{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,23]],"date-time":"2026-10-23T19:10:27Z","timestamp":1792782627574,"version":"4.5.0"},"reference-count":24,"publisher":"Springer Science and Business Media LLC","issue":"10","license":[{"start":{"date-parts":[[2026,7,15]],"date-time":"2026-07-15T00:00:00Z","timestamp":1784073600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/deed.de"},{"start":{"date-parts":[[2026,7,15]],"date-time":"2026-07-15T00:00:00Z","timestamp":1784073600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/deed.de"}],"funder":[{"name":"Ruhr-Universit\u00e4t Bochum","id":[{"id":"https:\/\/ror.org\/04tsk2644","id-type":"ROR","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Ophthalmologie"],"published-print":{"date-parts":[[2026,10]]},"abstract":"<jats:title>Zusammenfassung<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Hintergrund<\/jats:title>\n                    <jats:p>Das Glaukom ist eine der h\u00e4ufigsten Erblindungsursachen weltweit, so auch in Deutschland. Dennoch ist unklar, ob alle Betroffenen ausreichend \u00fcber ihre Erkrankung sowie m\u00f6gliche Therapien und deren Nebenwirkungen informiert sind.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Ziel der Arbeit<\/jats:title>\n                    <jats:p>Umfrage unter GlaukompatientInnen, um den Stand der Aufkl\u00e4rung \u00fcber die Erkrankung und m\u00f6gliche Therapien zu erfassen.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methoden<\/jats:title>\n                    <jats:p>Der Fragenbogen bestand aus 11\u00a0Fragen zur Aufkl\u00e4rung und Therapiezufriedenheit bez\u00fcglich des Glaukoms. Er wurde vom Bundesverband Glaukom-Selbsthilfe e.\u202fV. in Zusammenarbeit mit der Sektion Glaukom der Deutschen Ophthalmologischen Gesellschaft (DOG) entwickelt. Der Fragebogen wurde den Mitgliedern des Bundesverbandes sowie \u00fcber die Homepage und Patientenforen zug\u00e4nglich gemacht und in Wartezimmern ausgelegt.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Ergebnisse<\/jats:title>\n                    <jats:p>Es nahmen 334 GlaukompatientInnen von Juli 2024 bis Juni 2025 an der Umfrage teil; 15,5\u202f% der Befragten gaben an sehr gut aufgekl\u00e4rt zu sein, 40,1\u202f% gaben an, dass sie unzureichend aufgekl\u00e4rt wurden. Es fehlten Informationen zu Therapieoptionen und Nebenwirkungen sowie zu den verschriebenen Tropfen. Daher suchten PatientInnen nach alternativen Informationsquellen (z.\u202fB. Internet). Auch bei der Aufkl\u00e4rung \u00fcber die Therapieanwendung und Nebenwirkungen zeigten sich heterogene Ergebnisse; 89,5\u202f% gaben an zu wissen, wie sie ihre Therapie anwenden m\u00fcssen. \u00c4nderung der Therapie oder Informationen zu alternativen Therapien konnten ca.\u00a050\u202f% der Teilnehmenden mit ihrem Arzt besprechen.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Diskussion<\/jats:title>\n                    <jats:p>Durch die Erkenntnisse aus dieser Umfrage sollen zuk\u00fcnftig gezieltere Aufkl\u00e4rungsstrategien entwickelt werden. Eine patientenzentrierte, verst\u00e4ndliche sowie kontinuierliche Aufkl\u00e4rung sollte ein zentraler Bestandteil der Therapie sein. Dies w\u00fcrde zu einer Verbesserung der Adh\u00e4renz und somit auch der Lebensqualit\u00e4t der Betroffenen beitragen.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1007\/s00347-026-02475-z","type":"journal-article","created":{"date-parts":[[2026,7,15]],"date-time":"2026-07-15T08:47:22Z","timestamp":1784105242000},"page":"799-805","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Erfahrungen von GlaukompatientInnen","Experiences of glaucoma patients"],"prefix":"10.1007","volume":"123","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7056-0829","authenticated-orcid":false,"given":"Stephanie C.","family":"Joachim","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cornel","family":"Hirth","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sabine","family":"Weber","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Verena","family":"Prokosch","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"DOG-Sektion Glaukom","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"Bundesverband Glaukom-Selbsthilfe e.\u202fV.","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,7,15]]},"reference":[{"issue":"11","key":"2475_CR1","doi-asserted-by":"publisher","first-page":"1046","DOI":"10.1001\/jamaophthalmol.2024.3884","volume":"142","author":"JR Ehrlich","year":"2024","unstructured":"Ehrlich\u00a0JR et\u00a0al (2024) Prevalence of Glaucoma Among US Adults in 2022. 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Eine Genehmigung der Umfrage durch die lokalen Ethikkommissionen war nicht erforderlich.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Einhaltung ethischer Richtlinien"}}]}}