{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,18]],"date-time":"2026-03-18T12:21:40Z","timestamp":1773836500420,"version":"3.50.1"},"reference-count":28,"publisher":"Springer Science and Business Media LLC","issue":"9","license":[{"start":{"date-parts":[[2013,9,1]],"date-time":"2013-09-01T00:00:00Z","timestamp":1377993600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Childs Nerv Syst"],"published-print":{"date-parts":[[2013,9]]},"DOI":"10.1007\/s00381-013-2117-5","type":"journal-article","created":{"date-parts":[[2013,9,6]],"date-time":"2013-09-06T10:57:29Z","timestamp":1378465049000},"page":"1671-1679","source":"Crossref","is-referenced-by-count":20,"title":["Health-related quality of life in children and adolescents with spinal dysraphism: results from a Taiwanese sample"],"prefix":"10.1007","volume":"29","author":[{"given":"Jia-Chi","family":"Wang","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Chih-Jou","family":"Lai","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tai-Tong","family":"Wong","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Muh-Lii","family":"Liang","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hsin-Hung","family":"Chen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rai-Chi","family":"Chan","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tsui-Fen","family":"Yang","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2013,9,7]]},"reference":[{"key":"2117_CR1","doi-asserted-by":"crossref","first-page":"558","DOI":"10.1001\/jama.1988.03720040050026","volume":"259","author":"RJ Lemire","year":"1988","unstructured":"Lemire RJ (1988) Neural tube defects. JAMA 259:558\u2013562","journal-title":"JAMA"},{"key":"2117_CR2","doi-asserted-by":"crossref","first-page":"325","DOI":"10.1016\/S1042-3680(18)30466-2","volume":"6","author":"LN Sutton","year":"1995","unstructured":"Sutton LN (1995) Lipomyelomeningocele. Neurosurg Clin N Am 6:325\u2013338","journal-title":"Neurosurg Clin N Am"},{"key":"2117_CR3","doi-asserted-by":"crossref","first-page":"288","DOI":"10.1097\/PEP.0b013e318158cf1e","volume":"19","author":"M Ross","year":"2007","unstructured":"Ross M, Brewer K, Wright FV, Agur A (2007) Closed neural tube defects: neurologic, orthopedic, and gait outcomes. Pediatr Phys Ther 19:288\u2013295","journal-title":"Pediatr Phys Ther"},{"key":"2117_CR4","doi-asserted-by":"crossref","first-page":"389","DOI":"10.1016\/S0031-3955(03)00207-4","volume":"51","author":"BA Kaufman","year":"2004","unstructured":"Kaufman BA (2004) Neural tube defects. Pediatr Clin N Am 51:389\u2013419","journal-title":"Pediatr Clin N Am"},{"key":"2117_CR5","doi-asserted-by":"crossref","first-page":"222","DOI":"10.1007\/s003810050502","volume":"16","author":"GV McDonnell","year":"2000","unstructured":"McDonnell GV, McCann JP (2000) Issues of medical management in adults with spina bifida. Childs Nerv Syst 16:222\u2013227","journal-title":"Childs Nerv Syst"},{"key":"2117_CR6","first-page":"502","volume":"71","author":"CK Chang","year":"2008","unstructured":"Chang CK, Wong TT, Huang BS, Chan RC, Yang TF (2008) Spinal dysraphism: a cross-sectional and retrospective multidisciplinary clinic-based study. JCMA 71:502\u2013508","journal-title":"JCMA"},{"key":"2117_CR7","doi-asserted-by":"crossref","first-page":"420","DOI":"10.1017\/S0012162204000684","volume":"46","author":"M Verhoef","year":"2004","unstructured":"Verhoef M, Barf HA, Post MW, van Asbeck FW, Gooskens RH, Prevo AJ (2004) Secondary impairments in young adults with spina bifida. Dev Med Child Neurol 46:420\u2013427","journal-title":"Dev Med Child Neurol"},{"key":"2117_CR8","doi-asserted-by":"crossref","first-page":"48","DOI":"10.1007\/s00381-001-0531-6","volume":"18","author":"PY Tsai","year":"2002","unstructured":"Tsai PY, Yang TF, Chan RC, Huang PH, Wong TT (2002) Functional investigation in children with spina bifida\u2014measured by the Pediatric Evaluation of Disability Inventory (PEDI). Childs Nerv Syst 18:48\u201353","journal-title":"Childs Nerv Syst"},{"key":"2117_CR9","doi-asserted-by":"crossref","first-page":"609","DOI":"10.1017\/S0012162205001209","volume":"47","author":"JA Bier","year":"2005","unstructured":"Bier JA, Prince A, Tremont M, Msall M (2005) Medical, functional, and social determinants of health-related quality of life in individuals with myelomeningocele. Dev Med Child Neurol 47:609\u2013612","journal-title":"Dev Med Child Neurol"},{"key":"2117_CR10","doi-asserted-by":"crossref","first-page":"456","DOI":"10.1111\/j.1469-8749.2008.02054.x","volume":"50","author":"E Muller-Godeffroy","year":"2008","unstructured":"Muller-Godeffroy E, Michael T, Poster M, Seidel U, Schwarke D, Thyen U (2008) Self-reported health-related quality of life in children and adolescents with myelomeningocele. Dev Med Child Neurol 50:456\u2013461","journal-title":"Dev Med Child Neurol"},{"key":"2117_CR11","doi-asserted-by":"crossref","first-page":"48","DOI":"10.1136\/adc.73.1.48","volume":"73","author":"PE Minchom","year":"1995","unstructured":"Minchom PE, Ellis NC, Appleton PL, Lawson V, Boll V, Jones P, Elliott CE (1995) Impact of functional severity on self concept in young people with spina bifida. Arch Dis Child 73:48\u201352","journal-title":"Arch Dis Child"},{"key":"2117_CR12","doi-asserted-by":"crossref","first-page":"293","DOI":"10.1136\/adc.83.4.293","volume":"83","author":"HM Kirpalani","year":"2000","unstructured":"Kirpalani HM, Parkin PC, Willan AR, Fehlings DL, Rosenbaum PL, King D, Van Nie AJ (2000) Quality of life in spina bifida: importance of parental hope. Arch Dis Child 83:293\u2013297","journal-title":"Arch Dis Child"},{"key":"2117_CR13","doi-asserted-by":"crossref","first-page":"1384","DOI":"10.1053\/apmr.2002.34599","volume":"83","author":"L Padua","year":"2002","unstructured":"Padua L, Rendeli C, Rabini A, Girardi E, Tonali P, Salvaggio E (2002) Health-related quality of life and disability in young patients with spina bifida. Arch Phys Med Rehabil 83:1384\u20131388","journal-title":"Arch Phys Med Rehabil"},{"key":"2117_CR14","doi-asserted-by":"crossref","first-page":"230","DOI":"10.1038\/sj.sc.3101707","volume":"43","author":"C Rendeli","year":"2005","unstructured":"Rendeli C, Ausili E, Tabacco F, Caliandro P, Aprile I, Tonali P, Salvaggio E, Padua L (2005) Assessment of health status in children with spina bifida. Spinal Cord 43:230\u2013235","journal-title":"Spinal Cord"},{"key":"2117_CR15","doi-asserted-by":"crossref","first-page":"117","DOI":"10.1007\/s00381-005-1231-4","volume":"22","author":"R Hetherington","year":"2006","unstructured":"Hetherington R, Dennis M, Barnes M, Drake J, Gentili F (2006) Functional outcome in young adults with spina bifida and hydrocephalus. Childs Nerv Syst 22:117\u2013124","journal-title":"Childs Nerv Syst"},{"key":"2117_CR16","doi-asserted-by":"crossref","first-page":"317","DOI":"10.1111\/j.1469-8749.2002.tb00818.x","volume":"44","author":"IM Cate","year":"2002","unstructured":"Cate IM, Kennedy C, Stevenson J (2002) Disability and quality of life in spina bifida and hydrocephalus. Dev Med Child Neurol 44:317\u2013322","journal-title":"Dev Med Child Neurol"},{"key":"2117_CR17","doi-asserted-by":"crossref","first-page":"192","DOI":"10.1111\/j.1469-8749.2007.00192.x","volume":"49","author":"M Verhoef","year":"2007","unstructured":"Verhoef M, Post MW, Barf HA, van Asbeck FW, Gooskens RH, Prevo AJ (2007) Perceived health in young adults with spina bifida. Dev Med Child Neurol 49:192\u2013197","journal-title":"Dev Med Child Neurol"},{"key":"2117_CR18","doi-asserted-by":"crossref","first-page":"381","DOI":"10.1093\/jpepsy\/25.6.381","volume":"25","author":"E Waters","year":"2000","unstructured":"Waters E, Salmon L, Wake M (2000) The parent-form Child Health Questionnaire in Australia: comparison of reliability, validity, structure, and norms. J Pediatr Psychol 25:381\u2013391","journal-title":"J Pediatr Psychol"},{"key":"2117_CR19","doi-asserted-by":"crossref","first-page":"998","DOI":"10.1080\/00048670701689451","volume":"41","author":"P Yang","year":"2007","unstructured":"Yang P, Hsu HY, Chiou SS, Chao MC (2007) Health-related quality of life in methylphenidate-treated children with attention-deficit\u2013hyperactivity disorder: results from a Taiwanese sample. Aust N Z J Psychiat 41:998\u20131004","journal-title":"Aust N Z J Psychiat"},{"key":"2117_CR20","first-page":"106","volume":"35","author":"WJ Sharrard","year":"1964","unstructured":"Sharrard WJ (1964) The segmental innervation of the lower limb muscles in man. Ann R Coll Surg Engl 35:106\u2013122","journal-title":"Ann R Coll Surg Engl"},{"key":"2117_CR21","volume-title":"Statistical power for the behavioural sciences, revised edition","author":"J Cohen","year":"1977","unstructured":"Cohen J (1977) Statistical power for the behavioural sciences, revised edition. Academic Press, New York"},{"key":"2117_CR22","doi-asserted-by":"crossref","first-page":"953","DOI":"10.1111\/j.1651-2227.2012.02742.x","volume":"101","author":"A Bartonek","year":"2012","unstructured":"Bartonek A, Saraste H, Danielsson A (2012) Health-related quality of life and ambulation in children with myelomeningocele in a Swedish population. Acta Paediatr 101:953\u2013956","journal-title":"Acta Paediatr"},{"issue":"Suppl 1","key":"2117_CR23","doi-asserted-by":"crossref","first-page":"S112","DOI":"10.1080\/10790268.2007.11754614","volume":"30","author":"RT Abresch","year":"2007","unstructured":"Abresch RT, McDonald DA, Widman LM, McGinnis K, Hickey KJ (2007) Impact of spinal cord dysfunction and obesity on the health-related quality of life of children and adolescents. J Spinal Cord Med 30(Suppl 1):S112\u2013118","journal-title":"J Spinal Cord Med"},{"key":"2117_CR24","doi-asserted-by":"crossref","first-page":"194","DOI":"10.1111\/j.1469-8749.2003.tb00930.x","volume":"45","author":"M Wake","year":"2003","unstructured":"Wake M, Salmon L, Reddihough D (2003) Health status of Australian children with mild to severe cerebral palsy: cross-sectional survey using the Child Health Questionnaire. Dev Med Child Neurol 45:194\u2013199","journal-title":"Dev Med Child Neurol"},{"key":"2117_CR25","doi-asserted-by":"crossref","first-page":"473","DOI":"10.1097\/PHM.0b013e3181a0de3a","volume":"88","author":"WY Liu","year":"2009","unstructured":"Liu WY, Hou YJ, Wong AM, Lin PS, Lin YH, Chen CL (2009) Relationships between gross motor functions and health-related quality of life of Taiwanese children with cerebral palsy. Am J Phys Med Rehabil 88:473\u2013483","journal-title":"Am J Phys Med Rehabil"},{"key":"2117_CR26","doi-asserted-by":"crossref","first-page":"41","DOI":"10.1007\/BF00916029","volume":"3","author":"B Herjanic","year":"1975","unstructured":"Herjanic B, Herjanic M, Brown F, Wheatt T (1975) Are children reliable reporters? J Abnorm Child Psych 3:41\u201348","journal-title":"J Abnorm Child Psych"},{"key":"2117_CR27","doi-asserted-by":"crossref","first-page":"58","DOI":"10.1002\/(SICI)1097-0215(1999)83:12+<58::AID-IJC11>3.0.CO;2-A","volume":"12","author":"RB Levi","year":"1999","unstructured":"Levi RB, Drotar D (1999) Health-related quality of life in childhood cancer: discrepancy in parent\u2013child reports. Int J Cancer Suppl 12:58\u201364","journal-title":"Int J Cancer Suppl"},{"key":"2117_CR28","doi-asserted-by":"crossref","first-page":"692","DOI":"10.1542\/peds.90.5.692","volume":"90","author":"EH Canning","year":"1992","unstructured":"Canning EH, Hanser SB, Shade KA, Boyce WT (1992) Mental disorders in chronically ill children: parent\u2013child discrepancy and physician identification. Pediatrics 90:692\u2013696","journal-title":"Pediatrics"}],"container-title":["Child's Nervous System"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s00381-013-2117-5.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/article\/10.1007\/s00381-013-2117-5\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s00381-013-2117-5","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,3,5]],"date-time":"2022-03-05T17:08:05Z","timestamp":1646500085000},"score":1,"resource":{"primary":{"URL":"http:\/\/link.springer.com\/10.1007\/s00381-013-2117-5"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2013,9]]},"references-count":28,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2013,9]]}},"alternative-id":["2117"],"URL":"https:\/\/doi.org\/10.1007\/s00381-013-2117-5","relation":{},"ISSN":["0256-7040","1433-0350"],"issn-type":[{"value":"0256-7040","type":"print"},{"value":"1433-0350","type":"electronic"}],"subject":[],"published":{"date-parts":[[2013,9]]}}}