJS.20.00060","journal-title":"J Bone Joint Surg Am Vol"},{"issue":"6","key":"5782_CR33","doi-asserted-by":"publisher","first-page":"314","DOI":"10.1097\/RHU.0000000000001864","volume":"28","author":"LL Nicholson","year":"2022","unstructured":"Nicholson LL, Simmonds J, Pacey V, De Wandele I, Rombaut L, Williams CM, Chan C (2022) International perspectives on Joint Hypermobility: a synthesis of current science to Guide Clinical and Research directions. J Clin Rheumatology: Practical Rep Rheumatic Musculoskelet Dis 28(6):314\u2013320. https:\/\/doi.org\/10.1097\/RHU.0000000000001864","journal-title":"J Clin Rheumatology: Practical Rep Rheumatic Musculoskelet Dis"},{"issue":"9","key":"5782_CR34","doi-asserted-by":"publisher","first-page":"2406","DOI":"10.1002\/ajmg.a.33585","volume":"152A","author":"M Castori","year":"2010","unstructured":"Castori M, Camerota F, Celletti C, Grammatico P, Padua L (2010) Ehlers-Danlos syndrome hypermobility type and the excess of affected females: possible mechanisms and perspectives. Am J Med Genet: A 152A(9):2406\u20132408. https:\/\/doi.org\/10.1002\/ajmg.a.33585","journal-title":"Am J Med Genet: A"},{"issue":"8","key":"5782_CR35","doi-asserted-by":"publisher","first-page":"717","DOI":"10.1097\/01.ajp.0000210912.95664.53","volume":"22","author":"HA Wijnhoven","year":"2006","unstructured":"Wijnhoven HA, de Vet HC, Picavet HS (2006) Prevalence of musculoskeletal disorders is systematically higher in women than in men. Clin J Pain 22(8):717\u2013724. https:\/\/doi.org\/10.1097\/01.ajp.0000210912.95664.53","journal-title":"Clin J Pain"},{"issue":"6","key":"5782_CR36","doi-asserted-by":"publisher","first-page":"1021","DOI":"10.1016\/j.mcna.2019.08.002","volume":"103","author":"BT Tinkle","year":"2019","unstructured":"Tinkle BT, Levy HP (2019) Symptomatic joint hypermobility: the Hypermobile type of Ehlers-Danlos Syndrome and the Hypermobility Spectrum disorders. Med Clin N Am 103(6):1021\u20131033. https:\/\/doi.org\/10.1016\/j.mcna.2019.08.002","journal-title":"Med Clin N Am"},{"key":"5782_CR37","doi-asserted-by":"publisher","first-page":"1466","DOI":"10.3389\/fpsyg.2016.01466","volume":"7","author":"AM Boonstra","year":"2016","unstructured":"Boonstra AM, Stewart RE, K\u00f6ke AJ, Oosterwijk RF, Swaan JL, Schreurs KM, Schiphorst Preuper HR (2016) Cut-off points for mild, moderate, and severe Pain on the Numeric Rating Scale for Pain in patients with Chronic Musculoskeletal Pain: variability and influence of sex and Catastrophizing. Front Psychol 7:1466. https:\/\/doi.org\/10.3389\/fpsyg.2016.01466","journal-title":"Front Psychol"},{"issue":"11","key":"5782_CR38","doi-asserted-by":"publisher","first-page":"2446","DOI":"10.1097\/j.pain.0000000000001952","volume":"161","author":"SM Smith","year":"2020","unstructured":"Smith SM, Dworkin RH, Turk DC, McDermott MP, Eccleston C, Farrar JT, Rowbotham MC, Bhagwagar Z, Burke LB, Cowan P, Ellenberg SS, Evans SR, Freeman R, Garrison LP, Iyengar S, Jadad A, Jensen MP, Junor R, Kamp C, Katz NP et al (2020) Interpretation of chronic pain clinical trial outcomes: IMMPACT recommended considerations. Pain 161(11):2446\u20132461. https:\/\/doi.org\/10.1097\/j.pain.0000000000001952","journal-title":"Pain"},{"issue":"1","key":"5782_CR39","doi-asserted-by":"publisher","first-page":"175","DOI":"10.1002\/ajmg.c.31542","volume":"175","author":"A Hakim","year":"2017","unstructured":"Hakim A, De Wandele I, O\u2019Callaghan C, Pocinki A, Rowe P (2017) Chronic fatigue in Ehlers-Danlos syndrome-hypermobile type. Am J Med Genet C 175(1):175\u2013180. https:\/\/doi.org\/10.1002\/ajmg.c.31542","journal-title":"Am J Med Genet C"},{"issue":"25","key":"5782_CR40","doi-asserted-by":"publisher","first-page":"3679","DOI":"10.1080\/09638288.2019.1608595","volume":"42","author":"L Kalisch","year":"2020","unstructured":"Kalisch L, Hamonet C, Bourdon C, Montalescot L, de Cazotte C, Baeza-Velasco C (2020) Predictors of pain and mobility disability in the hypermobile Ehlers-Danlos syndrome. Disabil Rehabil 42(25):3679\u20133686. https:\/\/doi.org\/10.1080\/09638288.2019.1608595","journal-title":"Disabil Rehabil"},{"key":"5782_CR41","doi-asserted-by":"publisher","first-page":"580460","DOI":"10.1155\/2013\/580460","volume":"2013","author":"C Celletti","year":"2013","unstructured":"Celletti C, Castori M, La Torre G, Camerota F (2013) Evaluation of kinesiophobia and its correlations with pain and fatigue in joint hypermobility syndrome\/Ehlers-Danlos syndrome hypermobility type. Biomed Res Int 2013:580460. https:\/\/doi.org\/10.1155\/2013\/580460","journal-title":"Biomed Res Int"},{"issue":"6","key":"5782_CR42","doi-asserted-by":"publisher","first-page":"1914","DOI":"10.1016\/j.ridd.2012.06.018","volume":"33","author":"C Celletti","year":"2012","unstructured":"Celletti C, Galli M, Cimolin V, Castori M, Albertini G, Camerota F (2012) Relationship between fatigue and gait abnormality in joint hypermobility syndrome\/Ehlers-Danlos syndrome hypermobility type. Res Dev Disabil 33(6):1914\u20131918. https:\/\/doi.org\/10.1016\/j.ridd.2012.06.018","journal-title":"Res Dev Disabil"},{"issue":"3","key":"5782_CR43","doi-asserted-by":"publisher","first-page":"301","DOI":"10.1002\/msc.1461","volume":"18","author":"N Alsiri","year":"2020","unstructured":"Alsiri N, Cramp M, Barnett S, Palmer S (2020) Gait biomechanics in joint hypermobility syndrome: a spatiotemporal, kinematic and kinetic analysis. Musculoskelet Care 18(3):301\u2013314. https:\/\/doi.org\/10.1002\/msc.1461","journal-title":"Musculoskelet Care"},{"issue":"5","key":"5782_CR44","doi-asserted-by":"publisher","first-page":"1663","DOI":"10.1016\/j.ridd.2011.02.018","volume":"32","author":"M Galli","year":"2011","unstructured":"Galli M, Cimolin V, Rigoldi C, Castori M, Celletti C, Albertini G, Camerota F (2011) Gait strategy in patients with Ehlers-Danlos syndrome hypermobility type: a kinematic and kinetic evaluation using 3D gait analysis. Res Dev Disabil 32(5):1663\u20131668. https:\/\/doi.org\/10.1016\/j.ridd.2011.02.018","journal-title":"Res Dev Disabil"},{"issue":"6","key":"5782_CR45","doi-asserted-by":"publisher","first-page":"573","DOI":"10.1016\/j.clinbiomech.2012.01.008","volume":"27","author":"EB Simonsen","year":"2012","unstructured":"Simonsen EB, Tegner H, Alkj\u00e6r T, Larsen PK, Kristensen JH, Jensen BR, Remvig L, Juul-Kristensen B (2012) Gait analysis of adults with generalised joint hypermobility. Clin Biomech (Bristol Avon) 27(6):573\u2013577. https:\/\/doi.org\/10.1016\/j.clinbiomech.2012.01.008","journal-title":"Clin Biomech (Bristol Avon)"},{"issue":"9\u201310","key":"5782_CR46","doi-asserted-by":"publisher","first-page":"1020","DOI":"10.1016\/j.clinbiomech.2013.09.010","volume":"28","author":"S Schmid","year":"2013","unstructured":"Schmid S, Luder G, Mueller Mebes C, Stettler M, Stutz U, Ziswiler HR, Radlinger L (2013) Neuromechanical gait adaptations in women with joint hypermobility\u2013an exploratory study. Clin Biomech (Bristol Avon) 28(9\u201310):1020\u20131025. https:\/\/doi.org\/10.1016\/j.clinbiomech.2013.09.010","journal-title":"Clin Biomech (Bristol Avon)"},{"issue":"11","key":"5782_CR47","doi-asserted-by":"publisher","first-page":"1653","DOI":"10.1002\/acr.24067","volume":"72","author":"SM Robbins","year":"2020","unstructured":"Robbins SM, Cossette-Levasseur M, Kikuchi K, Sarjeant J, Shiu YG, Azar C, Hazel EM (2020) Neuromuscular activation differences during gait in patients with Ehlers-Danlos syndrome and healthy adults. Arthritis Care Res 72(11):1653\u20131662. https:\/\/doi.org\/10.1002\/acr.24067","journal-title":"Arthritis Care Res"},{"issue":"1","key":"5782_CR48","doi-asserted-by":"publisher","first-page":"168","DOI":"10.1002\/ajmg.c.31543","volume":"175","author":"A Hakim","year":"2017","unstructured":"Hakim A, O\u2019Callaghan C, De Wandele I, Stiles L, Pocinki A, Rowe P (2017) Cardiovascular autonomic dysfunction in Ehlers-Danlos syndrome-hypermobile type. Am J Med Genet C 175(1):168\u2013174. https:\/\/doi.org\/10.1002\/ajmg.c.31543","journal-title":"Am J Med Genet C"},{"issue":"12","key":"5782_CR49","doi-asserted-by":"publisher","first-page":"e400","DOI":"10.2196\/jmir.7677","volume":"19","author":"D Orozco-Beltran","year":"2017","unstructured":"Orozco-Beltran D, S\u00e1nchez-Molla M, Sanchez JJ, Mira JJ, ValCr\u00f2nic Research Group (2017) Telemedicine in Primary Care for patients with chronic conditions: the ValCr\u00f2nic Quasi-experimental Study. J Med Internet Res 19(12):e400. https:\/\/doi.org\/10.2196\/jmir.7677","journal-title":"J Med Internet Res"},{"issue":"8","key":"5782_CR50","doi-asserted-by":"publisher","first-page":"1101","DOI":"10.1016\/j.jval.2011.06.003","volume":"14","author":"S Rolstad","year":"2011","unstructured":"Rolstad S, Adler J, Ryd\u00e9n A (2011) Response burden and questionnaire length: is shorter better? A review and meta-analysis. Value Health: J Int Soc Pharmacoeconomics Outcomes Res 14(8):1101\u20131108. https:\/\/doi.org\/10.1016\/j.jval.2011.06.003","journal-title":"Value Health: J Int Soc Pharmacoeconomics Outcomes Res"}],"container-title":["Rheumatology International"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00296-024-05782-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s00296-024-05782-3\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00296-024-05782-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,1,24]],"date-time":"2025-01-24T06:39:39Z","timestamp":1737700779000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s00296-024-05782-3"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,1,13]]},"references-count":50,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2025,1]]}},"alternative-id":["5782"],"URL":"https:\/\/doi.org\/10.1007\/s00296-024-05782-3","relation":{},"ISSN":["1437-160X"],"issn-type":[{"type":"electronic","value":"1437-160X"}],"subject":[],"published":{"date-parts":[[2025,1,13]]},"assertion":[{"value":"27 September 2024","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"31 December 2024","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"13 January 2025","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Ethical approval was obtained from the University Institutional Review Board (Pro00041250). All procedures were performed following the institutional and national ethical standards. Informed consent was obtained from all participants involved in the study.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}},{"value":"The authors declare that a part of this online survey related to this work has been previously published []. The information in this manuscript is original, has not been presented or published before, and is not currently being considered for publication elsewhere.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Authors declaration"}},{"value":"The authors declare that they have no conflicts of interest.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interest"}}],"article-number":"25"}}