{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,5]],"date-time":"2026-10-05T16:24:02Z","timestamp":1791217442798,"version":"4.1.0"},"reference-count":39,"publisher":"Springer Science and Business Media LLC","issue":"10","license":[{"start":{"date-parts":[[2025,9,24]],"date-time":"2025-09-24T00:00:00Z","timestamp":1758672000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2025,9,24]],"date-time":"2025-09-24T00:00:00Z","timestamp":1758672000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Rheumatol Int"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>Interstitial lung disease (ILD), one of the complications of rheumatoid arthritis (RA) has significant impact on morbidity and mortality. Very little work has been done on patient perceptions, experiences and their needs in RA-ILD. This study aimed to fill that gap in order to better understand and optimise care pathways.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>There are no validated questionnaires, so we piloted and developed one based on Commissioning for Quality in RA Reported Experience Measure (CQRA-PREM). This study was conducted at 6 sites following formal ethics approval. Patients with RA-ILD were identified from routine clinics and databases.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      We included 64 completed valid responses in the final analysis. Median age of the cohort was 75 years; duration of RA was 7 years. Only 13 (20%) participants received detailed information on ILD. Majority reported negative experiences regarding their involvement in care (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200940, 64%) and needed help from family members or carers (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200935, 60%). Half were attending respiratory clinics regularly (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200934, 53%) or having regular PFTs (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200929, 45%). Only 11 (17%) were able to do moderate exercise or higher. Participants desired more information on ILD, frequent appointments with specialists, earlier referral to specialist centre, and improved communication between specialists.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This study explores patient perspectives in RA-ILD across 6 different UK socioeconomic areas. There are substantial educational needs, disability, and notable gaps in service provisions. Enhanced patient support is needed, and this necessitates more effective integration and utilisation of the multidisciplinary team, including specialist nurses, psychologists, pharmacists, and other allied health professionals.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1007\/s00296-025-05988-z","type":"journal-article","created":{"date-parts":[[2025,9,24]],"date-time":"2025-09-24T11:27:56Z","timestamp":1758713276000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Enhanced education and support needs in rheumatoid arthritis associated interstitial lung disease (RA-ILD) \u2013 patient experiences from a multicentre UK survey"],"prefix":"10.1007","volume":"45","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9979-6066","authenticated-orcid":false,"given":"Shirish","family":"Dubey","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-2758-1187","authenticated-orcid":false,"given":"Abhinav","family":"Peddasomayajulu","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2035-8395","authenticated-orcid":false,"given":"Anupama","family":"Nandagudi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"WinWin","family":"Maw","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Damodar","family":"Makkuni","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Siwalik","family":"Banerjee","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4189-703X","authenticated-orcid":false,"given":"Gouri M.","family":"Koduri","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2025,9,24]]},"reference":[{"key":"5988_CR1","unstructured":"Versus Arthritis (2024) The state of musculoskeletal health 2024. Available from: https:\/\/versusarthritis.org\/media\/tffdkiax\/va_state-of-msk-report-nov2024-1.pdf. Last accessed 10th December 2024"},{"key":"5988_CR2","doi-asserted-by":"publisher","first-page":"722","DOI":"10.1136\/ard.62.8.722","volume":"62","author":"C Turesson","year":"2003","unstructured":"Turesson C, O\u2019Fallon WM, Crowson CS, Gabriel SE, Matteson EL (2003) Extra-articular disease manifestations in rheumatoid arthritis: incidence trends and risk factors over 46 years. Ann Rheum Dis 62:722\u2013727","journal-title":"Ann Rheum Dis"},{"key":"5988_CR3","doi-asserted-by":"publisher","first-page":"372","DOI":"10.1164\/rccm.201004-0622OC","volume":"183","author":"AL Olson","year":"2011","unstructured":"Olson AL, Swigris JJ, Sprunger DB et al (2011) Rheumatoid arthritis-interstitial lung disease-associated mortality. Am J Respir Crit Care Med 183:372\u2013378","journal-title":"Am J Respir Crit Care Med"},{"issue":"8","key":"5988_CR4","doi-asserted-by":"publisher","first-page":"3689","DOI":"10.1093\/rheumatology\/keaa836","volume":"60","author":"JA Sparks","year":"2021","unstructured":"Sparks JA, Jin Y, Cho SK, Vine S, Desai R, Doyle TJ, Kim SC (2021) Prevalence, incidence and cause-specific mortality of rheumatoid arthritis-associated interstitial lung disease among older rheumatoid arthritis patients. Rheumatology (Oxford) 60(8):3689\u20133698. https:\/\/doi.org\/10.1093\/rheumatology\/keaa836","journal-title":"Rheumatology (Oxford)"},{"key":"5988_CR5","doi-asserted-by":"publisher","first-page":"1583","DOI":"10.1002\/art.27405","volume":"62","author":"T Bongartz","year":"2010","unstructured":"Bongartz T, Nannini C, Medina-Velasquez YF et al (2010) Incidence and mortality of interstitial lung disease in rheumatoid arthritis: a population-based study. Arthritis Rheum 62:1583\u20131591","journal-title":"Arthritis Rheum"},{"key":"5988_CR6","doi-asserted-by":"publisher","first-page":"1076","DOI":"10.1016\/j.autrev.2013.05.001","volume":"12","author":"B Marigliano","year":"2013","unstructured":"Marigliano B, Soriano A, Margiotta D et al (2013) Lung involvement in connective tissue diseases: a comprehensive review and a focus on rheumatoid arthritis. Autoimmun Rev 12:1076\u20131084","journal-title":"Autoimmun Rev"},{"key":"5988_CR7","doi-asserted-by":"publisher","first-page":"597","DOI":"10.1016\/j.ejim.2013.07.004","volume":"24","author":"DN O\u2019Dwyer","year":"2013","unstructured":"O\u2019Dwyer DN, Armstrong ME, Cooke G et al (2013) Rheumatoid arthritis (RA) associated interstitial lung disease (ILD). Eur J Intern Med 24:597\u2013603","journal-title":"Eur J Intern Med"},{"issue":"8","key":"5988_CR8","doi-asserted-by":"publisher","first-page":"1483","DOI":"10.1093\/rheumatology\/keq035","volume":"49","author":"G Koduri","year":"2010","unstructured":"Koduri G, Norton S, Young A et al (2010) Interstitial lung disease has a poor prognosis in rheumatoid arthritis: results from an inception cohort study. Rheumatology (Oxford) 49(8):1483\u20131489","journal-title":"Rheumatology (Oxford)"},{"key":"5988_CR9","doi-asserted-by":"crossref","unstructured":"Kim EJ, Collard HR, King TE Jr (2009) Rheumatoid arthritis-associated interstitial lung disease: the relevance of histopathologic and radiographic pattern. Chest ; 136(5):1397\u20131405, 2009","DOI":"10.1378\/chest.09-0444"},{"issue":"9","key":"5988_CR10","doi-asserted-by":"publisher","first-page":"1676","DOI":"10.1093\/rheumatology\/keu165","volume":"53","author":"CA Kelly","year":"2014","unstructured":"Kelly CA, Saravanan V, Nisar M et al (2014) British rheumatoid interstitial lung (BRILL) network. rheumatoid arthritis-related interstitial lung disease: associations, prognostic factors and physiological and radiological characteristics\u2013a large multicentre UK study. Rheumatology (Oxford) 53(9):1676\u20131682. https:\/\/doi.org\/10.1093\/rheumatology\/keu165","journal-title":"Rheumatology (Oxford)"},{"issue":"1","key":"5988_CR11","doi-asserted-by":"publisher","first-page":"e003353","DOI":"10.1136\/rmdopen-2023-003353","volume":"10","author":"JA Rom\u00e1n Ivorra","year":"2024","unstructured":"Rom\u00e1n Ivorra JA, Trallero-Araguas E, Lopez Lasanta M et al (2024) Prevalence and clinical characteristics of patients with rheumatoid arthritis with interstitial lung disease using unstructured healthcare data and machine learning. RMD Open 10(1):e003353. https:\/\/doi.org\/10.1136\/rmdopen-2023-003353","journal-title":"RMD Open"},{"key":"5988_CR12","doi-asserted-by":"publisher","first-page":"622","DOI":"10.1136\/thx.56.8.622","volume":"56","author":"JK Dawson","year":"2001","unstructured":"Dawson JK, Fewins HE, Desmond J, Lynch MP, Graham DR (2001) Fibrosing alveolitis in patients with rheumatoid arthritis as assessed by high resolution computed tomography, chest radiography, and pulmonary function tests. Thorax 56:622\u2013627","journal-title":"Thorax"},{"key":"5988_CR13","doi-asserted-by":"publisher","first-page":"350","DOI":"10.1093\/rheumatology\/kel253","volume":"46","author":"A Young","year":"2007","unstructured":"Young A, Koduri G, Batley M et al (2007) Mortality in rheumatoid arthritis. Increased in the early course of disease, in ischaemic heart disease and in pulmonary fibrosis. Rheumatology 46:350\u2013357","journal-title":"Rheumatology"},{"issue":"69","key":"5988_CR14","first-page":"3","volume":"31","author":"NJ Minaur","year":"2004","unstructured":"Minaur NJ, Jacoby RK, Cosh JA et al (2004) Outcome after 40 years with rheumatoid arthitis: a prospective study of function, disease activity and mortality. J Rheumatol 31(69):3\u20138","journal-title":"J Rheumatol"},{"issue":"1","key":"5988_CR15","doi-asserted-by":"publisher","first-page":"264","DOI":"10.1186\/s12931-021-01856-z","volume":"22","author":"M Qiu","year":"2021","unstructured":"Qiu M, Jiang J, Nian X et al (2021) Factors associated with mortality in rheumatoid arthritis-associated interstitial lung disease: a systematic review and meta-analysis. Respir Res 22(1):264. https:\/\/doi.org\/10.1186\/s12931-021-01856-z","journal-title":"Respir Res"},{"issue":"5","key":"5988_CR16","doi-asserted-by":"publisher","first-page":"1108","DOI":"10.55563\/clinexprheumatol\/h9tc57","volume":"39","author":"MS Fazeli","year":"2021","unstructured":"Fazeli MS, Khaychuk V, Wittstock K et al (2021) Rheumatoid arthritis-associated interstitial lung disease: epidemiology, risk\/prognostic factors, and treatment landscape. Clin Exp Rheumatol 39(5):1108\u20131118. https:\/\/doi.org\/10.55563\/clinexprheumatol\/h9tc57","journal-title":"Clin Exp Rheumatol"},{"issue":"8","key":"5988_CR17","doi-asserted-by":"publisher","first-page":"1515","DOI":"10.1007\/s00296-023-05313-6","volume":"43","author":"GM Koduri","year":"2023","unstructured":"Koduri GM, Podlasek A, Pattapola S et al (2023) Four-factor risk score for the prediction of interstitial lung disease in rheumatoid arthritis. Rheumatol Int 43(8):1515\u20131523. https:\/\/doi.org\/10.1007\/s00296-023-05313-6","journal-title":"Rheumatol Int"},{"issue":"3","key":"5988_CR18","doi-asserted-by":"publisher","first-page":"157","DOI":"10.1177\/1753465816686743","volume":"11","author":"MJ van Manen","year":"2017","unstructured":"van Manen MJ, Geelhoed JJ, Tak NC, Wijsenbeek MS (2017) Optimizing quality of life in patients with idiopathic pulmonary fibrosis. Ther Adv Respir Dis 11(3):157\u2013169. https:\/\/doi.org\/10.1177\/1753465816686743","journal-title":"Ther Adv Respir Dis"},{"issue":"4","key":"5988_CR19","doi-asserted-by":"publisher","first-page":"304","DOI":"10.1016\/j.hrtlng.2009.08.005","volume":"39","author":"KO Lindell","year":"2010","unstructured":"Lindell KO, Olshansky E, Song MK et al (2010) Impact of a disease-management program on symptom burden and health-related quality of life in patients with idiopathic pulmonary fibrosis and their care partners. Heart Lung: J Acute Crit Care 39(4):304\u2013313","journal-title":"Heart Lung: J Acute Crit Care"},{"issue":"4","key":"5988_CR20","doi-asserted-by":"publisher","first-page":"225","DOI":"10.1177\/1479972311416382","volume":"8","author":"G Schoenheit","year":"2011","unstructured":"Schoenheit G, Becattelli I, Cohen AH (2011) Living with idiopathic pulmonary fibrosis: an in-depth qualitative survey of European patients. Chronic Resp Dis 8(4):225\u2013231. https:\/\/doi.org\/10.1177\/1479972311416382","journal-title":"Chronic Resp Dis"},{"issue":"1","key":"5988_CR21","doi-asserted-by":"publisher","first-page":"155","DOI":"10.1186\/s12890-015-0145-5","volume":"15","author":"C Sampson","year":"2015","unstructured":"Sampson C, Gill BH, Harrison NK, Nelson A, Byrne A (2015) The care needs of patients with idiopathic pulmonary fibrosis and their carers (CaNoPy): results of a qualitative study. BMC Pulm Med 15(1):155","journal-title":"BMC Pulm Med"},{"issue":"5","key":"5988_CR22","doi-asserted-by":"publisher","first-page":"1472","DOI":"10.1183\/13993003.01566-2015","volume":"47","author":"D Overgaard","year":"2016","unstructured":"Overgaard D, Kaldan G, Marsaa K, Nielsen TL, Shaker SB, Egerod I (2016) The lived experience with idiopathic pulmonary fibrosis: a qualitative study. Eur Respir J 47(5):1472\u20131480. https:\/\/doi.org\/10.1183\/13993003.01566-2015","journal-title":"Eur Respir J"},{"issue":"1","key":"5988_CR23","doi-asserted-by":"publisher","first-page":"10","DOI":"10.1186\/s12890-016-0171-y","volume":"16","author":"AM Russell","year":"2016","unstructured":"Russell AM, Ripamonti E, Vancheri C (2016) Qualitative European survey of patients with idiopathic pulmonary fibrosis: patients\u2019 perspectives of the disease and treatment. BMC Pulm Med 16(1):10","journal-title":"BMC Pulm Med"},{"key":"5988_CR24","doi-asserted-by":"crossref","unstructured":"Zwerink M, Brusse-Keizer M, van der Valk PDLPM Self-management for patients with chronic obstructive pulmonary disease. Cochrane Database Syst Rev.; doi:, Lee JYT, Tikellis G, Dowman L et al (2014) (3):CD002990 Self-management interventions for people with pulmonary fibrosis: a scoping review. Eur Respir Rev. 2023;32(170):230092. doi: 10.1183\/16000617.0092-2023","DOI":"10.1183\/16000617.0092-2023"},{"key":"5988_CR25","doi-asserted-by":"publisher","unstructured":"Bosworth A, Cox M, O\u2019Brien A, Jones P, Sargeant I, Elliott A, Bukhari M (2015) Development and Validation of a Patient Reported Experience Measure (PREM) for Patients with Rheumatoid Arthritis (RA) and other Rheumatic Conditions. Curr Rheumatol Rev. ;11(1):1\u20137. https:\/\/doi.org\/10.2174\/1573397111666150522093712. PMID: 26002458","DOI":"10.2174\/1573397111666150522093712"},{"key":"5988_CR26","doi-asserted-by":"publisher","unstructured":"Mandizha J, Davies R, Crook C et al Interstitial lung disease fatigue & breathlessness (ILD-FAB) programme: A multidisciplinary feasibility study. MedRxiv June 25. https:\/\/doi.org\/10.1101\/2025.06.10.25329329","DOI":"10.1101\/2025.06.10.25329329"},{"key":"5988_CR27","doi-asserted-by":"publisher","unstructured":"Tran M, Saketkoo LA, Frankel S et al Patients\u2019 Perspectives Of Living With Rheumatoid Arthritis-Associated Interstitial Lung Disease (RA-ILD). American Thoracic Society Conference abstract May 2012. https:\/\/doi.org\/10.1164\/ajrccm-conference.2012.185.1_MeetingAbstracts.A6608","DOI":"10.1164\/ajrccm-conference.2012.185.1_MeetingAbstracts.A6608"},{"issue":"2","key":"5988_CR28","doi-asserted-by":"publisher","first-page":"175","DOI":"10.2174\/1573398X11666150619182624","volume":"11","author":"S Mittoo","year":"2015","unstructured":"Mittoo S, Frankel S, LeSage D et al (2015) Patient perspectives in OMERACT provide an anchor for future metric development and improved approaches to healthcare delivery in connective tissue disease related interstitial lung disease (CTD-ILD). Curr Respir Med Rev 11(2):175\u2013183. https:\/\/doi.org\/10.2174\/1573398X11666150619182624","journal-title":"Curr Respir Med Rev"},{"issue":"10","key":"5988_CR29","doi-asserted-by":"publisher","first-page":"4035","DOI":"10.1093\/rheumatology\/keac126","volume":"61","author":"C Bruni","year":"2022","unstructured":"Bruni C, Heidenreich S, Duenas A et al (2022) Patient preferences for the treatment of systemic sclerosis-associated interstitial lung disease: a discrete choice experiment. Rheumatology 61(10):4035\u20134046. https:\/\/doi.org\/10.1093\/rheumatology\/keac126","journal-title":"Rheumatology"},{"key":"5988_CR30","doi-asserted-by":"publisher","first-page":"117954842091328","DOI":"10.1177\/1179548420913281","volume":"14","author":"TJ Cheema","year":"2020","unstructured":"Cheema TJ, Young M, Rabold E, Barbieri AN, Baldwin N, Steen VD (2020) Patient and physician perspectives on systemic Sclerosis-Associated interstitial lung disease. Clin Med Insights Circ Respir Pulm Med 14:1179548420913281. https:\/\/doi.org\/10.1177\/1179548420913281","journal-title":"Clin Med Insights Circ Respir Pulm Med"},{"key":"5988_CR31","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1016\/j.rmed.2017.04.002","volume":"127","author":"JG Natalini","year":"2017","unstructured":"Natalini JG, Swigris JJ, Morisset J, Elicker BM, Jones KD, Fischer A, Collard HR, Lee JS (2017) Understanding the determinants of health-related quality of life in rheumatoid arthritis-associated interstitial lung disease. Respir Med 127:1\u20136. https:\/\/doi.org\/10.1016\/j.rmed.2017.04.002","journal-title":"Respir Med"},{"key":"5988_CR32","doi-asserted-by":"crossref","unstructured":"Wang Y, Zhao R, Dong C, Gu Z (2025) AB1330-HPR Association of interstitial lung disease and quality of life in Chinese rheumatoid arthritis. Annals of the Rheumatic Diseases 2020;79:1953-1954.33. NHS England 2014. Involving people in their own care. Available from: https:\/\/www.england.nhs.uk\/ourwork\/patient-participation\/. Last accessed 11th Jan","DOI":"10.1136\/annrheumdis-2020-eular.6249"},{"issue":"3","key":"5988_CR33","doi-asserted-by":"publisher","first-page":"461","DOI":"10.1007\/s40744-019-00168-5","volume":"6","author":"C Radawski","year":"2019","unstructured":"Radawski C, Genovese MC, Hauber B et al (2019) Patient perceptions of unmet medical need in rheumatoid arthritis: A Cross-Sectional survey in the USA. Rheumatol Ther 6(3):461\u2013471. https:\/\/doi.org\/10.1007\/s40744-019-00168-5","journal-title":"Rheumatol Ther"},{"issue":"11","key":"5988_CR34","doi-asserted-by":"publisher","first-page":"788","DOI":"10.1002\/acr2.11326","volume":"3","author":"E Landgren","year":"2021","unstructured":"Landgren E, Bremander A, Lindqvist E, Nylander M, Larsson I (2021) Patients\u2019 perceptions of Person-Centered care in early rheumatoid arthritis: A qualitative study. ACR Open Rheumatol 3(11):788\u2013795. https:\/\/doi.org\/10.1002\/acr2.11326","journal-title":"ACR Open Rheumatol"},{"issue":"3","key":"5988_CR35","doi-asserted-by":"publisher","first-page":"391","DOI":"10.1002\/msc.1474","volume":"18","author":"JK Hirsch","year":"2020","unstructured":"Hirsch JK, Toussaint L, Offenb\u00e4cher M et al (2020) Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria. Musculoskelet Care 18(3):391\u2013396. https:\/\/doi.org\/10.1002\/msc.1474","journal-title":"Musculoskelet Care"},{"key":"5988_CR36","unstructured":"Idiopathic pulmonary fibrosis (2024) in adults: diagnosis and management. National Institute for Health and Care Excellence, CG163. https:\/\/www.nice.org.uk\/guidance\/cg163\/chapter\/recommendations. Last accessed 22nd October"},{"issue":"2","key":"5988_CR37","doi-asserted-by":"publisher","first-page":"2000337","DOI":"10.1183\/13993003.00337-2020","volume":"57","author":"PA Juge","year":"2021","unstructured":"Juge PA, Lee JS, Lau J, Kawano-Dourado L et al (2021) Methotrexate and rheumatoid arthritis associated interstitial lung disease. Eur Respir J 57(2):2000337. https:\/\/doi.org\/10.1183\/13993003.00337-2020","journal-title":"Eur Respir J"},{"key":"5988_CR38","doi-asserted-by":"publisher","DOI":"10.1007\/s12325-020-01578-6","author":"A Olson","year":"2021","unstructured":"Olson A, Hartmann N, Patnaik P et al (2021) Adv Ther 38(2):854\u2013867. https:\/\/doi.org\/10.1007\/s12325-020-01578-6. Estimation of the Prevalence of Progressive Fibrosing Interstitial Lung Diseases: Systematic Literature Review and Data from a Physician Survey"},{"key":"5988_CR39","unstructured":"National Rheumatoid Arthritis Society. SMILE-RA Available from: https:\/\/nras.org.uk\/2022\/05\/26\/nras-launch-new-module-for-their-major-new-e-learning-programme-smile-ra\/. Last accessed 15th Jan 2025"}],"container-title":["Rheumatology International"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00296-025-05988-z.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s00296-025-05988-z\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00296-025-05988-z.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,27]],"date-time":"2025-10-27T18:02:32Z","timestamp":1761588152000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s00296-025-05988-z"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,9,24]]},"references-count":39,"journal-issue":{"issue":"10","published-online":{"date-parts":[[2025,10]]}},"alternative-id":["5988"],"URL":"https:\/\/doi.org\/10.1007\/s00296-025-05988-z","relation":{"references":[{"id-type":"doi","id":"10.1007\/s12325-020-01578-6","asserted-by":"subject"}]},"ISSN":["1437-160X"],"issn-type":[{"value":"1437-160X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,9,24]]},"assertion":[{"value":"10 June 2025","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"29 August 2025","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"24 September 2025","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Ethical approval was obtained for this study (IRAS 319483, REC reference number is 22\/EE\/0303), dated 17th Feb 2023, from Health Research Authority and Health and Care Wales. Patients were approached face to face when attending rheumatology department for any reason. They were provided the information for the study and then approached by the research team. Patients were identified from database from one of the centres and consent form and information about the study was posted. Patients then submitted signed consent form and filled questionnaire either as part of visit to hospital, or email or via post. All study participants provided written consent. The study was performed in keeping with the good clinical practice in research as per the Helsinki agreement.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}},{"value":"SD: Advisory Board: Boehringer Ingelheim and Abbvie. GK: Advisory Board: BI, speaker honorarium Roche, BI, Medac, support for conference attendance Medac. None of these disclosures cause any conflict with this work. Disclosure form submitted as well. No editing agencies or AI were utilized within this study or for this manuscript.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Author disclosures"}}],"article-number":"237"}}