{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T23:49:58Z","timestamp":1777506598265,"version":"3.51.4"},"reference-count":31,"publisher":"Springer Science and Business Media LLC","issue":"11","license":[{"start":{"date-parts":[[2024,7,9]],"date-time":"2024-07-09T00:00:00Z","timestamp":1720483200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"},{"start":{"date-parts":[[2024,7,9]],"date-time":"2024-07-09T00:00:00Z","timestamp":1720483200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Childs Nerv Syst"],"published-print":{"date-parts":[[2024,11]]},"DOI":"10.1007\/s00381-024-06530-5","type":"journal-article","created":{"date-parts":[[2024,7,9]],"date-time":"2024-07-09T21:01:31Z","timestamp":1720558891000},"page":"3601-3607","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Strength in silence: the journey of mothers raising children with hydrocephalus"],"prefix":"10.1007","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2103-9361","authenticated-orcid":false,"given":"Eesha","family":"Yaqoob","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-3584-1041","authenticated-orcid":false,"given":"Asma","family":"Ahmed","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-0662-892X","authenticated-orcid":false,"given":"Beenish","family":"Qazi","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dua Abbas","family":"Zaidi","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Shahzad Ali","family":"Khan","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Bipin","family":"Chaurasia","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0792-9130","authenticated-orcid":false,"given":"Saad","family":"Javed","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2024,7,9]]},"reference":[{"issue":"9","key":"6530_CR1","first-page":"502","volume":"55","author":"S Rizvi","year":"2005","unstructured":"Rizvi S, Raza R, Anjum Q (2005) Hydrocephalus in children. J Pak Med Assoc 55(9):502\u2013507","journal-title":"J Pak Med Assoc"},{"key":"6530_CR2","doi-asserted-by":"publisher","first-page":"95","DOI":"10.1007\/s00381-010-1177-z","volume":"27","author":"M Faghih Jouibari","year":"2011","unstructured":"Faghih Jouibari M, Baradaran N, Shams Amiri R, Nejat F, El Khashab M (2011) Huge hydrocephalus: definition, management, and complications. Childs Nerv Syst 27:95\u2013100","journal-title":"Childs Nerv Syst"},{"issue":"4","key":"6530_CR3","doi-asserted-by":"publisher","first-page":"1065","DOI":"10.3171\/2017.10.JNS17439","volume":"130","author":"MC Dewan","year":"2018","unstructured":"Dewan MC, Rattani A, Mekary R, Glancz LJ, Yunusa I, Baticulon RE, Fieggen G, Wellons JC, Park KB, Warf BC (2018) Global hydrocephalus epidemiology and incidence: systematic review and meta-analysis. J Neurosurg 130(4):1065\u20131079","journal-title":"J Neurosurg"},{"key":"6530_CR4","unstructured":"World Health Organization (2003) New WHA resolution to accelerate efforts on food micronutrient fortification. https:\/\/www.who.int\/news\/item\/29-05-2023-new-wha-resolution-to-accelerate-efforts-on-food-micronutrient-fortification. 29 May 2023"},{"issue":"7","key":"6530_CR5","doi-asserted-by":"publisher","first-page":"e1053","DOI":"10.1016\/S2214-109X(22)00213-3","volume":"10","author":"V Kancherla","year":"2022","unstructured":"Kancherla V, Botto LD, Rowe LA, Shlobin NA, Caceres A, Arynchyna-Smith A, Zimmerman K, Blount J, Kibruyisfaw Z, Ghotme KA, Karmarkar S (2022) Preventing birth defects, saving lives, and promoting health equity: an urgent call to action for universal mandatory food fortification with folic acid. Lancet Glob Health 10(7):e1053\u2013e1057","journal-title":"Lancet Glob Health"},{"issue":"3","key":"6530_CR6","first-page":"942","volume":"11","author":"MA Qadir","year":"2017","unstructured":"Qadir MA, Amir S, Bano SH (2017) Prevalence and associated risk factors of congenital anomalies at a tertiary care hospital. Pakistan J Med Health Sci 11(3):942\u2013945","journal-title":"Pakistan J Med Health Sci"},{"key":"6530_CR7","doi-asserted-by":"publisher","unstructured":"Anele CO, Omon HE, Balogun SA, Ajekwu TO, Komolafe EO (2021) Hydrocephalus management challenges in a low-income country: a review article. J West Afr Coll Surg 11(3):29\u201334. https:\/\/doi.org\/10.4103\/jwas.jwas_57_2","DOI":"10.4103\/jwas.jwas_57_2"},{"issue":"3","key":"6530_CR8","first-page":"601","volume":"28","author":"Z Kurji","year":"2016","unstructured":"Kurji Z, Premani ZS, Mithani Y (2016) Analysis of the health care system of Pakistan: lessons learnt and way forward. J Ayub Med Coll Abbottabad 28(3):601","journal-title":"J Ayub Med Coll Abbottabad"},{"issue":"10","key":"6530_CR9","doi-asserted-by":"publisher","first-page":"1001668","DOI":"10.3389\/fpubh.2022.1001668","volume":"4","author":"F Ahmed","year":"2023","unstructured":"Ahmed F, Malik NI, Zia S, Akbar AS, Li X, Shahid M, Tang K (2023) Rural mothers\u2019 beliefs and practices about diagnosis, treatment, and management of children health problems: a qualitative study in marginalized Southern Pakistan. Front Public Health 4(10):1001668","journal-title":"Front Public Health"},{"key":"6530_CR10","unstructured":"National Assembly Secretariat (34th Pakistan drops 7 places to 161st rank in Human Development Index. 9 September 2022. Pakistan\u2019s HDI falls 2 notches to 154th position. www.thenews.com.pk. Retrieved 2022\u201305\u201309. \u201c| Human Development Reports\u201d. hdr.undp.org. Retrieved 2022\u201305\u201309. Session)\u201d (PDF). p. 18. Retrieved 7 December 2016"},{"key":"6530_CR11","unstructured":"Maghanga C. Challenges of mothers bearing children with hydrocephalus: a case study of Mombasa county, Kenya (Doctoral dissertation, Pwani University)."},{"key":"6530_CR12","doi-asserted-by":"publisher","unstructured":"Neoh MJY, Airoldi L, Arshad Z, Bin Eid W, Esposito G, Dimitriou D (2022) Mental health of mothers of children with neurodevelopmental and genetic disorders in Pakistan. Behav Sci 12:161. https:\/\/doi.org\/10.3390\/bs12060161","DOI":"10.3390\/bs12060161"},{"issue":"5","key":"6530_CR13","doi-asserted-by":"publisher","first-page":"E11","DOI":"10.3171\/2016.7.FOCUS16273","volume":"41","author":"RT Muir","year":"2016","unstructured":"Muir RT, Wang S, Warf BC (2016) Global surgery for pediatric hydrocephalus in the developing world: a review of the history, challenges, and future directions. Neurosurg Focus 41(5):E11","journal-title":"Neurosurg Focus"},{"issue":"2","key":"6530_CR14","first-page":"435","volume":"8","author":"A G\u00fcrol","year":"2015","unstructured":"G\u00fcrol A, Erdem Y, Tasbasi FY (2015) The experienced problems of mothers having children with hydrocephalus: a qualitative study. Int J Caring Sci 8(2):435\u2013442","journal-title":"Int J Caring Sci"},{"issue":"5","key":"6530_CR15","doi-asserted-by":"publisher","first-page":"424","DOI":"10.1016\/j.jtumed.2017.05.002","volume":"12","author":"S Sukeri","year":"2017","unstructured":"Sukeri S, Bakar RS, Othman A, Ibrahim MI (2017) Barriers to unmet needs among mothers of children with disabilities in Kelantan, Malaysia: a qualitative study. J Taibah Univ Med Sci 12(5):424\u2013429. https:\/\/doi.org\/10.1016\/j.jtumed.2017.05.002","journal-title":"J Taibah Univ Med Sci"},{"key":"6530_CR16","unstructured":"Magganga C. Challenges of mothers bearing children with hydrocephalus: a case study of Mombasa County, Kenya. [Pwani University, Doctoral dissertation]."},{"key":"6530_CR17","doi-asserted-by":"publisher","unstructured":"Nakamanya S, Siu GE, Lassman R, Seeley J, Tann CJ (2015) Maternal experiences of caring for an infant with neurological impairment after neonatal encephalopathy in Uganda: a qualitative study. Disabil Rehabil 37(16):1470\u20131476. https:\/\/doi.org\/10.3109\/09638288.2014.972582","DOI":"10.3109\/09638288.2014.972582"},{"key":"6530_CR18","doi-asserted-by":"publisher","unstructured":"Farmer JE, Marien WE, Clark MJ, Sherman A, Selva TJ (2004) Primary care supports for children with chronic health conditions: identifying and predicting unmet family needs. J Pediatr Psychol 29(5):355\u201367. https:\/\/doi.org\/10.1093\/jpepsy\/jsh039","DOI":"10.1093\/jpepsy\/jsh039"},{"issue":"1","key":"6530_CR19","first-page":"2","volume":"8","author":"M Ak\u00e7ak\u0131n","year":"2001","unstructured":"Ak\u00e7ak\u0131n M, Erden G (2001) Mental symptoms in parents of children diagnosed with autism. Turkish J Child Adolesc Mental Health 8(1):2\u201310","journal-title":"Turkish J Child Adolesc Mental Health"},{"issue":"3","key":"6530_CR20","first-page":"74","volume":"7","author":"G Y\u0131ld\u0131r\u0131m","year":"2004","unstructured":"Y\u0131ld\u0131r\u0131m G, G\u00f6ky\u0131ld\u0131z \u015e (2004) Exploring the psychosocial challenges faced by parents who experience infertility or struggle to conceive a healthy child. J Anatolia Nurs Health Sci 7(3):74\u201382","journal-title":"J Anatolia Nurs Health Sci"},{"issue":"4","key":"6530_CR21","first-page":"601","volume":"31","author":"H Corcnan","year":"2005","unstructured":"Corcnan H, Noonan K, Reichman NE (2005) Mothers\u2019 labor supply in fragile families: the role of child health. East Econ J 31(4):601\u2013616","journal-title":"East Econ J"},{"issue":"2","key":"6530_CR22","doi-asserted-by":"publisher","first-page":"238","DOI":"10.1111\/j.1471-6712.2007.00462.x","volume":"21","author":"BM Lindblad","year":"2007","unstructured":"Lindblad BM, Holritz-Rasmussen B, Sandman PO (2007) A life enriching togetherness\u2013meanings of informal support when being a parent of a child with disability. Scand J Caring Sci 21(2):238\u2013246. https:\/\/doi.org\/10.1111\/j.1471-6712.2007.00462.x","journal-title":"Scand J Caring Sci"},{"issue":"1","key":"6530_CR23","doi-asserted-by":"publisher","first-page":"33","DOI":"10.51952\/CNFE8887","volume":"15","author":"EK Clavering","year":"2007","unstructured":"Clavering EK (2007) Enabling carers to care: processes of exclusion and support for parents of young disabled children. J Poverty Soc Justice 15(1):33\u201344","journal-title":"J Poverty Soc Justice"},{"issue":"2","key":"6530_CR24","doi-asserted-by":"publisher","first-page":"86","DOI":"10.1111\/j.1744-6155.2008.00176.x","volume":"14","author":"CF Buran","year":"2009","unstructured":"Buran CF, Sawin K, Grayson P, Criss S (2009) Family needs assessment in cerebral palsy clinic. J Spec Pediatr Nurs 14(2):86\u201393. https:\/\/doi.org\/10.1111\/j.1744-6155.2008.00176.x","journal-title":"J Spec Pediatr Nurs"},{"issue":"4","key":"6530_CR25","doi-asserted-by":"publisher","first-page":"238","DOI":"10.1111\/j.1744-6155.2007.00119.x","volume":"12","author":"E Sen","year":"2007","unstructured":"Sen E, Yurtsever S (2007) Difficulties experienced by families with disabled children. J Spec Pediatr Nurs 12(4):238\u2013252. https:\/\/doi.org\/10.1111\/j.1744-6155.2007.00119.x","journal-title":"J Spec Pediatr Nurs"},{"issue":"4","key":"6530_CR26","doi-asserted-by":"publisher","first-page":"355","DOI":"10.1080\/13575270802267796","volume":"14","author":"H Harris","year":"2008","unstructured":"Harris H (2008) Meeting the needs of disabled children and their families: some messages from the literature. Child Care Pract 14(4):355\u2013369","journal-title":"Child Care Pract"},{"issue":"1 Pt 3","key":"6530_CR27","doi-asserted-by":"publisher","first-page":"277","DOI":"10.1542\/peds.105.S2.277","volume":"105","author":"EC Perrin","year":"2000","unstructured":"Perrin EC, Lewkowicz C, Young MH (2000) Shared vision: concordance among fathers, mothers, and pediatricians about unmet needs of children with chronic health conditions. Pediatrics 105(1 Pt 3):277\u2013285","journal-title":"Pediatrics"},{"key":"6530_CR28","unstructured":"Scotland C (2003) Nobody ever wants to play with me. Capability Scotland, Edinburgh"},{"issue":"3","key":"6530_CR29","doi-asserted-by":"publisher","first-page":"522","DOI":"10.2307\/1558767","volume":"38","author":"ET Powers","year":"2003","unstructured":"Powers ET (2003) Children\u2019s health and maternal work activity: estimates under alternative disability definitions. J Human Resour 38(3):522\u2013556","journal-title":"J Human Resour"},{"issue":"4","key":"6530_CR30","first-page":"601","volume":"31","author":"H Corcnan","year":"2005","unstructured":"Corcnan H, Noonan K, Reichman NE (2005) Mothers\u2019 labor supply in fragile families: the role of child health. East Econ J 31(4):601\u2013616","journal-title":"East Econ J"},{"issue":"15","key":"6530_CR31","doi-asserted-by":"publisher","first-page":"3","DOI":"10.1186\/s12888-015-0382-4","volume":"22","author":"JJ Ou","year":"2015","unstructured":"Ou JJ, Shi LJ, Xun GL, Chen C, Wu RR, Luo XR, Zhang FY, Zhao JP (2015) Employment and financial burden of families with preschool children diagnosed with autism spectrum disorders in urban China: results from a descriptive study. BMC Psychiatry 22(15):3. https:\/\/doi.org\/10.1186\/s12888-015-0382-4","journal-title":"BMC Psychiatry"}],"container-title":["Child's Nervous System"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00381-024-06530-5.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s00381-024-06530-5\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00381-024-06530-5.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,11,5]],"date-time":"2024-11-05T21:15:55Z","timestamp":1730841355000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s00381-024-06530-5"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,7,9]]},"references-count":31,"journal-issue":{"issue":"11","published-print":{"date-parts":[[2024,11]]}},"alternative-id":["6530"],"URL":"https:\/\/doi.org\/10.1007\/s00381-024-06530-5","relation":{},"ISSN":["0256-7040","1433-0350"],"issn-type":[{"value":"0256-7040","type":"print"},{"value":"1433-0350","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,7,9]]},"assertion":[{"value":"15 June 2024","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"28 June 2024","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"9 July 2024","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"None.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interest"}}]}}